Article
Assisted dying
Care
Comment
Death & life
Suffering
5 min read

Why end of life agony is not a good reason to allow death on demand

Assisted dying and the unintended consequences of compassion.

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

A open hand hold a pill.
Towfiqu Barbhuiya on Unsplash.

Those advocating Assisted Dying really have only one strong argument on their side – the argument from compassion. People who have seen relatives dying in extreme pain and discomfort understandably want to avoid that scenario. Surely the best way is to allow assisted dying as an early way out for such people to avoid the agony that such a death involves?  

Now it’s a powerful argument. To be honest I can’t say what I would feel if I faced such a death, or if I had to watch a loved one go through such an ordeal. All the same, there are good reasons to hold back from legalising assisted dying even in the face of distress at the prospect of enduring or having to watch a painful and agonising death.  

In any legislation, you have to bear in mind unintended consequences. A law may benefit one particular group, but have knock-on effects for another group, or wider social implications that are profoundly harmful. Few laws benefit everyone, so lawmakers have to make difficult decisions balancing the rights and benefits of different groups of people. 

It feels odd to be citing percentages and numbers faced with something so elemental and personal and death and suffering, but it is estimated that around two per cent of us will die in extreme pain and discomfort. Add in the 'safeguards' this bill proposes (a person must be suffering from a terminal disease with fewer than six months to live, capable of making such a decision, with two doctors and a judge to approve it) and the number of people this directly affects becomes really quite small. Much as we all sympathise and feel the force of stories of agonising suffering - and of course, every individual matters - to put it bluntly, is it right to entertain the knock-on effects on other groups in society and to make such a fundamental shift in our moral landscape, for the sake of the small number of us who will face this dreadful prospect? Reading the personal stories of those who have endured extreme pain as they approached death, or those who have to watch over ones do so is heart-rending - yet are they enough on their own to sanction a change to the law? 

Much has been made of the subtle pressure put upon elderly or disabled people to end it all, to stop being a burden on others. I have argued elsewhere on Seen and Unseen that that numerous elderly people will feel a moral obligation to safeguard the family inheritance by choosing an early death rather than spend the family fortune on end of life care, or turning their kids into carers for their elderly parents. Individual choice for those who face end of life pain unintentionally  lands an unenviable and unfair choice on many more vulnerable people in our society. Giles Fraser describes the indirect pressure well: 

“You can say “think of the children” with the tiniest inflection of the voice, make the subtlest of reference to money worries. We communicate with each other, often most powerfully, through almost imperceptible gestures of body language and facial expression. No legal safeguard on earth can detect such subliminal messaging.” 

There is also plenty of testimony that suggests that even with constant pain, life is still worth living. Michelle Anna-Moffatt writes movingly  of her brush with assisted suicide and why she pulled back from it, despite living life in constant pain.  

Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder. 

Despite the safeguards mentioned above, the move towards death on the NHS is bound to lead to a slippery slope – extending the right to die to wider groups with lesser obvious needs. As I wrote in The Times recently, given the grounds on which the case for change is being made – the priority of individual choice – there are no logical grounds for denying the right to die of anyone who chooses that option, regardless of their reasons. If a teenager going through a bout of depression, or a homeless person who cannot see a way out of their situation chooses to end it all, and their choice is absolute, on what grounds could we stop them? Once we have based our ethics on this territory, the slippery slope is not just likely, it is inevitable.  

Then there is the radical shift to our moral landscape. A disabled campaigner argues that asking for someone to help her to die “is no different for me than asking my caregiver to help me on the toilet, or to give me a shower, or a drink, or to help me to eat.” Sorry - but it is different, and we know it. Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder.  

In Canada, many doctors refuse, or don’t have time to administer the fatal dose so companies have sprung up, offering ‘medical professionals’ to come round with the syringe to finish you off. In other words, companies make money out of killing people. It is the commodification of death. When we have got to that point, you know we have wandered from the path somewhere.  

You would have to be stony-hearted indeed not to feel the force of the argument to avoid pain-filled deaths. Yet is a change to benefit such people worth the radical shift of moral value, the knock-on effects on vulnerable people who will come under pressure to die before their time, the move towards death on demand?  

Surely there are better ways to approach this? Doctors can decide to cease treatment to enable a natural death to take its course, or increase painkillers that will may hasten death - that is humane and falls on the right side of the line of treatment as it is done primarily to relieve pain, not to kill. Christian faith does not argue that life is to be preserved at any cost – our belief in martyrdom gives the lie to that. More importantly, a renewed effort to invest in palliative care and improved anaesthetics will surely reduce such deaths in the longer term. These approaches are surely much wiser and less impactful on the large numbers of vulnerable people in our society than the drastic step of legalising killing on the NHS. 

Article
Comment
Digital
Film & TV
Masculinity
4 min read

How our social media turns us against ourselves

We treat others differently when our eyes and hearts are forced inwards.
An unhappy father sits next to a scared son in a police interview room.
Stephen Graham and Owen Cooper star in Adolescence.
Netflix.

My wife turned to me this week whilst watching the compelling Netflix drama Adolescence and asked if it was based on a true story. That proves the quality of the acting, script, and storyline. But it also demonstrates the drama’s prophetic nature. Conceived two and a half years ago by Stephen Graham and Jack Thorne, the perversion of Jamie’s underdeveloped brain and developing masculinity by social media forces has come to reflect real-life extreme violence by young men. With the sentencings of murderers Axel Radakubana and Nicholas Prosper in recent weeks, Jamie’s actions resonate deeply. Adolescence isn’t based on a specific true story, but that doesn’t prevent it from being true. 

What about the role of social media in these narratives? Radakubana and Prosper were radicalised by violent content they had accessed online. With social media, extreme content does well, particularly on sites with no filters on pornography and violence like Reddit and X. We are beginning to discover that content algorithms are not neutral, instead siloing us into echo chambers that are deliberately forming us into better consumers of content, advertising, and objects. Social media harvests our data and sells it on- meaning it cultivates us as the product. 

Yet these manipulations cover over the deepest issue. Social media depersonalises us, preventing us from making genuine human connection and perverting our view of anybody but us. The German philosopher Martin Buber differentiated between two different ways for humans to exist in the world. One was I-It; in a person treats everyone and everything they come into contact with as an ‘It’- something to be used or taken advantage of. 

The other was I-Thou, in which humans approach every other person as a unique being, with resources to offer the I which ensures that a mutual, open, present connection ensues. For Buber, the ultimate ‘Thou’ was God, with whom humans can have the deepest and most transformative connection. 

Social media ensures we see life in ‘I/It’ mode by removing genuine contact with others and providing curated, fake, existences that can never be open to genuine connection with others. Love and affection become commodified; likes, follows, reactions. Our presentation of ourselves becomes more extreme, more perfect, more beautified, to keep mining the commodities. Our eyes and our hearts are forced inwards, and we lose any sense of encountering a ‘Thou’ on the way. We just keep encountering the I: our own thoughts, needs, desires, self-radicalised by our own insular minds. 

This can be our contribution to the conversation on the culture our young people, and particularly young men, are growing up in. To live I/Thou lives.

The great St Augustine back in the fourth century developed the idea of ‘original sin.’ All humans are prone to destruction: it’s in our DNA. The evidence for such an idea is found in every human experience, as the destructor and the one destructed. Left unchecked without genuine connections with others to challenge and expand our hearts, an I/It life digs deeper and deeper into these destructive impulses until our humanity is twisted into violent obsessions. 

The I/It life focuses completely on self-glorification through any means, something amplified by social media. What if we don’t get enough likes, follows, reactions? What if we cannot achieve self-glory through the more banal mediums of attraction, attention, popularity?  

Both Radakubana and Prosper said they wanted to be notorious, attempting to find the most extreme channel for their violence as possible to ensure they are never forgotten. They will not be the last. Jamie continues to deny his crime but in episode three of Adolescence he states that he could do whatever he wanted to Katie, the young girl he murdered. The same impulses come through; others as objects to take advantage of in achieving self-satisfaction. 

The good intentions for human connection that some of those early social media sites were set up for has been largely lost. But the good intention can remain in our own resolution to live an I/Thou life. Putting down social media and picking up connections with humans in the real world by seeing the other with curiosity and openness will ensure that we are constantly turning our heart outwards, embracing genuine relationships, and finding space in our heart to think of the other before ourselves. These are the relationships that will make us more human. 

Ultimately, Buber was right that the ultimate ‘Thou’ connection we can make is with God. The Christian story is full of God’s desire to seek out relationship with humanity, to allow us to find a connection with God that surpasses our own human experience and transforms us to be people that slowly grow away from our destructive instincts.  

What might Christian faith have to contribute to the conversation on the culture young men are growing up in? To live I/Thou lives that are curious, open, and seeking truest divine and human connection. Such a life might even touch those who have been ravaged by social media and ignored by other I/It lives. It might even inspire them to compassion and curiosity that look beyond the content that turns them inwards, to turn outwards and find a healthier future. 

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