Article
Assisted dying
Care
Comment
Easter
5 min read

I know who will be most affected by legalising assisted dying

Contemplating lent revives hard memories and raises fresh fears.

Ryan is an ordained Priest in the Church of England, currently serving in south London. 

A close up of a forehead bearing an ash cross marked on it.
Ahna Ziegler on Unsplash.

“What’s that - a face tattoo?” 

These were the words of one person as I walked past them on the streets on a recent Wednesday, with the ashes of last year’s burnt palm-branches placed across my forehead in the shape of the cross.  

The cross has been a symbol of hope for over two millennia; that even in the most painful of circumstances, darkness does not have the final say, including in death.  

As a society, we don’t really talk about death that much. Margot Robbie’s Barbie was the quintessential party-pooper when she pondered: 

 “do you guys ever think about dying?”. 

It’s no fun to dwell on death and dying, and for many of us, we put it off as long as we can. That all changed last year with the introduction of the assisted dying bill into the Houses of Parliament. Our national attention was, for a rare moment, captured by death.  

As a parish priest, I’ve seen the finality of burying someone into the ground. I’ve seen the sadness in the eyes of those trying to grieve. 

The words of Ash Wednesday, which remind us that we are ‘but dust, and to dust we shall return’ are echoed in the famous words that the priest recites in those last moments of burial, ‘ashes to ashes, dust to dust’. In that moment, amongst the bereaved, there is no escaping the inevitability of death. It is the ultimate statistic, 1 in 1 die. 

Whilst death is of course universal and will affect us all, the impact of this assisted dying bill could have consequences for some of the most vulnerable in society.  

As I reflect on my time as a Priest in East London, this is not abstract theory, but something I lived with each day. I served amongst a hugely diverse, vibrant, community in one of the poorest parts of the city. As I try to picture some the people I’ve walked alongside, I know it is these lives that will be most affected.  

One of the reasons I have concerns about the bill is the prospect of these people being coerced into ending their own lives prematurely, by a world that has already told them their lives are of little value. There are already huge disparities in access to the current provision of palliative care at the end of life, particularly amongst people of colour, the disabled and the poor.  

Of the 500,000 people who die each year, 100,000 do not access the care they need. This number is skewed towards ethnic minorities and those who come from poorer backgrounds.  

There is much confusion and misinformation about what end-of-life care even is. Research conducted by Marie Curie shows that 1 in 5 people from an ethnic minority background believe Palliative Care is actually Euthanasia.  

We only need to look at what has happened around the world when the ‘right to die’ becomes a duty to die. Even with the best of intentions, other jurisdictions show us that safeguards rapidly deteriorate and those who are already vulnerable become even more so.  

I worry that the way in which this bill is being handled - rushed through, little time being given to properly chew over the profound consequences it may have - reflects the wider way we view death. 

By trying to provide a ‘choice’ for a certain group of people, the consequence will be taking away real choice from those who already have little. 

Yet we know that for those who do access it, palliative care can be hugely effective in improving their quality of life, and for some, they can even outlive their prognosis. During Ash Wednesday’s service, I met an elderly gentleman who was diagnosed with stage four pancreatic cancer in 2019. He was told he had five months to live. He described every day of his six-year survival since as a ‘miracle’, his eyes filled with evident joy.  

Such a blessing stands in stark contrast to the lonely final days of my 96-year-old great grandmother. She was suddenly taken ill during the Covid-19 pandemic and was frantically rushed to a hospital. Amidst the chaos, exasperated by the restrictions against seeing family that were in place at the time, I distinctly remember confused conversations about placing her in a care home for her final days. It was clear she needed a lot of specialist attention, more than our family could provide ourselves.  As she was discharged to stay with our aunt, she never did reach that care home, as she died at home. She was buried in our local cemetery, with our family watching on Zoom.  

My final memory of my great-grandmother will be the FaceTime call we shared when she was taken to hospital, with the poor data connection and shaky picture. I am so grateful for the few family members who were able to be by her side when she died, but I’ve often wondered whether she fully received the care she actually needed during those final days, in the way she needed it.  

What my great-grandmother didn’t have a lot of at the end of her life was time.  

That’s also true for this bill. Concerns have been raised that only five hours of debate were given to this Bill in the chamber, comparatively short for a change in the law of this magnitude.  

I worry that the way in which this bill is being handled- rushed through, little time being given to properly chew over the profound consequences it may have- reflects the wider way we view death.  

Do we view death - and indeed the dying- as something to be shoved to one side, not spoken about in the hopes we can avoid its impact? Or do we view death as an important moment to review who and what matters most in life?  

Perhaps for some, the fact that Christians devote a period of 40 days to dwell on death may be one of the mysteries of faith. However, perhaps it’s not such a bad idea after all.  Death may bring with it fear, grief and pain and so we tend to avoid it. But do we risk missing out on much more? As we head into Easter, the cross still serves as a powerful reminder that, especially in death, Hope can be found, that Good has triumphed over evil, and Light shines even in the darkest of places.  

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Article
Comment
Community
Hospitality
3 min read

Fairytale housing is building up new problems

Solve one social problem but don't cause another crisis.

Imogen is a writer, mum, and priest on a new housing development in the South-West of England. 

A CGI of a new housing estate viewed from above.
Home Builders Federation.

This time last year Labour promised 1.5 million new homes as part of its election campaign. Now plans are afoot to get these houses well and truly off the ground. New housing is seen as the salvific answer to one of Britain’s greatest social problems. The housing crisis sees rent-avoiding sofa surfers, impossibly high interest rates (except from the bank of mum and dad), and a scarcity of social housing.  

New builds are to the housing crisis what the fairy godmother was to Cinderella. Adequate and safe housing is an essential infrastructure for any society and is a fundamental human right. With an influx of new properties on the market, prices fall, social and affordable housing increases, and people are able to buy before their inheritance arrives. Families on housing waiting lists can live in a home somewhere they know. New housing offers Britons opportunities to find, purchase, and live in their forever, fairytale homes. In theory.  

It could turn out to be a nightmare. We are instead sentencing them to social and spiritual isolation. By focusing on building houses, we fail to meet the essential human need for community, social interaction, and connection. (Wo)man is not, and never will be an island. Building homes is not enough. We must also build communities.  

As we build community we safeguard against the epidemic of loneliness, segregation, and isolation

On new housing developments, organic community creation is challenging. Momentum is required to create communities. The government’s house building target does recognise the need for infrastructures such as doctor’s surgeries and schools. But these are not developers’ priorities. And they are also not enough to embed community into those new developments.  

Can you imagine your fairytale home without the corner shop for an emergency pint of milk? Or without the café for bleary eyed mums and babes? Or without the play park, pub, poo bin, and postbox? Can you imagine your happily ever after will be without a local hall for big birthday celebrations, for scout groups, and for Pilates? What about a church, with bells ringing out the universal soundtrack of Sunday mornings, offering a space to breathe, to pray, and to explore your own spiritual journey?  

We have recently moved onto a new housing development and have seen firsthand the need for community amongst these supposedly dream homes. We are also part of a new church here, writing a different story and weaving community throughout the development. Knowing our neighbours’ names and giving and receiving help are part of embracing social interaction. Our pop-up coffee bike is a place where people can gather and get to know one another around a nearly-expertly brewed beverage. This is the beginning of human connection within a community.  

But the church also offers a place for spiritual connection. New housing without the opportunities for human and spiritual connection leave residents on a cliffhanger. The church offers people another ending to their fairytale. Because the dream-like show-home does not become our own and we are left with the disappointment of reality. The story of Jesus speaks of miracles not magic wands, redemption not Red Riding Hood, the Prince of Peace not Prince Charming. In the void left by developers, Jesus can speak, the Spirit can move, and the church can show up to offer human and spiritual connection and meaningful community.  

Though these new builds may solve the housing crisis, they may also contribute to a crisis of community across our nation. But as we build community we safeguard against the epidemic of loneliness, segregation, and isolation. We imagine spaces into being so that community can flourish. Perhaps then we can look forward together to a different kind of happily ever after.