Article
Assisted dying
Care
Comment
Death & life
Suffering
5 min read

Why end of life agony is not a good reason to allow death on demand

Assisted dying and the unintended consequences of compassion.

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

A open hand hold a pill.
Towfiqu Barbhuiya on Unsplash.

Those advocating Assisted Dying really have only one strong argument on their side – the argument from compassion. People who have seen relatives dying in extreme pain and discomfort understandably want to avoid that scenario. Surely the best way is to allow assisted dying as an early way out for such people to avoid the agony that such a death involves?  

Now it’s a powerful argument. To be honest I can’t say what I would feel if I faced such a death, or if I had to watch a loved one go through such an ordeal. All the same, there are good reasons to hold back from legalising assisted dying even in the face of distress at the prospect of enduring or having to watch a painful and agonising death.  

In any legislation, you have to bear in mind unintended consequences. A law may benefit one particular group, but have knock-on effects for another group, or wider social implications that are profoundly harmful. Few laws benefit everyone, so lawmakers have to make difficult decisions balancing the rights and benefits of different groups of people. 

It feels odd to be citing percentages and numbers faced with something so elemental and personal and death and suffering, but it is estimated that around two per cent of us will die in extreme pain and discomfort. Add in the 'safeguards' this bill proposes (a person must be suffering from a terminal disease with fewer than six months to live, capable of making such a decision, with two doctors and a judge to approve it) and the number of people this directly affects becomes really quite small. Much as we all sympathise and feel the force of stories of agonising suffering - and of course, every individual matters - to put it bluntly, is it right to entertain the knock-on effects on other groups in society and to make such a fundamental shift in our moral landscape, for the sake of the small number of us who will face this dreadful prospect? Reading the personal stories of those who have endured extreme pain as they approached death, or those who have to watch over ones do so is heart-rending - yet are they enough on their own to sanction a change to the law? 

Much has been made of the subtle pressure put upon elderly or disabled people to end it all, to stop being a burden on others. I have argued elsewhere on Seen and Unseen that that numerous elderly people will feel a moral obligation to safeguard the family inheritance by choosing an early death rather than spend the family fortune on end of life care, or turning their kids into carers for their elderly parents. Individual choice for those who face end of life pain unintentionally  lands an unenviable and unfair choice on many more vulnerable people in our society. Giles Fraser describes the indirect pressure well: 

“You can say “think of the children” with the tiniest inflection of the voice, make the subtlest of reference to money worries. We communicate with each other, often most powerfully, through almost imperceptible gestures of body language and facial expression. No legal safeguard on earth can detect such subliminal messaging.” 

There is also plenty of testimony that suggests that even with constant pain, life is still worth living. Michelle Anna-Moffatt writes movingly  of her brush with assisted suicide and why she pulled back from it, despite living life in constant pain.  

Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder. 

Despite the safeguards mentioned above, the move towards death on the NHS is bound to lead to a slippery slope – extending the right to die to wider groups with lesser obvious needs. As I wrote in The Times recently, given the grounds on which the case for change is being made – the priority of individual choice – there are no logical grounds for denying the right to die of anyone who chooses that option, regardless of their reasons. If a teenager going through a bout of depression, or a homeless person who cannot see a way out of their situation chooses to end it all, and their choice is absolute, on what grounds could we stop them? Once we have based our ethics on this territory, the slippery slope is not just likely, it is inevitable.  

Then there is the radical shift to our moral landscape. A disabled campaigner argues that asking for someone to help her to die “is no different for me than asking my caregiver to help me on the toilet, or to give me a shower, or a drink, or to help me to eat.” Sorry - but it is different, and we know it. Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder.  

In Canada, many doctors refuse, or don’t have time to administer the fatal dose so companies have sprung up, offering ‘medical professionals’ to come round with the syringe to finish you off. In other words, companies make money out of killing people. It is the commodification of death. When we have got to that point, you know we have wandered from the path somewhere.  

You would have to be stony-hearted indeed not to feel the force of the argument to avoid pain-filled deaths. Yet is a change to benefit such people worth the radical shift of moral value, the knock-on effects on vulnerable people who will come under pressure to die before their time, the move towards death on demand?  

Surely there are better ways to approach this? Doctors can decide to cease treatment to enable a natural death to take its course, or increase painkillers that will may hasten death - that is humane and falls on the right side of the line of treatment as it is done primarily to relieve pain, not to kill. Christian faith does not argue that life is to be preserved at any cost – our belief in martyrdom gives the lie to that. More importantly, a renewed effort to invest in palliative care and improved anaesthetics will surely reduce such deaths in the longer term. These approaches are surely much wiser and less impactful on the large numbers of vulnerable people in our society than the drastic step of legalising killing on the NHS. 

Article
Books
Comment
Language
5 min read

Reading Don Quixote is making me a better person

Learning from Cervantes’ mistakes
Statues of Don Quixote and Sancho Panza point toward a windmill
Don Quixote and Sancho Panza statues, Tandil, Argentina.
Alena Grebneva, CC BY-SA 4.0, via Wikimedia Commons.

I love reading, but I’m not very well read. As is often the case, a curmudgeonly teacher quashed any interest I had in literature in my last few years of school; the increasing creep of technology and social media into my life means my diminishing attention span often makes reading seem a herculean task. It’s a long time to sit still and not doomscroll.  

It’s only in recent years that I’ve rediscovered a love of reading. As part of this, I’m trying to right some literary wrongs.  

Okay, confession time: I’ve never read anything by Jane Austin, the Bronte sisters, George Elliot, Tolstoy, or Proust. I haven’t read The Lord of the Rings or Moby Dick nor To The Lighthouse or Heart of Darkness. I know. Bad, isn’t it? I could go on, too … 

I love reading, but I’m not very well read.  

And so I’m making an effort to read some of the Great Books of the canon. At the moment, I’m reading Don Quixote by Miguel de Cervantes. Crucially, I’m reading Edith Grossman’s 2003 translation of the novel. It is an absolute joy.  

I had heard that it was deeply funny, and a work of genius; neither aspect of the text has been a surprise to me. But there’s something about Grossman’s translation in particular that has caught me off guard: the mistakes.   

Not any mistakes by Grossman. I know nothing whatsoever about Spanish, let alone 17th Century Spanish (another dream crushed by another teacher), but the English text is a marvel. Eminently readable and funny without compromising the occasional complexity of Cervantes’ prose.  

No: I mean the mistakes by Cervantes himself. Early on, a footnote from Grossman points out that Sancho Panza (Don Quixote’s long-suffering squire) refers to his wife using several different names throughout the text. Without Grossman’s footnotes, I’m sure I would have overthought this. What is the author trying to say about Sancho Panza? Is it a comment on his intelligence? Or the character’s view of women, perhaps? Am I just too dense to understand what’s going on here? 

Grossman’s assessment? It’s just “an oversight”. A mistake. And quite a basic one, at that. Later on, Cervantes divides up his chapters, using those brief sentences summarising their contents that are common in this period (“Chapter III, In which …”). But they’re all wrong. Things are said to happen in Chapter X that don’t actually happen until Chapter XV; the chapter summaries are a mess, frankly.  

One of the things that made me reluctant to read Great Books for so long is that they’re intimidating. They are certified Works of Genius and therefore probably a bit much for my little brain to digest. Many of the archetypical Great Books compound this by being incredibly long, too: think Dostoevsky, Tolstoy, Proust, or even more recent candidates like David Foster Wallace’s Infinite Jest or Olga Tokarczuk’s The Books of Jacob. Don Quixote itself runs to nearly 1,000 pages long; it carries a literal and literary heft to it. 

But there it is. Full of mistakes. 

It turns out to have been quite an opportune moment for me to read Don Quixote. I’m in the final stages of preparing for my second book to come out. (It’s an academic Christian theology book, so will probably sell slightly less than Don Quixote but will certainly cost much more to buy). This means it’s been quite a stressful season for me, as I try to catch any lingering mistakes that might have somehow slipped through the myriad rounds of copyediting, or find myself wondering if the book isn’t just so bad that I’m going to be forced to return my PhD, leave academia forever, and by sued by my publisher for besmirching their good name by association.  

This has also been a time of being deeply frustrated with my own humanity. Why aren’t I a better writer? Why can’t I spell properly? Why aren’t I more creative? Why aren’t I better at this? Why am I so … limited

As an academic, imposter syndrome never really goes away. You just learn to cope with it. And reading Don Quixote and seeing these mistakes in the text has helped me reframe who I am, and my own limitations. Here is a text that is human; completely and utterly human. And so, naturally, here is a text with mistakes; text that is imperfect and flawed. And therein lies its part of its charm. It is rough and coarse, and I love it for that. The mistakes in Don Quixote haven’t detracted from my enjoyment of the text, they’ve enhanced it. They’ve underscored the beautiful humanity that is so evident in Cervantes’ work.  

The Christian Bible is at pains to tell me that I am “fearfully and wonderfully made,” as the Psalmist puts it. I can be so quick to forget this when I focus all my attention on my limitations, and flaws, and missteps. This is why I’m so grateful for Grossman’s translation of Don Quixote. Above all else, I’m grateful for its mistakes. Like me, it is utterly human. Like me, this means it is utterly flawed. Like me, that makes it a work of utter beauty. 

Don Quixote is helping me to recognise the inherent beauty of my limitations as a creature. In doing so, it’s helping me to recognise the inherent beauty of the One who created me. It’s helping me to fall more in love with the God who sent His Son to Earth to become human like me, to revel in and live alongside me in my humanity. Warts and all. 

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