Article
Change
Community
3 min read

The common sense driving local charity

Catherine Jupp and her friends give furniture to those who need it at no cost. Ryan Gilfeather explores what motivates them.

Ryan Gilfeather explores social issues through the lens of philosophy, theology, and history. He is a Research Associate at the Joseph Centre for Dignified Work.

A group of people stand in front of the side of a van marked 'Furniture Friends.
Catherine Jupp and her Furniture Friends.

It will come as little surprise to the UK public to hear that Christians are involved in charity. In times of great need, several high-profile Christian charities offer help. For example, after the devastating earthquake in Turkey and Syria last year, the UK’s Disaster Emergency Committee pooled the resources of 15 leading aid charities to provide relief. Of those charities, four explicitly identify as Christian: Tearfund, Christian Aid, CAFOD, and World Vision. Anyone following these efforts would easily grasp that Christians are involved in large-scale charitable activity that helps those in need.  

Outside of the public gaze, however, are ordinary Christians serving the marginalised in their local communities. Around the country, they are running warm banks, food banks, and other enterprises helping those unable to provide for themselves or their families. Despite how hidden these efforts are, they make an enormous difference to their local communities. The collective impact of all these different groups is vast.  

My colleague, Catherine Jupp is one of these faithful people. Catherine and I both serve our parish church in rural Hertfordshire, I as a priest and she as a lay minister. In her previous life, she taught in a secondary school in a challenging area. Now, alongside her ministry, she and her husband run a local charity called Furniture Friends.  

Their mission is simple: to give furniture to those who need it at no cost. Day to day, this involves volunteers who work with them driving around in a van, collecting beds, sofas and other items from people who have no more use for them. They take calls from a network of social workers around Hertfordshire, asking for particular things for certain people. And, they go and deliver furniture to these individuals and families in need.  

Catherine speaks of the challenging circumstances their clients live in: families living without any furniture. Furniture Friends makes a massive difference to these children who can now sleep on beds and families who can sit on a sofa. One recipient said to them,  

“Yesterday all I had was a mattress and a camping stove, today I have a bed and a beautiful chair. I feel like a queen, thank you so much.”  

A social worker praised their work with these words: 

“I just wanted to let you know what a difference you have made to our families. I visited my client today and for the first time in four years the children were dressed and clean, the house was tidy and organized. Your help and donations have given this family a new direction and a sense of pride in their home which has had a huge impact on the children and their wellbeing.”  

Over the past year, she has shared her concern about the huge increase in referrals as the cost of living crisis sunk its teeth in. From the outside, I see how they have responded to this increasing need. Working as hard as they can, they deliver a significant amount of furniture around the local area. Although they are one small charity, they have a significant impact.  

She also often talks about what drives her to this work. Catherine is theologically trained and taught ethics for years, so she could offer a theologically complex account of her motivation if she wished. However, she has no need to. She simply says that it is the most obvious thing in the world that she ought to do this work. “It’s just what you do,” she says. By this, she means, that it is the clear outworking of her Christian faith.  

I often hear this expression when speaking with Christians leading social justice enterprises and movements. When I dig a little deeper, they tend to say that growing up in Church, they regularly heard in sermons that serving those most in need comes hand in hand with loving God. Christians believe this because the Bible repeatedly expresses that God has a special concern for the poor and that we must too. When one hears this message week after week, year after year, it becomes common sense to us. Hence, when Catherine says she delivers furniture to those who most need it, because “It’s just what you do,” she means that for her, love for God and love for neighbour must always come together. It is for this reason that Catherine does this work, outside of the public gaze, which makes all the difference in the world to the many people she serves. 

 

Article
Ageing
Care
Change
Death & life
6 min read

A Tolkien poem helps a nurse understand the ravages of dementia

'Not all who wander are lost.'

Helen is a registered nurse and freelance writer, writing for audiences ranging from the general public to practitioners and scientists.

An elderly woman wearing headphone looks up and to the side with a big smile.
Playlist for Life

Not all who wander are lost.

Often written on a care home wall, on an inspirational poster, these words are usually set against a forest background, or compass, for added effect. They have also been used as the title of a conference paper discussing so-called smart trackers for people with dementia, whilst, Not all who wander need be lost is the title of a concise guide to navigating the heartbreaking challenges when a loved one is diagnosed with Alzheimer’s disease or other dementia.

As a care home nurse for more than ten years, I have seen residents wander - not lost but “walking with purpose”, as it is sometimes known in the caring community. “Nobody gets up and walks without a reason,” says Suzanne Mumford, Care UK's Head of Nursing, Care and Dementia; perhaps they are easing pain, or boredom, or looking for something that they can’t describe. I remember residents exploring, enquiring into self-made mysteries solvable only by themselves, examining everything from door handles to another resident’s buttons, even escaping with surprising speed. Walking with them, often in silence, can bring a sense of relief, comfort and companionship.  

What I didn’t know was that this is a quotation from a poem by JRR Tolkien, published in The Fellowship of the Ring seventy years ago. The actual line is - “Not all those who wander are lost”. 

All that is gold does not glitter, 
Not all those who wander are lost; 
The old that is strong does not wither, 
Deep roots are not reached by the frost. 
 
From the ashes a fire shall be woken, 
A light from the shadows shall spring; 
Renewed shall be blade that was broken, 
The crownless again shall be king.” 

We first hear this poem in Chapter Ten of Book One, as Frodo reads it in the postscript of a letter from Gandalf. As I read it, the imagery of being lost, withered, frost-bitten, in darkness, burned and broken, speaks something, in poetic picture language, of the ravages of dementia, the harrowing losses, the valley of tears. It brings to mind residents unaware of familiar objects or surroundings, looking straight through loved ones without a flicker of recognition, losing also language, continence, mobility and the ability to swallow. 

The TV presenter Fiona Philips recalled an agonising decline in her mother as she succumbed to Alzheimer’s, describing how, in the final stages, her mother “spent whole chunks of time just sitting and staring ahead, only able to give out a series of sounds”. Fiona herself now lives with dementia. “'It’s devastated my family and it’s the biggest health and social care challenge we face as a country,” she says. 

I once interviewed retired doctor Jennifer Bute, who lives with dementia. She talked of time travel (perceiving herself as living in a time from her past); disorientation to place and person; frightening hallucinations when old memories are seemingly ‘unlocked’; and ‘emotional unzipping’ when agitation and anxiety increase, often in the late afternoon or evening in something poorly understood as a symptom, known as ‘sundowning’. 

Yet there is something more to this poem – each of the pains has a promise – not all who wander are lost; the old that is strong does not wither; and, most poignantly, deep roots are not touched by the frost. In dementia, it is true that deep roots are untouched, that an enduring aspect of a person’s identity never truly withers, though it may be mostly unseen. Something remains. Oliver Sacks the famous neurologist emphasised that, even in the late stages of Alzheimer’s, the person is still ‘alive inside’ (the inspiring documentary with this title is recommended). In stunning real-life stories, he has shown how music appears to ‘call back the self’, awakening moods, memories and thoughts that had seemingly been lost. He refers to music’s extraordinary ‘neural robustness’ and describes one man, unable to tie his tie or find his way to the stage, yet able to perform a perfect piano solo. In one life-affirming, must-watch, tear-jerking video, gospel music was shown to enliven, calm, focus and engage a man simply known as Henry.    

Watch Henry

Singing can “provide islands of arousal and awareness like nothing else can”, according to Alicia Clair, Professor of Music Therapy. I’ve seen singing bring the person into the present for a passing moment, illuminating a face that seemed far away. One otherwise-silent lady completed the chorus of ‘Daisy, Daisy’ before descending into dementia again. Others have laughed, clapped, danced, embraced and even shed a silent tear during music therapy sessions, when music elicits memory. Doll therapy meanwhile has sometimes restored and revealed a sense of nurture, purpose, care and pride, with residents feeding their new friend before accepting their own food, folding its clothes and taking care of it cradled in their arms. Though it divides opinion, a doll can preserve dignity if it de-escalates agitation or engagement in physical or verbal abuse; a sense of dignity also comes from the person being able momentarily to give care rather than receive it. 

“From the ashes a fire shall be woken, A light from the shadows shall spring; Renewed shall be blade that was broken,” continues Tolkien's poem, and, though not the original intention, these powerful images of renewal and restoration paint a picture of something known as “paradoxical lucidity”, or unexpected cognitive lucidity and communication in some patients with severe dementia, especially around the time of death (though sometimes long before).  

Anecdotes are recorded of “unexpected, spontaneous, meaningful, and relevant communication or connectedness in a patient who is assumed to have permanently lost the capacity for coherent verbal or behavioral interaction due to a progressive and pathophysiologic dementing process”.  Some scientists are seeing them as a paradigm shift in the understanding and perhaps even treatment of dementia. I will never forget when a woman in the late stages of dementia, with little spoken language, was brought back to the nursing home weeks after hospital admission; she had been perilously ill. With bright eyes, she took my arm and, as if the mist had cleared for a moment, spoke warmest words of thanks to me for helping her on the day she collapsed. In another fleeting and irreproducible moment, a lady wished me happy birthday, before continuing her silent walk around the home. Witnessing such an event is ethically and emotionally transformative. 

The concept of remaining ‘alive inside’ even when abilities, language and memory are eroded by dementia is taken to the next level in Christianity, which teaches that life continues even after death itself. The Bible speaks of new life beyond the grave; the fire shall be woken, a light shall spring. And there will be a crown (and the gold will glitter). The Crown of Life is referred to, being bestowed upon "those who persevere under trials." Dementia is one of life’s severest trials; a cross to bear. In the 1912 hymn “The Old Rugged Cross”, another cross is spoken of, being the cross of Christ at his crucifixion. Clinging to that cross, living out a Christian life, the hymnwriter wrote of “exchanging the cross for a crown” at life’s end. After ashes, hope awaits the Christian. 

 

Playlist for Life is a charity encouraging people to create playlists for people living with dementia.