Article
Assisted dying
Care
Comment
Easter
5 min read

I know who will be most affected by legalising assisted dying

Contemplating lent revives hard memories and raises fresh fears.

Ryan is an ordained Priest in the Church of England, currently serving in south London. 

A close up of a forehead bearing an ash cross marked on it.
Ahna Ziegler on Unsplash.

“What’s that - a face tattoo?” 

These were the words of one person as I walked past them on the streets on a recent Wednesday, with the ashes of last year’s burnt palm-branches placed across my forehead in the shape of the cross.  

The cross has been a symbol of hope for over two millennia; that even in the most painful of circumstances, darkness does not have the final say, including in death.  

As a society, we don’t really talk about death that much. Margot Robbie’s Barbie was the quintessential party-pooper when she pondered: 

 “do you guys ever think about dying?”. 

It’s no fun to dwell on death and dying, and for many of us, we put it off as long as we can. That all changed last year with the introduction of the assisted dying bill into the Houses of Parliament. Our national attention was, for a rare moment, captured by death.  

As a parish priest, I’ve seen the finality of burying someone into the ground. I’ve seen the sadness in the eyes of those trying to grieve. 

The words of Ash Wednesday, which remind us that we are ‘but dust, and to dust we shall return’ are echoed in the famous words that the priest recites in those last moments of burial, ‘ashes to ashes, dust to dust’. In that moment, amongst the bereaved, there is no escaping the inevitability of death. It is the ultimate statistic, 1 in 1 die. 

Whilst death is of course universal and will affect us all, the impact of this assisted dying bill could have consequences for some of the most vulnerable in society.  

As I reflect on my time as a Priest in East London, this is not abstract theory, but something I lived with each day. I served amongst a hugely diverse, vibrant, community in one of the poorest parts of the city. As I try to picture some the people I’ve walked alongside, I know it is these lives that will be most affected.  

One of the reasons I have concerns about the bill is the prospect of these people being coerced into ending their own lives prematurely, by a world that has already told them their lives are of little value. There are already huge disparities in access to the current provision of palliative care at the end of life, particularly amongst people of colour, the disabled and the poor.  

Of the 500,000 people who die each year, 100,000 do not access the care they need. This number is skewed towards ethnic minorities and those who come from poorer backgrounds.  

There is much confusion and misinformation about what end-of-life care even is. Research conducted by Marie Curie shows that 1 in 5 people from an ethnic minority background believe Palliative Care is actually Euthanasia.  

We only need to look at what has happened around the world when the ‘right to die’ becomes a duty to die. Even with the best of intentions, other jurisdictions show us that safeguards rapidly deteriorate and those who are already vulnerable become even more so.  

I worry that the way in which this bill is being handled - rushed through, little time being given to properly chew over the profound consequences it may have - reflects the wider way we view death. 

By trying to provide a ‘choice’ for a certain group of people, the consequence will be taking away real choice from those who already have little. 

Yet we know that for those who do access it, palliative care can be hugely effective in improving their quality of life, and for some, they can even outlive their prognosis. During Ash Wednesday’s service, I met an elderly gentleman who was diagnosed with stage four pancreatic cancer in 2019. He was told he had five months to live. He described every day of his six-year survival since as a ‘miracle’, his eyes filled with evident joy.  

Such a blessing stands in stark contrast to the lonely final days of my 96-year-old great grandmother. She was suddenly taken ill during the Covid-19 pandemic and was frantically rushed to a hospital. Amidst the chaos, exasperated by the restrictions against seeing family that were in place at the time, I distinctly remember confused conversations about placing her in a care home for her final days. It was clear she needed a lot of specialist attention, more than our family could provide ourselves.  As she was discharged to stay with our aunt, she never did reach that care home, as she died at home. She was buried in our local cemetery, with our family watching on Zoom.  

My final memory of my great-grandmother will be the FaceTime call we shared when she was taken to hospital, with the poor data connection and shaky picture. I am so grateful for the few family members who were able to be by her side when she died, but I’ve often wondered whether she fully received the care she actually needed during those final days, in the way she needed it.  

What my great-grandmother didn’t have a lot of at the end of her life was time.  

That’s also true for this bill. Concerns have been raised that only five hours of debate were given to this Bill in the chamber, comparatively short for a change in the law of this magnitude.  

I worry that the way in which this bill is being handled- rushed through, little time being given to properly chew over the profound consequences it may have- reflects the wider way we view death.  

Do we view death - and indeed the dying- as something to be shoved to one side, not spoken about in the hopes we can avoid its impact? Or do we view death as an important moment to review who and what matters most in life?  

Perhaps for some, the fact that Christians devote a period of 40 days to dwell on death may be one of the mysteries of faith. However, perhaps it’s not such a bad idea after all.  Death may bring with it fear, grief and pain and so we tend to avoid it. But do we risk missing out on much more? As we head into Easter, the cross still serves as a powerful reminder that, especially in death, Hope can be found, that Good has triumphed over evil, and Light shines even in the darkest of places.  

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If you enjoy Seen & Unseen, would you consider making a gift towards our work?
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Article
Culture
Easter
Sport
4 min read

Rory McIlroy’s pilgrim’s progress

The golfer’s relief at finally laying his burden down.

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

A golf clutches his face after winning a competition
McIlroy's moment at the Masters.
Simon Bruty/Augusta National.

It's Sunday evening. Along with most golf fans, I'm still up around 1 am, gripped by the drama unfolding on the famous course at Augusta, Georgia. Despite being one of the world’s best golfers, for the past eleven years, Rory McIlroy has been carrying around three big burdens. One, he has never won the Masters, one of golf’s iconic competitions. Two, he last won a ‘major’ eleven years ago and inexplicably has kept missing out on winning golf’s biggest tournaments. Three, there is the ‘career grand slam’ – winning all four ‘majors’ (of which the Masters is one) – something only five golfers in the history of the game have done before, none of them European. Rory has won three of them, but this one – The Masters - has always eluded him. 

After four agonising days, with his fortunes switching this way and that like a drunk driver careering down a road, Rory stands over a four-foot putt on the final play-off hole, one that even average amateur golfers like me would expect to make. Heart pounding, he nudges the ball forward. As it rolls into the white-ringed hole, his knees crumple, shoulders shake, as tears of relief and joy pour down his face. You can almost see all three burdens roll away in that moment. As he put in in a post-round interview: “This is a massive weight that's been lifted off my back.” 

As a self-confessed fan of Rory, who seems genuinely humble and likeable, with a golf swing as smooth as butter, I punch the air, probably like most golf fans around the world. Watching the post-round interviews, you can sense his elation and liberation. As Scottie Scheffler, last year’s winner, clothes him in the coveted green jacket, awarded to all winners of the tournament, Rory cannot stop grinning, wandering around the Champions’ Locker Room, which he has had no right to enter until this point, like a kid in a sweet shop.  

Now I’m sure the golf committee at Augusta National never thought for a moment they were drawing on rich religious imagery for their award ceremony and the emotions generated in winning their tournament, but Rory’s relief made me look up a moment in John Bunyan’s Pilgrim’s Progress. The parallels in this old tale of Puritan faith were even more striking than I expected.  

In Bunyan’s dream-story, the main character, Christian, having been through years of tests, trials, ups and downs, reaches the climax of the tale as he reaches Calvary, the place where the cross of Jesus Christ stood: 

Just as Christian came up to the cross, his burden loosed from off his shoulders, and fell from off his back, and began to tumble; and so continued to do till it came to the mouth of the sepulchre, where it fell in, and I saw it no more. 

Then there was the tearful joy and relief:  

Then was Christian glad and lightsome. He looked therefore, and looked again, even till the springs that were in his head sent the waters down his cheeks. 

There was even the celestial equivalent of the green jacket. Three angels appear, and one of them: 

…stripped him of his rags, and clothed him with a change of raiment. And unto him he said, Behold, I have caused thine iniquity to pass from thee, and I will clothe thee with change of raiment.  

Burdens rolled away, tears of joy, dressed in new clothing. It’s all there.  

Yet this comparison tells of a difference. 

Bunyan’s relief was about forgiveness. Rory McIlroy’s came from winning a game of golf. His Twitter / X self-designation delightfully used to read: “I hit a little white ball around a field sometimes.” (It now reads ‘Grand Slam Winner’ - not so good in my humble opinion). 

The lessons drawn were all about persevering, persistence, getting there in the end. Looking across at his young daughter Poppy, Rory said:  

‘Never, ever give up on your dreams. Keep coming back, keep working hard, and if you put your mind to it, you can do anything.’ 

Yet of course there was nothing inevitable about his victory. It could so easily have gone the other way. His putt might have slid past the hole, Justin Rose, his play-off opponent might have sunk his, and Rory might never have won the Masters, never won the Grand Slam. That is the nature of sport. However strong your dreams, however good your skills, winning is never guaranteed. Not everyone’s dreams come true. It's simply not true that “if you put your mind to it, you can do anything.”  Ask Justin Rose.

Bunyan’s relief is something completely different. It's not the relief of having achieved something. It's the relief of receiving something - a totally undeserved gift - more like a prisoner receiving news of an unexpected release, or someone owing huge debts receiving a windfall which enables her not only to pay off the debts but to live comfortably in the future. 

The relief of the winner who finally achieves their dream is wonderful to watch. But for those whose dreams don't get fulfilled, for the likes of Justin Rose, who at age 44 seems destined never to win it, that kind of joy remains tantalisingly out of reach. 

Christian’s tears of happiness are not the tears of the winner but of the loser. They are for those whose dreams never come true as well as those whose do. They are for those who fall short yet are given the gift of forgiveness, peace and hope. They are - potentially at least - for all of us, winners or losers.  

Celebrate our 2nd birthday!

Since Spring 2023, our readers have enjoyed over 1,000 articles. All for free. 
This is made possible through the generosity of our amazing community of supporters.

If you enjoy Seen & Unseen, would you consider making a gift towards our work?

Do so by joining Behind The Seen. Alongside other benefits, you’ll receive an extra fortnightly email from me sharing my reading and reflections on the ideas that are shaping our times.

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