Assisted dying: in praise of being a burden

It's not a reason to end a life, it's the very possibility of our being human.

Jonathan Rowlands

Jonathan is a theology lecturer and Liverpool FC fan.

A younger hand holds a wrinkled older hand of someone in a bed.

A lot has been said already about assisted dying. In the raging bonfire of public discourse, there has been a lot of heat, but not a lot of light. But amid all the noise surrounding Parliament’s upcoming discussion around assisted dying, a recent conversation hosted by Prospect between Brenda Hale (former President of the Supreme Court) and Rowan Williams (former Archbishop of Canterbury) served as a reminder that we are, despite everything, still capable of having meaningful and fruitful discussion about even the most divisive of issues.

The conversation is earnest and hard-won throughout; both Hale and Williams each push and probe the other for more detail, more nuance, more outworking of implications. And yet their tenor remains respectful. There is no cheap point scoring, no trite comments or easy aphorisms. These are two people working to understand the other, in full recognition of the gravity of the topic.

One particular moment, however, was frankly spine-chilling. As the conversation progresses, Hale is asked the following: “How do you deal with the pressure questions – pressure from family or financial pressures? What safeguards can you build in?” Her response – in full, for context – is as follows:

“Well, you can build in the safeguards that the decision must be made without undue influence, coercion, duress or fraud. But in the end, it’s a matter of evidence, isn’t it? One of the things I find most difficult is that I don’t think it’s necessarily irrational for somebody to take into account the suffering their suffering is causing to the people dear to them, or the burden that looking after them is placing upon the whole community.

I wouldn’t call that “undue influence”, but it’s one of the questions I find most difficult about all of this. You know, obviously there’s duress, there’s financial abuse, there are all of those sorts of things that have got to be checked against, and there ought to be objective evidence of absence of that. But when it comes down to somebody thinking, “I don’t want to be a cause of others suffering,” that seems to me to be a reasonable thing for somebody to take into account.”

The idea that my dependency or burdensomeness might factor into decisions about whether I continue to live, seems to me to be contrary to the very notion of the Christian message. Let me explain why.

We are made to be a burden, then. To depend on others, to be burdensome to them, is to be human.

We are, whether we like it or not, now rapidly approaching Christmas. At this time of year, Christians celebrate the birth of Jesus; the divine Son of God made flesh and born of a virgin. As the divine Son of God, Jesus lived the perfect human life of joy, grace, and faithfulness; the kind of life I can only aspire to.

Because of this, as a Christian, I look to Jesus’ perfect life of faithfulness as a model for what a truly healthy human life looks like. And I am often surprised by what I find there. For example, it turns out true human flourishing does not involve getting married, having sex, or having children; Jesus’ perfect life of flourishing featured none of these things.

But crucially, Jesus’ perfect life often involved depending upon others; upon being a burden to those around him. As an itinerant travelling teacher, Jesus relied on the financial support of his followers to make his ministry possible. He relied on being made and given food to eat, and a roof to sleep under. He was far from self-sufficient. Rather, he gladly made himself a burden to others in service of his ministry.

But more than this, we often overlook the radical significance of the Christian claim that, at Christmas, we celebrate God’s becoming a baby. For the first years of his perfect life, Jesus was entirely – entirely – dependent upon his parents for all his needs. Here we see God, in the person of Jesus, depending upon Mary and Joseph to feed him, to clothe him, to cuddle him, to clean up his sick and his excrement. This is what human flourishing looks like.

This is mirrored at his glorious death, too. Prior to his arrest, Jesus asked his friends for support; to stay awake while he prays for comfort. The Gospels go on to tell us that, having been mercilessly tortured, beaten, stripped, and interrogated, Jesus had his cross carried by a man named Simon of Cyrene. After his death, having no tomb of his own, Jesus was buried in the family tomb of his follower Joseph of Arimathea. And this, too, is what human flourishing looks like.

Throughout his entire life Jesus lived the perfect life of human joy and faithfulness. And this often involved depending upon others and being a burden to them in every way conceivable. We are made to be a burden, then. To depend on others, to be burdensome to them, is to be human.

To think, then, with Baroness Hale, that my dependency and burdensomeness upon others might somehow serve to underwrite a decision to end my life, is fraught with difficulty for me as a Christian. I simply cannot reconcile her words with the life I see Jesus living in the Bible: a life of joyful, difficult burdensomeness.

There may be many other reasons why people decide they want their lives to end. But a sense of burdening others ought not to be one of them. Being a burden is not a reason to bring one’s life to an end, because it is the very possibility of our being human in the first place. To need others, to place ourselves into their care, does not make us less human, it makes us more human. And therein lies its glory.

The Wild God we can't coerce

Weird and increasingly encountered beyond the wilderness.

Belle Tindall

Belle is the staff writer at Seen & Unseen.

A pianist raises his arms while sitting at a grand piano amid recording equipment.

Nick Cave recording Wild God.

nickcave.com

Christianity is a wild thing.

I say this, even while only half-understanding what I’m saying. It’s something that I’m learning. Or perhaps it’s more appropriate to say that it’s something that I’m unlearning. Because, admittedly, I’m far more familiar with a somewhat domesticated view of my own faith tradition. The kind that allows me to fashion fences out of my expectations; to put parameters around God’s presence and boundaries upon his behaviour. Both of which are a farce, of course - but a comforting farce, none the less.

You see, there is nothing ‘comfortable’ about a God who cannot be wholly predicted or comprehended, let alone controlled or contained. A wild God is always going to be a challenge to a culture that has enthroned comfort. We’re too easily spooked and too unused to the sensation of being cosmically baffled.

But, affronting as it may be, I am trying my best to sit in the knowledge that the God I believe in is a wild God. And I’m finding this wildness increasingly hard to ignore. Perhaps it’s all the Rowan Williams I’ve been reading, or my newfound interest in the Romantics (as in, the eighteenth and nineteenth century poets, not the 1970’s American rock band). Or maybe it has more to do with Nick Cave and the Bad Seeds’ new album, which I have been listening to relentlessly over the last week.

In this musical offering, Nick Cave introduces us to his ‘Wild God’, who I think is my God too. It’s just that ‘wild’ has never been the first adjective I reach for when describing him.

Until now, I suppose.

Let me clarify what I mean by wild, because what I’m not saying is that God is inherently chaotic, unruly, reckless or irrational. Wild Gods, as we know them from the myths and legends, act on tempestuous whims, and are more than a little havoc prone. They are perilous, largely because one can never truly know where they stand with them. That couldn’t be further from what I mean. The entire Old Testament - as complex, nuanced and masterful as it is - can be understood as a collection of ways in which the God at its centre is saying – this is who I am, this is what I desire, this is what I’m going to do, this is where you stand with me. If you were to read the Bible, it would become pretty clear pretty quickly: God is insistent that those who seek to know him will never have to second guess him. God’s wildness does not mean that we cannot know the essence of who he is or how he feels towards us. I like to think that we can endeavour to know him accurately, but never exhaustively.

Rather, what I’m trying to get my head and heart around is the knowledge that God, and therefore Christianity, cannot be wholly domesticated. Despite my best efforts, it cannot be made into an entirely comfortable and cozy thing. To make it so, one would have to dilute it, shrink it, bleed any truth out of it. In his poem - Sometimes a Wild God -Tom Hirons writes,

Oh, limitless space.
Oh, eternal mystery.
Oh, endless cycles of death and birth.
Oh, miracle of life.
Oh, the wondrous dance of it all’.

There’s an innate weirdness to the Christian worldview, a pure wildness at the heart of it. It’s brimming with mystery and mysticism. As Hirons hints, it’s bigger and more consequential than our comfort-zones would like it to be. And, what’s more, much of it is communicated through the natural world. Biblical narratives and poetry are endlessly pointing us toward the places and spaces that are outside human cultivation – the stars, the mountains, the oceans – the things that pre-date and will outlive us.

Christianity is wild in that there’s an alluring organic-ness about it. Its truth sits beyond human manipulation and coercion.

For millennia, whole lives have been given over to this truly wild and, I believe, wildly true story. Can I give you just two recent examples? Two people who have (utterly unexpectedly) adventured their way into this wild and wonderful way of seeing the world? Two people I’ve had the joy of learning from over the past year?

First up is Paul Kingsnorth.

Paul is an award-winning poet and a best-selling author of both fiction (including the Buckmaster Trilogy: Wake, Beast and Alexandria) and non-fiction (including Real England, Confessions of a Recovering Environmentalist and his ongoing Sub-Stack series: Abbey of Misrule). He is, and always has been, an advocate for treating the natural world as if it were far more than a machine to be used or a resource to be obtained. Such behaviour is, according to Paul, nothing short of sacrilegious. As well as an enchantment with what he can see and sense in the natural world, he also has a long-standing fascination with all things mystical.

Buddhism, Witchcraft – you name it, he’s tried it.

He told Justin Brierley and I the story of how he his adventures have led him to arrive at the wildest possible destination: Christianity.  

And then there’s the renowned mythologist, Dr Martin Shaw, who decided to do a 101-day wild vigil in Dartmoor. Despite not being a Christian, on the very last night, he prayed. While praying, he looked up and saw something utterly unexplainable, something ‘properly Old Testament’. And that was it – after a night of dancing, several other ‘odd’ experiences, and eighteen months of deep pondering – he was able to say, ‘I went into the forest expected to be wedded to the wild and I came out wedded to Christ’.

Thinking about it, it’s probably no accident that ‘Christianity’ began on the margins, and from there, worked its way into the cities. There was a time where the prediction of Jesus’ arrival was being yelled out into the countryside, so loudly that people were emptying the surrounding towns to come and hear more. A time when rumours of redemption were being whispered in the rural hills. A time when its chief messenger was an inexplicably weird man named John the Baptist; who shunned his prestigious priestly heritage to live in the wilds, to dress in camel skins, to eat honey and insects and insist upon the imminent coming of the long-awaited Messiah. This Messiah, by the way, who would be born where animals are kept, sleep on mountains, retreat into deserts, walk on water, speak to storms, and break people (including himself) out of stone graves.

You see what I mean, Christianity is a wild story to believe and live in accordance with.

It’s the story that drove the ‘Desert Mothers and Fathers’ of the Third Century AD to reject civilisation and all its comforts, in order to seek God in the silence and solitude of the desert. It’s the story that is still inspiring people to live in caves on Mount Athos, secluded islands just off the coast of Wales and forests in the heart of Ireland. An uncontainable message has, since its inception, been lived out in uncontainable places.

Honestly, you want weird? Christianity can darn-well give you weird.

Don’t be fooled by over-familiarity or be swayed by that pesky left-side of your brain, the part that wants to convince you that you know all that there is to know. Christianity is a story that I, myself, had forgotten was quite this wild.