Article
Assisted dying
Care
Comment
Death & life
Suffering
5 min read

Why end of life agony is not a good reason to allow death on demand

Assisted dying and the unintended consequences of compassion.

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

A open hand hold a pill.
Towfiqu Barbhuiya on Unsplash.

Those advocating Assisted Dying really have only one strong argument on their side – the argument from compassion. People who have seen relatives dying in extreme pain and discomfort understandably want to avoid that scenario. Surely the best way is to allow assisted dying as an early way out for such people to avoid the agony that such a death involves?  

Now it’s a powerful argument. To be honest I can’t say what I would feel if I faced such a death, or if I had to watch a loved one go through such an ordeal. All the same, there are good reasons to hold back from legalising assisted dying even in the face of distress at the prospect of enduring or having to watch a painful and agonising death.  

In any legislation, you have to bear in mind unintended consequences. A law may benefit one particular group, but have knock-on effects for another group, or wider social implications that are profoundly harmful. Few laws benefit everyone, so lawmakers have to make difficult decisions balancing the rights and benefits of different groups of people. 

It feels odd to be citing percentages and numbers faced with something so elemental and personal and death and suffering, but it is estimated that around two per cent of us will die in extreme pain and discomfort. Add in the 'safeguards' this bill proposes (a person must be suffering from a terminal disease with fewer than six months to live, capable of making such a decision, with two doctors and a judge to approve it) and the number of people this directly affects becomes really quite small. Much as we all sympathise and feel the force of stories of agonising suffering - and of course, every individual matters - to put it bluntly, is it right to entertain the knock-on effects on other groups in society and to make such a fundamental shift in our moral landscape, for the sake of the small number of us who will face this dreadful prospect? Reading the personal stories of those who have endured extreme pain as they approached death, or those who have to watch over ones do so is heart-rending - yet are they enough on their own to sanction a change to the law? 

Much has been made of the subtle pressure put upon elderly or disabled people to end it all, to stop being a burden on others. I have argued elsewhere on Seen and Unseen that that numerous elderly people will feel a moral obligation to safeguard the family inheritance by choosing an early death rather than spend the family fortune on end of life care, or turning their kids into carers for their elderly parents. Individual choice for those who face end of life pain unintentionally  lands an unenviable and unfair choice on many more vulnerable people in our society. Giles Fraser describes the indirect pressure well: 

“You can say “think of the children” with the tiniest inflection of the voice, make the subtlest of reference to money worries. We communicate with each other, often most powerfully, through almost imperceptible gestures of body language and facial expression. No legal safeguard on earth can detect such subliminal messaging.” 

There is also plenty of testimony that suggests that even with constant pain, life is still worth living. Michelle Anna-Moffatt writes movingly  of her brush with assisted suicide and why she pulled back from it, despite living life in constant pain.  

Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder. 

Despite the safeguards mentioned above, the move towards death on the NHS is bound to lead to a slippery slope – extending the right to die to wider groups with lesser obvious needs. As I wrote in The Times recently, given the grounds on which the case for change is being made – the priority of individual choice – there are no logical grounds for denying the right to die of anyone who chooses that option, regardless of their reasons. If a teenager going through a bout of depression, or a homeless person who cannot see a way out of their situation chooses to end it all, and their choice is absolute, on what grounds could we stop them? Once we have based our ethics on this territory, the slippery slope is not just likely, it is inevitable.  

Then there is the radical shift to our moral landscape. A disabled campaigner argues that asking for someone to help her to die “is no different for me than asking my caregiver to help me on the toilet, or to give me a shower, or a drink, or to help me to eat.” Sorry - but it is different, and we know it. Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder.  

In Canada, many doctors refuse, or don’t have time to administer the fatal dose so companies have sprung up, offering ‘medical professionals’ to come round with the syringe to finish you off. In other words, companies make money out of killing people. It is the commodification of death. When we have got to that point, you know we have wandered from the path somewhere.  

You would have to be stony-hearted indeed not to feel the force of the argument to avoid pain-filled deaths. Yet is a change to benefit such people worth the radical shift of moral value, the knock-on effects on vulnerable people who will come under pressure to die before their time, the move towards death on demand?  

Surely there are better ways to approach this? Doctors can decide to cease treatment to enable a natural death to take its course, or increase painkillers that will may hasten death - that is humane and falls on the right side of the line of treatment as it is done primarily to relieve pain, not to kill. Christian faith does not argue that life is to be preserved at any cost – our belief in martyrdom gives the lie to that. More importantly, a renewed effort to invest in palliative care and improved anaesthetics will surely reduce such deaths in the longer term. These approaches are surely much wiser and less impactful on the large numbers of vulnerable people in our society than the drastic step of legalising killing on the NHS. 

Article
Comment
Community
Hospitality
3 min read

Fairytale housing is building up new problems

Solve one social problem but don't cause another crisis.

Imogen is a writer, mum, and priest on a new housing development in the South-West of England. 

A CGI of a new housing estate viewed from above.
Home Builders Federation.

This time last year Labour promised 1.5 million new homes as part of its election campaign. Now plans are afoot to get these houses well and truly off the ground. New housing is seen as the salvific answer to one of Britain’s greatest social problems. The housing crisis sees rent-avoiding sofa surfers, impossibly high interest rates (except from the bank of mum and dad), and a scarcity of social housing.  

New builds are to the housing crisis what the fairy godmother was to Cinderella. Adequate and safe housing is an essential infrastructure for any society and is a fundamental human right. With an influx of new properties on the market, prices fall, social and affordable housing increases, and people are able to buy before their inheritance arrives. Families on housing waiting lists can live in a home somewhere they know. New housing offers Britons opportunities to find, purchase, and live in their forever, fairytale homes. In theory.  

It could turn out to be a nightmare. We are instead sentencing them to social and spiritual isolation. By focusing on building houses, we fail to meet the essential human need for community, social interaction, and connection. (Wo)man is not, and never will be an island. Building homes is not enough. We must also build communities.  

As we build community we safeguard against the epidemic of loneliness, segregation, and isolation

On new housing developments, organic community creation is challenging. Momentum is required to create communities. The government’s house building target does recognise the need for infrastructures such as doctor’s surgeries and schools. But these are not developers’ priorities. And they are also not enough to embed community into those new developments.  

Can you imagine your fairytale home without the corner shop for an emergency pint of milk? Or without the café for bleary eyed mums and babes? Or without the play park, pub, poo bin, and postbox? Can you imagine your happily ever after will be without a local hall for big birthday celebrations, for scout groups, and for Pilates? What about a church, with bells ringing out the universal soundtrack of Sunday mornings, offering a space to breathe, to pray, and to explore your own spiritual journey?  

We have recently moved onto a new housing development and have seen firsthand the need for community amongst these supposedly dream homes. We are also part of a new church here, writing a different story and weaving community throughout the development. Knowing our neighbours’ names and giving and receiving help are part of embracing social interaction. Our pop-up coffee bike is a place where people can gather and get to know one another around a nearly-expertly brewed beverage. This is the beginning of human connection within a community.  

But the church also offers a place for spiritual connection. New housing without the opportunities for human and spiritual connection leave residents on a cliffhanger. The church offers people another ending to their fairytale. Because the dream-like show-home does not become our own and we are left with the disappointment of reality. The story of Jesus speaks of miracles not magic wands, redemption not Red Riding Hood, the Prince of Peace not Prince Charming. In the void left by developers, Jesus can speak, the Spirit can move, and the church can show up to offer human and spiritual connection and meaningful community.  

Though these new builds may solve the housing crisis, they may also contribute to a crisis of community across our nation. But as we build community we safeguard against the epidemic of loneliness, segregation, and isolation. We imagine spaces into being so that community can flourish. Perhaps then we can look forward together to a different kind of happily ever after.