Assisted dying: in praise of being a burden

It's not a reason to end a life, it's the very possibility of our being human.

Jonathan Rowlands

Jonathan is a theology lecturer and Liverpool FC fan.

A younger hand holds a wrinkled older hand of someone in a bed.

A lot has been said already about assisted dying. In the raging bonfire of public discourse, there has been a lot of heat, but not a lot of light. But amid all the noise surrounding Parliament’s upcoming discussion around assisted dying, a recent conversation hosted by Prospect between Brenda Hale (former President of the Supreme Court) and Rowan Williams (former Archbishop of Canterbury) served as a reminder that we are, despite everything, still capable of having meaningful and fruitful discussion about even the most divisive of issues.

The conversation is earnest and hard-won throughout; both Hale and Williams each push and probe the other for more detail, more nuance, more outworking of implications. And yet their tenor remains respectful. There is no cheap point scoring, no trite comments or easy aphorisms. These are two people working to understand the other, in full recognition of the gravity of the topic.

One particular moment, however, was frankly spine-chilling. As the conversation progresses, Hale is asked the following: “How do you deal with the pressure questions – pressure from family or financial pressures? What safeguards can you build in?” Her response – in full, for context – is as follows:

“Well, you can build in the safeguards that the decision must be made without undue influence, coercion, duress or fraud. But in the end, it’s a matter of evidence, isn’t it? One of the things I find most difficult is that I don’t think it’s necessarily irrational for somebody to take into account the suffering their suffering is causing to the people dear to them, or the burden that looking after them is placing upon the whole community.

I wouldn’t call that “undue influence”, but it’s one of the questions I find most difficult about all of this. You know, obviously there’s duress, there’s financial abuse, there are all of those sorts of things that have got to be checked against, and there ought to be objective evidence of absence of that. But when it comes down to somebody thinking, “I don’t want to be a cause of others suffering,” that seems to me to be a reasonable thing for somebody to take into account.”

The idea that my dependency or burdensomeness might factor into decisions about whether I continue to live, seems to me to be contrary to the very notion of the Christian message. Let me explain why.

We are made to be a burden, then. To depend on others, to be burdensome to them, is to be human.

We are, whether we like it or not, now rapidly approaching Christmas. At this time of year, Christians celebrate the birth of Jesus; the divine Son of God made flesh and born of a virgin. As the divine Son of God, Jesus lived the perfect human life of joy, grace, and faithfulness; the kind of life I can only aspire to.

Because of this, as a Christian, I look to Jesus’ perfect life of faithfulness as a model for what a truly healthy human life looks like. And I am often surprised by what I find there. For example, it turns out true human flourishing does not involve getting married, having sex, or having children; Jesus’ perfect life of flourishing featured none of these things.

But crucially, Jesus’ perfect life often involved depending upon others; upon being a burden to those around him. As an itinerant travelling teacher, Jesus relied on the financial support of his followers to make his ministry possible. He relied on being made and given food to eat, and a roof to sleep under. He was far from self-sufficient. Rather, he gladly made himself a burden to others in service of his ministry.

But more than this, we often overlook the radical significance of the Christian claim that, at Christmas, we celebrate God’s becoming a baby. For the first years of his perfect life, Jesus was entirely – entirely – dependent upon his parents for all his needs. Here we see God, in the person of Jesus, depending upon Mary and Joseph to feed him, to clothe him, to cuddle him, to clean up his sick and his excrement. This is what human flourishing looks like.

This is mirrored at his glorious death, too. Prior to his arrest, Jesus asked his friends for support; to stay awake while he prays for comfort. The Gospels go on to tell us that, having been mercilessly tortured, beaten, stripped, and interrogated, Jesus had his cross carried by a man named Simon of Cyrene. After his death, having no tomb of his own, Jesus was buried in the family tomb of his follower Joseph of Arimathea. And this, too, is what human flourishing looks like.

Throughout his entire life Jesus lived the perfect life of human joy and faithfulness. And this often involved depending upon others and being a burden to them in every way conceivable. We are made to be a burden, then. To depend on others, to be burdensome to them, is to be human.

To think, then, with Baroness Hale, that my dependency and burdensomeness upon others might somehow serve to underwrite a decision to end my life, is fraught with difficulty for me as a Christian. I simply cannot reconcile her words with the life I see Jesus living in the Bible: a life of joyful, difficult burdensomeness.

There may be many other reasons why people decide they want their lives to end. But a sense of burdening others ought not to be one of them. Being a burden is not a reason to bring one’s life to an end, because it is the very possibility of our being human in the first place. To need others, to place ourselves into their care, does not make us less human, it makes us more human. And therein lies its glory.

Article

Creed

Sin

11 April 2024

4 min read

No mercy on the Megabus

Why is sin such a sickly, sticky thing in the human heart?

Jennifer Lander

Jenny is training to be a priest in the Church of England. She holds a PhD in law and previously researched human rights issues in extractive industries.

An upset man holds his hands on his head as he misses a bus.

Nick Jones/Midjourney.ai

“I’m begging you, I’m begging you,” pleaded the passenger. His two large suitcases lying around him, the Nigerian man knelt on the pavement outside the Megabus station. The bus driver stood surly-faced, arms crossed. The passenger’s jacket was ripped where the driver had shoved him off the bus. The passenger had one too many bags; he had not read the Terms and Conditions on his ticket.

The man groaned – “I must get to Heathrow, I have a flight to catch! I’m willing to do anything – to pay for an extra ticket, to pay the extra bag fee, I have money, see?” He showed the driver his wallet pleadingly, demonstrating his possession of several bank cards.

A few concerned passengers stepped off the bus. “We don’t have a bag in the hold; we’re happy for this man to have our space.” Another person said, “I booked a ticket but my friend didn’t come – there’s a whole seat’s worth of luggage space available in the hold.” Yet the bus driver would not budge. Even though Megabus has an excess baggage policy, it was down to the driver’s discretion. The driver alone had the power of life and death, to say “yay” or “nay” – to restore a man’s dignity or completely ruin it, along with his jacket.

As the minutes ticked on, other passengers began to get irate with the Nigerian man – “just buzz off mate, you’re making us late!” “You should have read the rules!” “You’re making the bairns on the bus cry!” Stony faces pressed against the window as the man knelt on the pavement. Even those who had tried to help him left him in the harsh hands of the bus driver and his colleagues, tiny kings in a kangaroo court. For the bus driver, there was no backing down – he was pacing, sweating and red-faced, repeating over and over again to himself his side of the story. And in the end, we left the Nigerian passenger in the heartless hands of bus bureaucracy, wiping our hands of the injury done to him – “we tried.”

How mucky and murky the human heart can be.

The whole experience on the Megabus that day left me feeling sick. We all like to think of ourselves as decent folks, as long as we do our “bit”. But on that bus I realized the difficulty: what is “my bit”? Who decides what is “enough”? How quickly a petty issue of baggage can descend into a power play. How quickly do ordinary nice people become a mob when they are outraged or inconvenienced. How mucky and murky the human heart can be.

The only word that feels strong enough to me to describe this condition is “sin”. This word may sound like a relic of a bygone Britain, but I think it’s as relevant as ever. It’s a serious word, loaded with a sense that the things we do mean more than we know. Sin suggests that I am accountable for how I treat people – not just to my own perception but some higher standard that safeguards the dignity of all human beings. Christians believe that it is God who safeguards our humanity, who sets the standard for how we should and should not treat others. We are accountable “vertically” – to God – as well as “horizontally” to each other.

It seems to me that “sin” is not a laundry-list of rules but more like a tangled knot of slippery threads – I can’t see where it begins and where it ends, in my own heart or in the world at large. The Christian Eastern Orthodox tradition often likens sin to sickness or a dis-ease of the soul; it infects our reasoning, our emotions and our actions. And that’s why the hurt and pain we cause each other is so “sticky” – no one is left untouched by the effects of the damage we cause each other.

It was quite clear to me that there were some “sins of deliberate fault” on the Megabus that day – the bus driver’s behaviour was patently unfair and verging on abuse. But I would say sin also flourished in the self-defending logic of the passengers who just wanted to stay in their lane, and for the Nigerian chap to stay in his. Don’t bother me, with your problems. I look after me, you look after you. There were sins of ignorance too – I felt this sick sense in my stomach as the bus pulled out of the station that there was more I could have done, but I didn’t quite know what. All I know is that every person needed mercy on that Megabus, whether we knew it or not. Ironically, the Nigerian man was the most innocent of all.