Article

Culture

Psychology

10 November 2023

6 min read

When obsession shakes certainties and challenges beliefs

What happens when questions of belief are subject to obsessive behaviours? The impact of OCD on key life moments.

Paula Duncan

Paula Duncan is a PhD candidate at the University of Aberdeen, researching OCD and faith.

A close-up of a complex clock mechanism featuring small statues within it.

The Millennium clock tower.

National Museum of Scotland.

I’m eleven years old and I’ve been given a New Testament in our school assembly. This is the first time I’ve owned a copy of the Bible. So far, I’ve only heard it read to me in school or the few times I’ve gone to church with my family. I flick through it that evening, taken by the table at the front that directs you to different verses that speak to how you might be feeling. I find myself reading Revelation. The imagery frightens me. The tone, the threat, the fear, and the condemnation… would this be me if I didn’t believe in the right way? If I didn’t believe enough? I’m terrified of this book, these words, terrified of God, even. Mostly, I’m terrified by my own doubt and uncertainty about all things religious, despite wanting to believe. What if God isn’t real? What if God is and I just don’t believe enough? God will know I’m not sure. I tell myself not to think about it. If I’m to avoid thinking about it, I can never read the Bible again. I accept this as a rule.

I’m twelve years old and I’m standing in the National Museum of Scotland in Edinburgh, listening to one of Bach’s minor key concertos playing from the Millennium Clock. To me, it looks like it depicts some sort of hellscape straight from the book of Revelation. Death, suffering, and evil are everywhere in this model with its eerie red glow at the bottom. It brings up all the thoughts I’ve been trying to avoid – “you don’t believe enough” and “this is what hell looks like.” I tell myself to forget about it. If I’m to forget about it, I need to make sure that I never talk about it and don’t tell anyone how afraid of it I am. Talking about it makes it real, I think. I accept this, too, as a rule.

I’m thirteen years old and I’m sitting in a church trying to concentrate on the service. I can’t because I keep having the thought that I don’t believe enough. I’m worrying about what the reading might be – I’m still too scared to read the Bible and I can’t prevent myself from hearing it in this space. I’m afraid of thinking that I don’t believe enough, and that God will know because this is God’s church after all. I tell myself that I do not belong in this place if I cannot control my thoughts. If I can’t do that, I can never go to church again. This too, becomes a rule.

I’m fourteen years old and I’ve started praying every evening. I’m not sure what prompted this, but I also know that I must do it correctly. If I pray and forget to conclude with “amen”, then it seems obvious that God will continue to listen to my thoughts as if I’ve forgotten to hang up the phone. I try to keep my thoughts corralled and pure when I pray. If I don’t end my prayer, God will hear all my worst thoughts – the ones I am ashamed of, the ones that scare me, the ones that fill me with doubt. I tell myself that I can no longer run that risk. If I’m to prevent this, I shouldn’t pray. Another rule.

I was scared to say these things aloud – to voice my fears or doubts in case they somehow became worse if I acknowledged them.

I’m now in my late twenties, and I have been diagnosed with Obsessive-Compulsive Disorder (OCD) and I’m slowly unlearning the rules I’ve created for myself over the years. Each of them, in their own way, was designed to keep me safe from harm, safe from thinking about something that frightened me, or acknowledging difficult emotions like doubt and uncertainty.

It has been a long road to reach that diagnosis. OCD is regularly misunderstood and presented as punchline of jokes – “I’m so OCD!” is one that I’ve heard far too many times when someone simply means that they’re organised. The problem with these jokes is that it disguises the reality and makes it that bit harder for people to recognise what it is they’re really dealing with. OCD-UK, a charity to whom I owe a great deal, describe OCD as follows: “Obsessions are very distressing and result in a person carrying out repetitive behaviours or rituals in order to prevent a perceived harm and/or worry that preceding obsessions have focused their attention on.”

Obsessions could cover virtually any topic, and everyone will experience compulsions in slightly different ways. I didn’t recognise that I was living with OCD because almost all of my compulsions were mental rituals or avoidance behaviour. I would try and avoid thinking about things, check whether thoughts upset me, avoid reading the Bible… Layers and layers of compulsive behaviour in response to frightening intrusive thoughts that became associated with faith. I was scared to say these things aloud – to voice my fears or doubts in case they somehow became worse if I acknowledged them. I now know to call this “magical thinking” but I still find it difficult at times to accept that I cannot cause something to happen simply by saying it.

It can be particularly difficult for people with OCD to cope with uncertainty. I can see why anxiety and doubt about the existence of God has been hard for me to tolerate. I also know that I can never achieve absolute certainty and part of learning to live with OCD is learning to accept that and make choices despite it. Last year I attended the International OCD Foundation (IOCDF) Faith and OCD conference and was overwhelmed by the sheer number of people there. So many people with the same worries and doubts as me, and many more who had found that OCD impacted them in different ways.

But it was hard for a doctor to diagnose me until I could find the words to articulate what I was experiencing. It wasn’t until I started reading books about other people’s experiences with OCD that I started to recognise my own thought patterns, my own fears and doubts in other people’s words. Author and video creator John Green shares a very powerful video titled “What OCD is like (for me)” where he shares what his experience of having OCD and says:

“I can say what it is like more than what it is.”

This gives me a little more courage to tell people what living with OCD can be like and represent some of the diverse experiences of the condition. For someone who was too frightened to open a Bible, I think it’s a little ironic that I am now a theologian. My doctoral research project is focusing on faith and OCD, and in particular, how it might affect someone’s relationship with God. I hope to make use of some of my own experience along the way – examining my fear of not being sure enough, my worries that my intrusive thoughts would somehow offend God… I hope that by sharing this, I can raise a little more awareness of an experience that so many of us try to keep secret or just aren’t ready to speak about.

Through advocacy and research, I’d like to share a little of, as John Green says, what OCD looks like (for me). I’d like to add my voice – now that I’ve found it – to the discussion in the hopes that someone might read this and recognise what they’re going through. And if that’s you? You’re not alone. There is help and there is hope.

Review

Books

Comedy

Culture

Trauma

23 October 2024

5 min read

Miranda Hart's diagnosis of the unseen

Beyond a medical illness she's on to something supernatural.

Belle Tindall

Belle is the staff writer at Seen & Unseen.

On a TV chat show, guests look to one of their own talking to the audience.

Mirnada regales a chat show.

There I was, standing in the book aisle with a choice before me. One that would dictate my mental state for the week ahead: I could pick up Boris Johnson’s hotly anticipated autobiography (although, at £30, it would mean putting the bottle of wine in my basket back on the shelf) or I could choose Miranda Hart’s latest literary offering.

Externally, all seemed calm. Internally, an almighty battle of the books was raging within me. The price of Boris’ ruled out the option of buying both. So, which should I pick? Whose voice should I invite to live inside my brain for the next five days? Both books were offering me a cultural bandwagon to hop on, I just had to decide which wagon looked like the better option.

Boris… Miranda… Boris… Miranda… Boris… Miranda…

After some intense deliberation, I popped BoJo’s memoir back on the shelf and became the proud owner of Miranda Hart’s new book. And I must admit, after hearing from friends who chose Boris to be the victor of their own battle of the books, I am very happy with my decision.

Miranda Hart, the deeply beloved comic actor, sit-com writer, and stand-up comedian, hasn’t been entirely honest with us. For decades, she has been suffering with what she now knows to be Lyme Disease. In her book, she draws back the curtain and reveals a lifetime worth of suffering with illness after illness – bronchitis, tonsillitis, pericarditis, gastroenteritis, labyrinthitis – as Miranda succinctly puts it, ‘too many itises’. Despite illness being her body’s default state, Miranda kept calm(ish) and kept on. That is, until around a decade ago when her symptoms became simply unbearable.

She tells the story of collapsing onto her living room floor, extreme fatigue rendering her utterly unable to pick herself up. This was the beginning of months of being bedbound and years of having to press pause on her life. Miranda recalls how she wept with relief at being able to crawl to the bathroom, of how she had to watch the television with sunglasses on because of neurological symptoms, and how she would ‘look at a cup of tea on the table and wonder if I had the strength to take a sip’. She also paints a terrifying picture of not being believed - of living with an illness that nobody can understand, of suffering with symptoms that have no explanation. Miranda contracted Lyme Disease when she was fourteen, and had it diagnosed when she was in her forties.

It seems that Miranda Hart is trusting that all that she can see is not all that there is – that her suffering is not the truest thing about her and that she doesn’t need to be the source of all of her healing.

For those with no experience of living with a chronic illness, Miranda’s honesty will open your eyes to the pain and frustration that comes with your body not allowing you to live the life you crave. If you do have experience of chronic illness, this book will make you feel seen.

But, alas, this is Miranda Hart we’re talking about. If you’re looking for a woe-is-me book, this isn’t it (maybe you’d have more luck trying Boris?). This book is brimming with:

A) End-of-chapter dance breaks

B) Jokes about wind (obviously)

C) Theology

I kid you not.

Each of her chapters outline a ‘treasure’ that she has found in the depth of her suffering, the ‘watchwords’ that she uses to encapsulate these treasures are: love, faithfulness, peace, self-control, kindness, goodness, joy, gentleness and patience.

I got to chapter four of the book and had myself a real – ‘hang on a minute…’ - moment. As a Christian, I’ve grown up with another way of grouping those words together: I call them ‘the fruits of the Spirit’.

By chapter five I was convinced: Miranda Hart has released a spiritual book.

She has, quite excellently, trojan-horsed a bunch of Bible into the Sunday Times best-seller’s chart. And nobody seems to have noticed, I almost feel a little guilty for outing her. All the book reviews I’ve read note the hard-won warmth and wisdom included in this book (both of which are there, by the way) and conclude that it is a truly lovely self-help manual. And that’s where they’re wrong.

This is precisely not self-help.

In fact, I get the subtle sense that the self-help industry is one that irks Miranda a little bit, and understandably so – the idea that we can ice-bath ourselves into wellness must sound odd to someone who can’t pick themselves up off their living room floor. So, I’ll say it again: self-help is not what this book is.

Instead, it seems that Miranda Hart is trusting that all that she can see is not all that there is – that her suffering is not the truest thing about her and that she doesn’t need to be the source of all of her healing. She mentions, again and again, that the truest thing about her (and us, her 'Dear Reader Chums') is that she, and we, are loved. Deeply, unconditionally, unshakably loved. We haven’t earnt it and therefore can’t lose it. In her darkest moments, she had lost everything – her career, her social life, her home, her hopes and dreams - but she never lost that love. Everything else she has to say in the book flows from that belief.

I happen to think she’s dead right – but that is, undeniably, a faith statement. This book is built upon them.

And listen, you could read this lovely book – giggle and weep your way through it – without ever sensing anything supernatural within it. But, make no mistake, there is the supernatural within it.

What Miranda has affectionately called her ‘treasures’ and the Bible calls ‘the fruits of the Spirit’ are just that; they’re what grow when one lives a life informed by and infused with God’s spirit. They’re the tangible symptoms of putting yourself in God’s presence, of keeping company with him. They are him rubbing off on us.

What I’m trying to get at is this: these ‘fruits’, they’re seen in us, but they’re all God. They’re not the fruits of the self and so the way to obtain them cannot be self-help.

Miranda obviously appreciates that belief in any divine/supernatural/transcendent thing can be complex, that the notion of ‘god’ can come with baggage, and religion can be an all-out no-no. And so, she is incredibly subtle with what she has to say. This book is not self-help, but it’s not evangelism either. She uses her beloved ‘ists’ (phycologists, neurologists, sociologists etc.) to unpack the ‘treasures’/’fruits’, showing how recent research and ancient religion have many of the same things to say.

I really am unspeakably glad I didn’t pick Boris.