Article
Awe and wonder
Change
Community
Time
7 min read

The bells that awaken awe in the new year

We need new rhythms if we are to navigate the world as it is today.

Elizabeth Wainwright is a writer, coach and walking guide. She's a former district councillor and has a background in international development.

Restored church bells lined up in a cathedral, as crowds mill around them.
Notre Dame bells.
Notre Dame de Paris.

The jackdaws flap and caw as they come in to roost. The sun sets behind the bare trees; its fiery farewell doing nothing to warm the cold air. The village church bell rings out 4pm. My young daughter stops what she is doing, says “ding dong”, then carries on. That’s what we all used to do: stop what we were doing and be called to something else, the bell’s rhythmic tolls cutting through our individuality and unifying us for a time. Perhaps we would go to church, or stop to pray, or remember the dead for whom the bell tolled. I have been thinking about that often-quoted poem by John Donne:  

No man is an island, 

Entire of itself. 

Each is a piece of the continent, 

A part of the main. 

If a clod be washed away by the sea, 

Europe is the less. 

As well as if a promontory were. 

As well as if a manor of thine own 

Or of thine friend's were. 

Each man's death diminishes me, 

For I am involved in mankind. 

Therefore, send not to know 

For whom the bell tolls, 

It tolls for thee. 

Now, church bells ring out the hours of the clock, and occasionally still ring out mourning and celebration too. They seem also to ring out a quaintness, a nostalgia, a past that is slipping away. I have been sitting by the old stone church listening to them, wondering what else they might be tolling for, what else might be slipping away. In Donne’s poem, he says the bell tolls not for them, but for us, because we are all connected. Each person’s death diminishes the whole from which they were a part, and so diminishes me. The bells used to remind us of that whole.  

The bell could be melancholy but I notice how it tilts me toward hope, even in this deep winter stillness; an audible distillation of light ringing through the dimness. I think it is the hope of mankind which Donne tells me I am involved in. These old bells seem to ring defiantly despite the many other chimes that ring just for me: digital pings, messages, notifications, news, an algorithm that tried to force me down my own lone path. But echoes of communal life persist. Now, I hear the bell say:  

Ding: listen 

Dong: lift your head 

Ding: look  

Dong: life is a whole  

Ding: face each other  

Dong: this is the only way we will meet the future 

A few days later, my daughter and I step into the village hall. We surface together from evening darkness into the light of song: it is the carol concert, we are late, and the music is about to start. The singers are decked in lights and earthy greens and rusty reds. They are a group from Exmoor who conserve and share traditional and local songs, as well as singing the songs we all recognise. My daughter’s cheeks are pink, her eyes blaze with delight. In a few days, the solstice will be here, and the earth will pause in its movement before turning back to face the light. Here in this old hall, the songs seem to reach towards that coming light: we are here, we are together, and we choose to lift our individual voices as one chorus of community.  

I think about the people in this hall gathering to mark other things — memories, celebrations, vision, care — and I wonder about the more figurative bells that draw them together to do so. What are the bells that keep us together now, when so much encourages us into isolation and individualism? — The bells that remind us we can never be the islands that we are so often encouraged to be: independent, tough, believing consumption will heal us, packaged into a personal brand; everything encouraging us to be seen, not known.  

I try to listen for these bells, to hear how to inhabit time reverently and with reciprocity, not with urgency and isolation. In many places the actual church bells are silent, but I think we still need the bells of communality: bells that call us into share rhythms, reminding us to pause in our individual movement, reminding us to gather, to mourn, to remember things and find the light and the hope in each other, just as the tilting of the earth pauses at the solstice before it turns to face the light.  

Nature’s cycle is one way of doing this: tuning in to the turn of the year that makes new life possible. The solstice and equinox; wassailing in January to bless the apple trees; noticing when migrating birds appear or leave; sharing planting and harvesting days. Liturgical calendars are a way that Christian communities kept and still keep time: advent, Christmas, lent, Easter. These rhythms become familiar, reminding us that time isn’t linear, much as the myth of infinite progress would have us believe otherwise. Time is cyclical, expanding and contracting; old events revisited regularly in new ways.  

Knowing that it is not just me looking at these stars, but people across the world and through time, brings me into a peace, a reverence that can be hard to come by.

And there are other things that can bring us together too: causes, hobbies, interests, protests. These can take on the role of bells perhaps, drawing us together around shared purpose – but shared purpose and shared existence, shared being, are not always the same thing.  

Perhaps we need new rhythms if we are to meet the world as it is today. Imagine if a bell tolled — literally or figuratively — not just for human funerals, but whenever a species went extinct, or a tree cut down. Imagine if neighbourhoods gathered to light candles and share stories and soul and care each week, offering a space that church used to provide to lots of people through the ages. And what if we resurrected old traditions for a new age: ‘beating the bounds’ as a way to mark not just the boundaries of land but the places that need restoring and regenerating now; harvest festivals not just as something for school children and rural churches, but as a way we can better connect with food and farming. What if we looked at old wisdom; the way the church calendar aligned with the farming calendar, asking us to remember that food and the soil it comes from are sacred things.  

Our friends were near the beach in Costa Rica. They noticed that at the end of the day, everyone stopped what they were doing — fishing, fixing, working — and watched the sunset. This moment of beauty seemed to bring people together into synchronicity. In his book Awe: The Transformative Power of Everyday Wonder, scientist Dacher Keltner shows us how experiencing awe can, amongst other things, help us to experience humanity, see patterns in life, and better collaborate with each other. He says: “The last pillar of the default self—striving for competitive advantage, registered in a stinginess toward giving away possessions and time—crumbles during awe. Awe awakens the better angels of our nature.” Perhaps putting ourselves in the way of awe might help us hear the bells — old and new — that ring in this current age, and that might bring us together and love each other well. If love only exists in relationship, and love is what helps us to see and to care, then protecting and restoring relationship seems to be vital work for our time.   

Now, the winter sky is dark and the stars shine brightly above. They shine with a clarity that matches the peal of the bells in the village. They call me beyond myself into something unified, something older, something necessary. They call me into wonder and awe. Knowing that it is not just me looking at these stars, but people across the world and through time, brings me into a peace, a reverence that can be hard to come by. I step back into the house but my mind faces outwards into the world.  

Church bells used to call people together to worship, bringing a sense of shared time and purpose. They still ring, but they can be hard to hear against the noise of individual time. I think they are calling us together again now. And if we can’t hear them, perhaps we need to set new bells ringing. May the bells that ring this New Year’s Day inspire us to do so. 

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Article
Ageing
Care
Change
Death & life
6 min read

A Tolkien poem helps a nurse understand the ravages of dementia

'Not all who wander are lost.'

Helen is a registered nurse and freelance writer, writing for audiences ranging from the general public to practitioners and scientists.

An elderly woman wearing headphone looks up and to the side with a big smile.
Playlist for Life

Not all who wander are lost.

Often written on a care home wall, on an inspirational poster, these words are usually set against a forest background, or compass, for added effect. They have also been used as the title of a conference paper discussing so-called smart trackers for people with dementia, whilst, Not all who wander need be lost is the title of a concise guide to navigating the heartbreaking challenges when a loved one is diagnosed with Alzheimer’s disease or other dementia.

As a care home nurse for more than ten years, I have seen residents wander - not lost but “walking with purpose”, as it is sometimes known in the caring community. “Nobody gets up and walks without a reason,” says Suzanne Mumford, Care UK's Head of Nursing, Care and Dementia; perhaps they are easing pain, or boredom, or looking for something that they can’t describe. I remember residents exploring, enquiring into self-made mysteries solvable only by themselves, examining everything from door handles to another resident’s buttons, even escaping with surprising speed. Walking with them, often in silence, can bring a sense of relief, comfort and companionship.  

What I didn’t know was that this is a quotation from a poem by JRR Tolkien, published in The Fellowship of the Ring seventy years ago. The actual line is - “Not all those who wander are lost”. 

All that is gold does not glitter, 
Not all those who wander are lost; 
The old that is strong does not wither, 
Deep roots are not reached by the frost. 
 
From the ashes a fire shall be woken, 
A light from the shadows shall spring; 
Renewed shall be blade that was broken, 
The crownless again shall be king.” 

We first hear this poem in Chapter Ten of Book One, as Frodo reads it in the postscript of a letter from Gandalf. As I read it, the imagery of being lost, withered, frost-bitten, in darkness, burned and broken, speaks something, in poetic picture language, of the ravages of dementia, the harrowing losses, the valley of tears. It brings to mind residents unaware of familiar objects or surroundings, looking straight through loved ones without a flicker of recognition, losing also language, continence, mobility and the ability to swallow. 

The TV presenter Fiona Philips recalled an agonising decline in her mother as she succumbed to Alzheimer’s, describing how, in the final stages, her mother “spent whole chunks of time just sitting and staring ahead, only able to give out a series of sounds”. Fiona herself now lives with dementia. “'It’s devastated my family and it’s the biggest health and social care challenge we face as a country,” she says. 

I once interviewed retired doctor Jennifer Bute, who lives with dementia. She talked of time travel (perceiving herself as living in a time from her past); disorientation to place and person; frightening hallucinations when old memories are seemingly ‘unlocked’; and ‘emotional unzipping’ when agitation and anxiety increase, often in the late afternoon or evening in something poorly understood as a symptom, known as ‘sundowning’. 

Yet there is something more to this poem – each of the pains has a promise – not all who wander are lost; the old that is strong does not wither; and, most poignantly, deep roots are not touched by the frost. In dementia, it is true that deep roots are untouched, that an enduring aspect of a person’s identity never truly withers, though it may be mostly unseen. Something remains. Oliver Sacks the famous neurologist emphasised that, even in the late stages of Alzheimer’s, the person is still ‘alive inside’ (the inspiring documentary with this title is recommended). In stunning real-life stories, he has shown how music appears to ‘call back the self’, awakening moods, memories and thoughts that had seemingly been lost. He refers to music’s extraordinary ‘neural robustness’ and describes one man, unable to tie his tie or find his way to the stage, yet able to perform a perfect piano solo. In one life-affirming, must-watch, tear-jerking video, gospel music was shown to enliven, calm, focus and engage a man simply known as Henry.    

Watch Henry

Singing can “provide islands of arousal and awareness like nothing else can”, according to Alicia Clair, Professor of Music Therapy. I’ve seen singing bring the person into the present for a passing moment, illuminating a face that seemed far away. One otherwise-silent lady completed the chorus of ‘Daisy, Daisy’ before descending into dementia again. Others have laughed, clapped, danced, embraced and even shed a silent tear during music therapy sessions, when music elicits memory. Doll therapy meanwhile has sometimes restored and revealed a sense of nurture, purpose, care and pride, with residents feeding their new friend before accepting their own food, folding its clothes and taking care of it cradled in their arms. Though it divides opinion, a doll can preserve dignity if it de-escalates agitation or engagement in physical or verbal abuse; a sense of dignity also comes from the person being able momentarily to give care rather than receive it. 

“From the ashes a fire shall be woken, A light from the shadows shall spring; Renewed shall be blade that was broken,” continues Tolkien's poem, and, though not the original intention, these powerful images of renewal and restoration paint a picture of something known as “paradoxical lucidity”, or unexpected cognitive lucidity and communication in some patients with severe dementia, especially around the time of death (though sometimes long before).  

Anecdotes are recorded of “unexpected, spontaneous, meaningful, and relevant communication or connectedness in a patient who is assumed to have permanently lost the capacity for coherent verbal or behavioral interaction due to a progressive and pathophysiologic dementing process”.  Some scientists are seeing them as a paradigm shift in the understanding and perhaps even treatment of dementia. I will never forget when a woman in the late stages of dementia, with little spoken language, was brought back to the nursing home weeks after hospital admission; she had been perilously ill. With bright eyes, she took my arm and, as if the mist had cleared for a moment, spoke warmest words of thanks to me for helping her on the day she collapsed. In another fleeting and irreproducible moment, a lady wished me happy birthday, before continuing her silent walk around the home. Witnessing such an event is ethically and emotionally transformative. 

The concept of remaining ‘alive inside’ even when abilities, language and memory are eroded by dementia is taken to the next level in Christianity, which teaches that life continues even after death itself. The Bible speaks of new life beyond the grave; the fire shall be woken, a light shall spring. And there will be a crown (and the gold will glitter). The Crown of Life is referred to, being bestowed upon "those who persevere under trials." Dementia is one of life’s severest trials; a cross to bear. In the 1912 hymn “The Old Rugged Cross”, another cross is spoken of, being the cross of Christ at his crucifixion. Clinging to that cross, living out a Christian life, the hymnwriter wrote of “exchanging the cross for a crown” at life’s end. After ashes, hope awaits the Christian. 

 

Playlist for Life is a charity encouraging people to create playlists for people living with dementia.