Article
Assisted dying
Care
Comment
Death & life
Suffering
5 min read

Why end of life agony is not a good reason to allow death on demand

Assisted dying and the unintended consequences of compassion.

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

A open hand hold a pill.
Towfiqu Barbhuiya on Unsplash.

Those advocating Assisted Dying really have only one strong argument on their side – the argument from compassion. People who have seen relatives dying in extreme pain and discomfort understandably want to avoid that scenario. Surely the best way is to allow assisted dying as an early way out for such people to avoid the agony that such a death involves?  

Now it’s a powerful argument. To be honest I can’t say what I would feel if I faced such a death, or if I had to watch a loved one go through such an ordeal. All the same, there are good reasons to hold back from legalising assisted dying even in the face of distress at the prospect of enduring or having to watch a painful and agonising death.  

In any legislation, you have to bear in mind unintended consequences. A law may benefit one particular group, but have knock-on effects for another group, or wider social implications that are profoundly harmful. Few laws benefit everyone, so lawmakers have to make difficult decisions balancing the rights and benefits of different groups of people. 

It feels odd to be citing percentages and numbers faced with something so elemental and personal and death and suffering, but it is estimated that around two per cent of us will die in extreme pain and discomfort. Add in the 'safeguards' this bill proposes (a person must be suffering from a terminal disease with fewer than six months to live, capable of making such a decision, with two doctors and a judge to approve it) and the number of people this directly affects becomes really quite small. Much as we all sympathise and feel the force of stories of agonising suffering - and of course, every individual matters - to put it bluntly, is it right to entertain the knock-on effects on other groups in society and to make such a fundamental shift in our moral landscape, for the sake of the small number of us who will face this dreadful prospect? Reading the personal stories of those who have endured extreme pain as they approached death, or those who have to watch over ones do so is heart-rending - yet are they enough on their own to sanction a change to the law? 

Much has been made of the subtle pressure put upon elderly or disabled people to end it all, to stop being a burden on others. I have argued elsewhere on Seen and Unseen that that numerous elderly people will feel a moral obligation to safeguard the family inheritance by choosing an early death rather than spend the family fortune on end of life care, or turning their kids into carers for their elderly parents. Individual choice for those who face end of life pain unintentionally  lands an unenviable and unfair choice on many more vulnerable people in our society. Giles Fraser describes the indirect pressure well: 

“You can say “think of the children” with the tiniest inflection of the voice, make the subtlest of reference to money worries. We communicate with each other, often most powerfully, through almost imperceptible gestures of body language and facial expression. No legal safeguard on earth can detect such subliminal messaging.” 

There is also plenty of testimony that suggests that even with constant pain, life is still worth living. Michelle Anna-Moffatt writes movingly  of her brush with assisted suicide and why she pulled back from it, despite living life in constant pain.  

Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder. 

Despite the safeguards mentioned above, the move towards death on the NHS is bound to lead to a slippery slope – extending the right to die to wider groups with lesser obvious needs. As I wrote in The Times recently, given the grounds on which the case for change is being made – the priority of individual choice – there are no logical grounds for denying the right to die of anyone who chooses that option, regardless of their reasons. If a teenager going through a bout of depression, or a homeless person who cannot see a way out of their situation chooses to end it all, and their choice is absolute, on what grounds could we stop them? Once we have based our ethics on this territory, the slippery slope is not just likely, it is inevitable.  

Then there is the radical shift to our moral landscape. A disabled campaigner argues that asking for someone to help her to die “is no different for me than asking my caregiver to help me on the toilet, or to give me a shower, or a drink, or to help me to eat.” Sorry - but it is different, and we know it. Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder.  

In Canada, many doctors refuse, or don’t have time to administer the fatal dose so companies have sprung up, offering ‘medical professionals’ to come round with the syringe to finish you off. In other words, companies make money out of killing people. It is the commodification of death. When we have got to that point, you know we have wandered from the path somewhere.  

You would have to be stony-hearted indeed not to feel the force of the argument to avoid pain-filled deaths. Yet is a change to benefit such people worth the radical shift of moral value, the knock-on effects on vulnerable people who will come under pressure to die before their time, the move towards death on demand?  

Surely there are better ways to approach this? Doctors can decide to cease treatment to enable a natural death to take its course, or increase painkillers that will may hasten death - that is humane and falls on the right side of the line of treatment as it is done primarily to relieve pain, not to kill. Christian faith does not argue that life is to be preserved at any cost – our belief in martyrdom gives the lie to that. More importantly, a renewed effort to invest in palliative care and improved anaesthetics will surely reduce such deaths in the longer term. These approaches are surely much wiser and less impactful on the large numbers of vulnerable people in our society than the drastic step of legalising killing on the NHS. 

Article
Comment
War & peace
3 min read

Letter from Lviv

Loss, resilience, and a hope one day to count blessings not missile intercepts.

Iryna Dobrohorska is Christian Aid’s Country Response Director for Ukraine.

A woman stands at the back of an armoured military vehicle, the door of which is open.
Iryna stands by a displayed military vehicle.

Ukraine is only two years older than I am. My personal history is intertwined with Ukraine’s history. Instead of the carefree fun I should be having as a young Ukrainian woman, on Saturday I was reflecting that my last two years have been dominated by war since Russia began its full-scale invasion. Over those 730 days, I have witnessed the best and worst of humanity.  

I was evacuated from Kyiv to the sounds of explosions nearby, fearing I would be raped or murdered by Russian soldiers if they entered the capital. I’ve wept over losing university friends in combat. I’ve despaired at how Ukrainian writers are being deliberately targeted by the Kremlin.  

But I also observed the speed that we Ukrainians built trust and social connections with unknown people. I was proud of the warmth of my hometown, Lviv, which welcomed people from the east of the country - it crushed the myths that Russia was trying to ooze into our national life that we were a divided country that didn’t have the right to exist except as part of Russia. 

Not just in Lviv but all over Ukraine. This month in Odesa I felt the same warmth extended to elderly displaced people when I hosted a visit to our local humanitarian partner Heritage Ukraine by the Archbishop of Canterbury, Justin Welby. He saw for himself how the team, funded by the Scottish faith charity Blythswood, had opened their doors and their hearts to these traumatised strangers facing an uncertain future. 

One of those displaced people, Nadia, told me: “We want to go home, but our home is being shelled. At least here we stay with dignity.”  

The violence inflicted by Russia is not becoming any easier in the prolonged war we now face.

t’s a scene of resilience I’ve grown accustomed to as I’ve crisscrossed the country to play my small part in the astonishing humanitarian effort powered by the UK public’s incredibly generous donations.  

The Iryna I saw in the mirror in 2021 wouldn’t recognise the young woman I see looking back at me today.  

In Kherson, I was recording the stories of illegal detention of civilians to the sound of artillery fire. In Mykolaiv, my window view was an apartment block with the roof blown off and clay-coloured water was the only drinking option.  

I never thought that I would learn the types of weaponry used in modern warfare. Now I know the difference between the motorbike sound of a drone from the missile whistle above my head followed by the clank when it detonates nearby.  

Security awareness is an everyday reality in Ukraine. We often debate during an alert whether choosing to sleep in our own beds instead of going to a shelter may turn out to be our last night. A six-months pregnant teacher friend of mine in Kyiv was killed in her sleep from a drone strike.  

The violence inflicted by Russia is not becoming any easier in the prolonged war we now face. Yet I also sense the paradox that we’ve accepted the war becoming everyday normality and so has the rest of the world. 

Global attention today is not focused only on Ukraine. A host of other crises are taking precedence in the need for a humanitarian response. My biggest fear is that the long-term nature of our crisis reduces global actors to sympathizing observers.  

What I do know is that my generation of young Ukrainians who have lost so much will not allow that to happen. More than ever, I feel the need for a just and resolute peace for Ukraine. With the help of our international friends, the day will come when those who have suffered can go back to rebuild their homes and communities.  

As I move on to engage further in Ukraine’s recovery efforts, I feel privileged to have worked for Christian Aid as part of the humanitarian response. I’m most proud of our role in being a catalyst for local people to help themselves by setting their own community priorities in the kind of support they need, giving them a sense of dignity and self-worth.  

It’s that kind of world that I dream about - where one day I will count my country’s blessings instead of how many drones and missiles were intercepted the night before.