Review
Comment
Migration
4 min read

Listen to their stories: five good reads by refugee writers

The very least we owe refugees is the courtesy of listening to their stories. As World Refugee Day approaches, Krish Kandiah calls us to go beyond the headlines and recommends five good reads.

Krish is a social entrepreneur partnering across civil society, faith communities, government and philanthropy. He founded The Sanctuary Foundation.

Two young brothers sit next to other, the younger looks to the elder.
Hamed Amiri, author of The Boy with Two Hearts, with his brother.

I heard them calling out to me as I walked down the street.  

“Hey Paki, why don’t you go black to your own country?!”  

I carried on walking. I was 14 years old, and I had heard it all before. In fact, I couldn’t remember a day when I didn’t face a similar verbal barrage at some point. It didn’t get any easier. It always hurt.  

When you are told something over and over again, you can start to believe it is true. But I wasn’t from Pakistan. None of my family members were from Pakistan. I had been born in the Sussex County Hospital in Brighton. I had a British passport – as did my parents.  

That group of people on the other side of the road were making judgments about me that were entirely wrong. I had to remind myself – like I did every day: they were the ones who were out of place, not me. They were the ridiculous ones, not me.  

I flashback to that moment sometimes as immigration persists as a top news story. Most days in the media I hear someone say today’s equivalent of “Hey Paki, why don’t you go back to your own country?!  The derision is there, the bigotry, the racism, the aim to exclude and to humiliate, the false assumptions and preconceptions.   

It’s time to hear the other side of the story. Who are the refugees that are coming here? Why are they coming? What has happened to them to make them stay in a country that is not always as welcoming as it should be? How does it feel to be an asylum-seeker or refugee in the UK right now? For refugees who have faced not just verbal abuse but physical assault, threats of torture and death the very least we owe them is the courtesy of listening to their stories. 

As we approach World Refugee Day on 20th June I would like to recommend you to spend some time listening not just to the polarising rhetoric but those about whom they are talking. The best way is to spend time in person with those who have been forced to flee their homes. The second-best way is to read books written by or about refugees. The following are some of the most powerful I have read recently:   

The Lightless Sky by Gulwali Passarly 

A book cover shows a the head and body of a person silhouetted against a dusty sky.

This beautifully written book will not only give you fresh insight into life in Afghanistan but will help you understand why there are unaccompanied asylum-seeking young Afghan boys in the UK. Gulwali explains his dangerous childhood in Afghanistan and why his family paid to have him taken out of the country. This book draws you into the world of a young boy proud of his heritage but fleeing a war zone that ripped his family apart. Gulwali’s journey takes him from the mountains of Afghanistan with his grandfather to a rollercoaster of a life in the UK and how he became a carrier of the Olympic torch and an outspoken advocate for refugee rights. 

The Boy with Two Hearts by Hamed Amiri 

A book cover collage shows two brothers above an outline of one of their heads against a desert background

I saw this gripping tale of Hamed and his family performed at the National Theatre in London. It begins with Hamed’s mother Fariba taking the brave decision to give a public speech against the injustices of the Taliban in Afghanistan. The Taliban issued an execution order against her which would likely have led to her death. The family sell their possessions and head out of Afghanistan to get anywhere they can to safety. There are added complications to their already challenging circumstances as Hussein, Hamed’s older brother needs urgent life-saving heart surgery. It’s a nail-biting story of love and loss told with grace as the family travel across seven countries to find sanctuary finally in Wales.

My Fourth Time, We Drowned by Sally Hayden 

A boat used for smuggling migrants is paraded in a protest. Death notices of dead migrants are attached to the side
A boat used for smuggling migrants is paraded in a Berlin protest. Dead migrants are commemorated by death notices attached to its side.

Sally Hayden did not plan to write a book about the world’s most dangerous migration route but when she received direct social media messages from refugees imprisoned in a Libyan detention centre her life was turned upside down. This gritty story has won numerous awards for outstanding journalism and opens up readers eyes to the desperate situation faced by asylum seekers in the Middle East and Europe. Sally writes with great precision and detail and offers a candid and challenging picture of life for those forced to flee from countries such as Sudan, Eritrea, Syria and Afghanistan.  

You Don’t Know What War Is by Yeva Skalietska   

A book cover shows an illustration of a sunflower against a blue background.

Yeva Skalietska, aged 12, was sleeping soundly in her bed at her grandmother’s house when suddenly she was jolted awake by a noise that sounded like a car being crushed into scrap metal. She soon came to realise that a rocket attack was taking place in her home city of Kharkiv, Ukraine. Her gripping tale of those first few weeks of the Russian invasion told from a child’s perspective somehow brings home the reality of war in a most chilling and urgent way. It made me consider how my children would have dealt with all she had to go through. 

No Place Like Home refugee book festival

If you would like to hear refugee authors such as the ones above telling their stories in person, the ‘No Place Like Home’ Literary Festival is taking place on World Refugee Day, 20th June, St Martin-in-the-Fields Church, Trafalgar Square. A full list of speakers, and tickets,  subject to availability, can be found in this link.

Article
Assisted dying
Comment
Politics
7 min read

Assisted dying hasn’t resolved Swiss end of life debates

Despite attempts to normalise it, new challenges still arise.

Markus is Professor of Moral Theology and Ethics at the University of Fribourg, Switzerland.

A single bed, wiith an unmade colourful duvet stands in the corner of a room. A hoist reaches over it from the corner.
The dying room, Dignitas Clinic, Zurich.
Dignitas.

While countries such as Germany, France or the UK are currently struggling to find a suitable regulation for assisted suicide, their peers in the Netherlands, Canada and Switzerland have years of experience with the controversial medical practice. Even if each state must explore its own ways of dealing with these ethically controversial issues, it is obvious that international experience should not be ignored as they try to find a way forward.  

In Switzerland the discussions and challenges surrounding assisted suicide are increasing rather than decreasing. Contrary to the idea that a liberalisation of assisted suicide would lead to fewer debate, tensions and difficulties are increasing.  My observation, and thesis, indicates that practices such as assisted suicide cannot be “normalised”, even in the medium and long term. 

Developments 

In recent years, one to two per cent of all deaths in Switzerland were due to assisted suicide.  From an overall perspective, this practice is therefore still a marginal phenomenon. However, a look at the total number of assisted suicides per year gives a different impression, as this has increased more than fivefold in the years between 2008 and 2020, from an initial 253 to 1,251 deaths per year, a rising trend. The cause of death statistics for Switzerland only include those cases of assisted suicide in which persons resident in Switzerland were involved and the death was reported to the authorities. According to the Swiss Federal Statistical Office, in 2020, it was mainly people over the age of 64 who made use of assisted suicide. Detailed information on the underlying illnesses of the people affected in 2018 shows that about 40 per cent were affected by cancer, just under 12 per cent by diseases of the nervous system, a further 12 per cent by cardiovascular diseases and just over a third by other illnesses, including dementia and depression. There are currently seven right-to-die organisations in Switzerland which play a leading role in a typical assisted suicide procedure. They work closely with doctors who are prepared to prescribe a lethal drug, generally Pentobarbital. The data reflects an ambivalent picture: on the one hand, the proportion of assisted suicide cases is relatively low in relation to all deaths and, for example, in comparison to the large number of people who die in Switzerland in a state of deep sedation until death; on the other hand, the number of assisted suicides in Switzerland has risen sharply in recent years.  

Perceptions and assessments 

Since the 1990s, the public perception and assessment of assisted suicide in Swiss society has changed from an initially cautious and sceptical attitude towards broad acceptance. While the debates in other countries are characterised by relatively sharp controversies between those in favour and those against, public discourse in Switzerland has been less polarised. There are indications of a certain normalisation of the situation, the strongest sign is that Switzerland has so far refrained from regulating assisted suicide in a separate law. The results of a recently-published study on the opinions of Swiss people over the age of 55 regarding assisted suicide confirm these impressions.: The survey showed that over four-fifths of respondents support legal assisted suicide, almost two-thirds can imagine asking for assisted suicide themselves at some point, and that almost one-third are considering becoming members of an right-to-die organisation in the near future, with one-twentieth of respondents already being members at the time of the survey in 2015. Among people with a higher level of education and older people aged between 65 and 74, approval of assisted suicide and corresponding practices was higher than among less educated, younger and very old people; approval was also significantly lower among religious practitioners. 

Sensitive topics  

The fact that assisted suicide enjoys broad support in Swiss society as a whole does not mean that there are not difficult and controversial aspects relating to its practice. Relevant topics include, in particular, places of death, authorisation criteria and procedures. 

Places of death: Assisted suicide is permitted also for mentally ill persons in psychiatric clinics, but the federal court recommends great caution here and requires two psychiatric expert opinions to ensure that the person willing to die is capable of judgement with regard to the desire to commit suicide. Although assisted suicide for children and adolescents has hardly been an issue in Switzerland to date, the corresponding debates are currently being held in Canada and elsewhere. The question of whether people in prison also have a right to make use of assisted suicide, has been the subject of intense debate in Switzerland for years, with a generally positive response. The question of whether right-to-die organisations should be given access to acute hospitals and nursing homes is still the subject of controversial debate, with regulations varying from hospital to hospital, nursing home to nursing home 

Authorisation criteria: With regard to the admission criteria for persons willing to die, the capacity for judgement is at the centre of attention: while the importance of the criterion is undisputed in itself, there is a struggle for reliable standards and procedures to reliably test this criterion. Since the publication of the SAMS ethical guidelines Management of Dying and Death in 2018, the criterion for end of life and, depending on this, that of unbearable suffering have received new attention due to an objection by the Swiss Medical AssociationFMH. While the guidelines are based on the criterion of unbearable suffering, the FMH wants to stick to the near end of life. It is certainly difficult to diagnose the existence of unbearable suffering, as the international debate on the significance and assessment of existential (neither physical nor psychological) suffering shows. This difficulty is illustrated by the debate that has been going on for several years in Switzerland about so-called old-age suicide and the inherent criterion of tiredness of life. At the centre of the dispute is the legally difficult question of whether a doctor is also allowed to prescribe a lethal drug to a healthy person. 

Procedures: Here the role of the medical profession and right to die organisations is by far the most important issue. In contrast to the physician-centred models in Belgium, Canada and the Netherlands, the Swiss model of assisted suicide is based on the idea that every person has the right to end their life and may call on the help of any other person to do so. Although the medical profession is usually involved in the process, the management of the procedure is normally the responsibility of a right-to-die organisation. This division of responsibilities is always up for debate when legal regulations are being considered, in which doctors should tend to take the lead in the process due to their professional background. There is also a debate about how and by whom compliance with the authorisation criteria should or could be monitored, whereby it remains to be decided whether this should be carried out before or after the death. At present, a certain amount of monitoring takes place following a suicide, insofar as the authorities investigate the cases afterwards. There is also debate as to whether Pentobarbital is a suitable means of suicide, especially if this barbiturate is not administered intravenously but taken orally; there is no knowledge of how many cases are currently administered intravenously and by whom an infusion is then set up. Last but not least, consideration has already been given to the use of lethal drugs, such as helium gas, which can be obtained over the counter. 

Attempts at regulation 

Political efforts to regulate assisted suicide in Switzerland in a more nuanced way than today have been made since the 1990s but have remain largely without consequences to date. In relevant judgements by the Federal Supreme Court or in statements by the Federal Department of Justice and Police, reference is regularly made to the ethical guidelines of the SAMS. These are classified as soft law and are therefore not legally binding, even though their content has become the subject of dispute. The National Advisory Commission on Biomedical Ethics (NCE) had already recommended more far-reaching legal regulation in 2005 as part of a detailed opinion on the subject; in the opinion of the NCE at the time, the review of authorisation criteria, a justifiable regulation of assisted suicide for the mentally ill, children and adolescents and state supervision of right-to-die organisations, should be ensured by law. The question is what form a legal regulation can take that grants the medical profession far-reaching powers but at the same time prevents medical paternalism (in favour of or against assisted suicide). From the perspective of Swiss experience, this is “a square circle”: either the doctors retain the final decision on who receives the barbiturate, or official access rules are established, the review of which does not generally require medical expertise. 

The outlook

In the short and medium term, it can be assumed that the number of assisted suicides in Switzerland will continue to rise. The coronavirus pandemic and the particular difficulties faced by nursing homes during this time are likely to exacerbate this increase. In view of these expectations and the legislative processes in other European countries, pressure is likely to increase in Switzerland to create a legal regulation. Overall, I think politically it will be important to create a legal regulation, in order to ensure legal equality and legal certainty on the one hand and prevention of abuse and expansion on the other. At the centre of social-ethical reflection is the challenge of learning to deal with the pluralism of different ideas of a good death and to develop and establish alternative models to medically assisted dying. The thesis I mentioned at the beginning is confirmed today: assisted suicide in Switzerland can hardly be normalised; new problems, challenges and demands are constantly arising. Suicide, whether with or without the help of another person, always means an existential transgression that defies normalisation.