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Hospitality
Trust
4 min read

The toy blocks building trust, love and understanding

There’s a beautiful kind of hospitality, and this is it.
A baby plays with wooden toys on a carpert.
Photo by Troy T on Unsplash.

The leftovers were being gathered up, chairs being put back in their place, and happy looking people were dispersing. The last child there, his mum helping to wrap things up in the kitchen, was clinging onto a toy that I, in my imagination, like to think he makes a B-line for every time he spots it. It was an ordinary scene, but there was something undeniably extraordinary underpinning it.  

Although it’s hard to articulate with words (which is admittedly not ideal when the objective of the visit was to write about it), it was immediately clear to me, I had walked right into the aftermath of something truly special. I sat down with Joey and Sarah, two of the Growbaby team, to figure out what it was.   

Growbaby is an international children’s supply charity, providing clothing, equipment and everyday essentials for children up to five years old. Launched in 2003 and rooted in a local Vineyard church in Kingston Upon Thames, there are now multiple Growbaby hubs, one of which just happens to be at the end of my road in Cardiff. What started as a cupboard crammed with donated supplies is now a source of wholistic support for over one hundred families.  

As requests flow into Growbaby HQ, packages are lovingly compiled and then freely given. These packages are put together on a case-by-case basis and can include anything from nappies to pushchairs, clothes to cots, formula to toys. Such support doesn’t tend to be offered from a distance, on the contrary, every Friday morning families (mothers and little ones, primarily) are welcomed to ‘stay and play’, and to subsequently receive the kind of support that can’t be handed over via a package. The aftermath of one of these events was the context for my short but ever so sweet visit.  

The ways in which Joey and Sarah find themselves serving these families is constantly bursting the banks of their expectations. 

The depth of relationship that has naturally built through their time together, with every Friday morning acting as a building block of trust, has meant that the ways in which Joey and Sarah find themselves serving these families is constantly bursting the banks of their expectations. The team have assisted in getting families set up with child credits and social services support, frequently acted as translators, ferried families to A&E, thrown baby showers, booked GP appointments, been birth partners, and even sought out affordable kitchen flooring on Facebook Marketplace.  

Working for the well-being of these families has also involved appealing to the Red Cross to try and re-unite a Sudanese mother with her twelve-year-old son who has been unable to get out of the war-torn country. With families from Syria, Sudan, Iran, Iraq and Somalia (to name but a few), many of whom have found themselves in Cardiff as refugees, Growbaby is far more than a resource centre, it is a beautifully diverse community, the most understanding of support networks, a means of building a home away from home.   

When Russia launched its invasion of Ukraine last year, the Growbaby team’s minds immediately went to the Russian women within their community, those who had brought their families to the UK in search of political asylum. These women had built a home for themselves and their children here, and yet, the news of the Russian offensive was likely to make them feel as vulnerable as the day they arrived. So, the team gave each of these women a card; a small but mighty gesture that let these women know that they were seen, safe, understood and loved in the place that they now called home.   

The team here are also hosting these families’ trauma and their fears, they’re holding space for their joys and their victories. 

I was struck by the fact that whole lives have been enhanced in this room; friendships have been forged, babies have been celebrated, all kinds of needs have been provided for, and women who came to Growbaby for help are now the volunteers who offer it. And these stories are a mere scratching of a powerful surface, the beaming smiles on both Joey and Sarah’s faces tell a thousand more. The impact that these women have had could never be adequately squeezed into an article (again, not ideal when an article is the objective).  

Stepping foot into the room that Friday morning was stepping foot into the most tangible sense hospitality one could imagine. Of course, there are the obvious, and utterly essential ways, that these families are being hosted – through resources, supplies and practical support. But the team here are also hosting these families’ trauma and their fears, they’re holding space for their joys and their victories. Each person that walks through the door of Cardiff’s Growbaby are finding a community who will welcome and host the whole of them, who will weep with them when they’re weeping, and celebrate with them when they’re celebrating.  

It’s a beautiful thing.  

We could be forgiven for thinking that this kind of no-strings-attached hospitality is a myth. If it ever did exist, it’s bygone, and therefore dwells only in the realms of nostalgia. So, counter-cultural is it, that we’d be suspicious if ever we were to stumble upon rumours of it.  

Well, no suspicion necessary here. It truly does exist; you can take my word for it. And I can’t imagine people more in need of it than parents, the guardians and nurturers of little lives.  

If you are in need of the kind of support that Growbaby can offer, you can see if there’s a Grow Baby near you by using its directory. 

Article
Ageing
Care
Change
Death & life
6 min read

A Tolkien poem helps a nurse understand the ravages of dementia

'Not all who wander are lost.'

Helen is a registered nurse and freelance writer, writing for audiences ranging from the general public to practitioners and scientists.

An elderly woman wearing headphone looks up and to the side with a big smile.
Playlist for Life

Not all who wander are lost.

Often written on a care home wall, on an inspirational poster, these words are usually set against a forest background, or compass, for added effect. They have also been used as the title of a conference paper discussing so-called smart trackers for people with dementia, whilst, Not all who wander need be lost is the title of a concise guide to navigating the heartbreaking challenges when a loved one is diagnosed with Alzheimer’s disease or other dementia.

As a care home nurse for more than ten years, I have seen residents wander - not lost but “walking with purpose”, as it is sometimes known in the caring community. “Nobody gets up and walks without a reason,” says Suzanne Mumford, Care UK's Head of Nursing, Care and Dementia; perhaps they are easing pain, or boredom, or looking for something that they can’t describe. I remember residents exploring, enquiring into self-made mysteries solvable only by themselves, examining everything from door handles to another resident’s buttons, even escaping with surprising speed. Walking with them, often in silence, can bring a sense of relief, comfort and companionship.  

What I didn’t know was that this is a quotation from a poem by JRR Tolkien, published in The Fellowship of the Ring seventy years ago. The actual line is - “Not all those who wander are lost”. 

All that is gold does not glitter, 
Not all those who wander are lost; 
The old that is strong does not wither, 
Deep roots are not reached by the frost. 
 
From the ashes a fire shall be woken, 
A light from the shadows shall spring; 
Renewed shall be blade that was broken, 
The crownless again shall be king.” 

We first hear this poem in Chapter Ten of Book One, as Frodo reads it in the postscript of a letter from Gandalf. As I read it, the imagery of being lost, withered, frost-bitten, in darkness, burned and broken, speaks something, in poetic picture language, of the ravages of dementia, the harrowing losses, the valley of tears. It brings to mind residents unaware of familiar objects or surroundings, looking straight through loved ones without a flicker of recognition, losing also language, continence, mobility and the ability to swallow. 

The TV presenter Fiona Philips recalled an agonising decline in her mother as she succumbed to Alzheimer’s, describing how, in the final stages, her mother “spent whole chunks of time just sitting and staring ahead, only able to give out a series of sounds”. Fiona herself now lives with dementia. “'It’s devastated my family and it’s the biggest health and social care challenge we face as a country,” she says. 

I once interviewed retired doctor Jennifer Bute, who lives with dementia. She talked of time travel (perceiving herself as living in a time from her past); disorientation to place and person; frightening hallucinations when old memories are seemingly ‘unlocked’; and ‘emotional unzipping’ when agitation and anxiety increase, often in the late afternoon or evening in something poorly understood as a symptom, known as ‘sundowning’. 

Yet there is something more to this poem – each of the pains has a promise – not all who wander are lost; the old that is strong does not wither; and, most poignantly, deep roots are not touched by the frost. In dementia, it is true that deep roots are untouched, that an enduring aspect of a person’s identity never truly withers, though it may be mostly unseen. Something remains. Oliver Sacks the famous neurologist emphasised that, even in the late stages of Alzheimer’s, the person is still ‘alive inside’ (the inspiring documentary with this title is recommended). In stunning real-life stories, he has shown how music appears to ‘call back the self’, awakening moods, memories and thoughts that had seemingly been lost. He refers to music’s extraordinary ‘neural robustness’ and describes one man, unable to tie his tie or find his way to the stage, yet able to perform a perfect piano solo. In one life-affirming, must-watch, tear-jerking video, gospel music was shown to enliven, calm, focus and engage a man simply known as Henry.    

Watch Henry

Singing can “provide islands of arousal and awareness like nothing else can”, according to Alicia Clair, Professor of Music Therapy. I’ve seen singing bring the person into the present for a passing moment, illuminating a face that seemed far away. One otherwise-silent lady completed the chorus of ‘Daisy, Daisy’ before descending into dementia again. Others have laughed, clapped, danced, embraced and even shed a silent tear during music therapy sessions, when music elicits memory. Doll therapy meanwhile has sometimes restored and revealed a sense of nurture, purpose, care and pride, with residents feeding their new friend before accepting their own food, folding its clothes and taking care of it cradled in their arms. Though it divides opinion, a doll can preserve dignity if it de-escalates agitation or engagement in physical or verbal abuse; a sense of dignity also comes from the person being able momentarily to give care rather than receive it. 

“From the ashes a fire shall be woken, A light from the shadows shall spring; Renewed shall be blade that was broken,” continues Tolkien's poem, and, though not the original intention, these powerful images of renewal and restoration paint a picture of something known as “paradoxical lucidity”, or unexpected cognitive lucidity and communication in some patients with severe dementia, especially around the time of death (though sometimes long before).  

Anecdotes are recorded of “unexpected, spontaneous, meaningful, and relevant communication or connectedness in a patient who is assumed to have permanently lost the capacity for coherent verbal or behavioral interaction due to a progressive and pathophysiologic dementing process”.  Some scientists are seeing them as a paradigm shift in the understanding and perhaps even treatment of dementia. I will never forget when a woman in the late stages of dementia, with little spoken language, was brought back to the nursing home weeks after hospital admission; she had been perilously ill. With bright eyes, she took my arm and, as if the mist had cleared for a moment, spoke warmest words of thanks to me for helping her on the day she collapsed. In another fleeting and irreproducible moment, a lady wished me happy birthday, before continuing her silent walk around the home. Witnessing such an event is ethically and emotionally transformative. 

The concept of remaining ‘alive inside’ even when abilities, language and memory are eroded by dementia is taken to the next level in Christianity, which teaches that life continues even after death itself. The Bible speaks of new life beyond the grave; the fire shall be woken, a light shall spring. And there will be a crown (and the gold will glitter). The Crown of Life is referred to, being bestowed upon "those who persevere under trials." Dementia is one of life’s severest trials; a cross to bear. In the 1912 hymn “The Old Rugged Cross”, another cross is spoken of, being the cross of Christ at his crucifixion. Clinging to that cross, living out a Christian life, the hymnwriter wrote of “exchanging the cross for a crown” at life’s end. After ashes, hope awaits the Christian. 

 

Playlist for Life is a charity encouraging people to create playlists for people living with dementia.