Article
Assisted dying
Care
Creed
Death & life
5 min read

“Shortening death” sidesteps the real battle

We need to do more than protest bad deaths, we need to protest death itself, it's more than biological.

Tom is a physician and completing a theology doctorate. 

A hand drapes over the side of an object out of shot.
Michael Schaffler on Unsplash.

What is “death”? It’s surprising the term has received little attention in the assisted dying discussion so far, because more hangs on the answer than one might expect. At a press briefing, Kim Leadbeater MP stated that the assisted dying bill she is proposing is about “shortening death, not ending life.” 

But what meaning does “death” have here? 

The current bill defines neither “death” nor “dying.” Granted, it implies a biological definition. The bill speaks of administering approved substances to “cause that person’s death” and of capacity and decision-making around “ending life.” These fit the understanding of death with which the medical profession operates—death is the point in time when the combined functions required for human life cease. It is a one-time event, the end of physiology, and so is recognised by a combination of physical signs.  

Death, then, is a diagnosis. 

So, too, “dying”—though here the waters are murkier. Setting aside sudden deaths, medical talk of dying takes us out of binary territory. Dying speaks of a process, of the “terminal phase.” Within medicine a diagnosis of dying heralds the expectation that a person’s death will occur within hours or days. And so, the focus shifts. The task of care is no longer the coordinated work of investigation, preserving life, and treating symptoms. Now attention is on bringing relief to the process of dying. 

The bill seems wise to much of this. Though definitions of death and dying are absent, the bill does define terminal illness—“an inevitably progressive condition which cannot be reversed by treatment” and from which the event of death “can reasonably be expected within 6 months.” And so, it clearly distinguishes terminal illness from biological death and, implicitly, from dying. 

Of course, terminal illness and biological death are related. Terminal illness is irreversible, and where terminal illness leads is death. Or, you might say, it leads to the end of life. Apart from the timescale of six months, the same may be said of ageing: ageing is irreversible, and where ageing leads is death. This is why Kim Leadbeater’s comment was puzzling to me. I suspect what she really meant was “shortening terminal illness.” If so, this is confusing because, within the framework of the bill, “shortening terminal illness” and “ending life” are identical. It seems she was getting at something else.

“It seems odd that in the name of eliminating suffering, we eliminate the sufferer.” 

Stanley Hauerwas

I suspect Kim Leadbeater was echoing a conviction at home in the Christian faith. That is, try as we might to keep death at a distance and restrict it to a faraway frontier, the life of human beings involves death. I don’t simply mean the biological death we witness—the deaths of friends, relatives, or even strangers. I mean death intrudes upon the way we experience life. Death is more than simply biological. 

The fear of death belongs in this category. For some, the impending loss of relationships and joys casts a shadow over life, giving birth to apprehension. Death is not simply a factual matter but something that exerts power and influence. Or take disease and illness. Built into the notion of terminal illness is the idea that the sickness borne by a human body will ultimately bring about that body’s death. That body already speaks of its death. Death is making itself felt in advance. 

And so, death is more than a biological event. Even living things can bear the marks of death. 

This is no novel claim. The creation account recorded in the Bible says that in the beginning, there was good. But an intruder appears. In the wake of humanity’s choice to go its own way rather than the way of its Maker, death arrives on the scene. And death is an imposter—not simply a physiological fact at the end of the road, but a destructive and alien presence in God’s good world. 

Understood in this way, death is not something that God intends humans simply submit to. Death is something to protest. This is why Kim Leadbeater’s comment gets at something important: this kind of death should be protested. The marks of death should not be accommodated, because they do not belong to the goodness of what God has made. 

At the heart of the Christian faith is God’s own ultimate protest against the force of death. Christians celebrate that God himself came in the man Jesus to “destroy death.” This is plainly more than biological. Jesus came to free humanity from the entirety of death’s grip. Hence why, when Jesus speaks of “eternal life” he means more than endless biological existence. He means liberation from all the havoc that death brings to bear within God’s world. To the Christian imagination, the power of death must be protested because God protested it first. 

The question is how to protest death. Within the framework of the bill, shortening death or terminal illness is identical with ending life. This is the only form protesting death can take. 

But the Christian faith makes a far more radical claim: God alone overcame death by dying. This is the point: Jesus was the one—the only one—who emerged resurrected victor in the contest with the power of death. In seeing his death and resurrection, an unshakeable hope emerges. Death is not the victor. And this hope stands above our present experience of death—in whatever form—and, at the same time, calls us to join the protest. 

Ethicist Stanley Hauerwas once wrote: “it seems odd that in the name of eliminating suffering, we eliminate the sufferer.” I have deliberately avoided discussing suffering, not least because it would take me too far afield. Yet Hauerwas has put his finger on what I’m getting at. Protesting death—in the big sense—belongs to the Christian faith. Protesting suffering and pain, economic and racial injustice, fractured relationships and broken societies, are all part of this protest. But can eliminating those who live within the shadow of death be part of this protest? I think not. The Christian faith believes there is only one who can overcome death in this way, and that is God himself—who has already done it.

Snippet
Care
Change
Community
Easter
2 min read

A day without water tapped into the best of us

In a crisis, community seeps through our walls.

Imogen is a writer, mum, and priest on a new housing development in the South-West of England. 

On a doorstep a man hands a bottle of water to another man.

Recently on our housing development we experienced a surprising addition to our lives. Due to a pretty major error, a main water pipe was hit by a digger… this resulted in 24 hours of no running water for our entire estate and the local school while the pipe was repaired. 

24 hours is a long time. In our house, water consumption over that time looks something like this: 

  • 1 dishwasher cycle 
  • 1-2 clothes wash cycles 
  • 2 loads of dish washing up 
  • 2 boys in a bath 
  • 2 showers 
  • 10-15 toilet trips 
  • various hand washing, plant watering, child play etc. 
  • 4-6 bowls of boiled pasta/rice 
  • 8-10 cold water drinks 
  • 20+ cups of tea 

Let me tell you, 24 unexpected hours without water was a challenge. But it also got me thinking. 

It got me thinking about privilege. In the UK, access to clean water is not a daily conscious consideration, it is assumed. We assume that we will have water when we turn on the kitchen tap, when we flush the toilet, and when we run a bath. We assume that the water out of the taps will be clean and safe. This is not the case for everyone. Around the world, one in four people do not have access to safe drinking water. Access to water is a universal human right, but in reality access to water shows our privilege. 

It also got me thinking about simplicity. Lent is a time for reflection and often in the Christian tradition it is a time for fasting. In previous years, I have fasted from multiple things: coffee, chocolate, Instagram, and this year Vinted and meat. But I have never fasted from clean, running water. There were many household chores and to-do list items that I simply couldn’t do because we didn’t have water. As with other fasting attempts, I hope that this unexpected space led me to prayer. There was a temporary, reflective simplicity to the absence of water. 

And it got me thinking about community. Crises bring out the worst and best in humanity. Though I could tell you a couple of horror stories, instead let me tell you about the heroes. Tessa, Tom, Marjay, Sarah, Vineeth, Megan, Danny. These heroes went out of their way to buy and distribute water across the development, to monitor and communicate updates from the water company, to offer support with boilers. Several houses had bottled water piled outside their homes for anyone who had run out. We had multiple unexpected water deliveries and neighbours checking in. Our community thrived as we struggled without water. In a crisis, community seeps through our insulated walls and isolated lives. In a crisis, community swells and surges showing that there is indeed good in this world. 

I’m glad we’ve got our water back. But I’m also glad for all the thinking. 

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