Article
Assisted dying
Care
Comment
Death & life
Suffering
5 min read

Why end of life agony is not a good reason to allow death on demand

Assisted dying and the unintended consequences of compassion.

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

A open hand hold a pill.
Towfiqu Barbhuiya on Unsplash.

Those advocating Assisted Dying really have only one strong argument on their side – the argument from compassion. People who have seen relatives dying in extreme pain and discomfort understandably want to avoid that scenario. Surely the best way is to allow assisted dying as an early way out for such people to avoid the agony that such a death involves?  

Now it’s a powerful argument. To be honest I can’t say what I would feel if I faced such a death, or if I had to watch a loved one go through such an ordeal. All the same, there are good reasons to hold back from legalising assisted dying even in the face of distress at the prospect of enduring or having to watch a painful and agonising death.  

In any legislation, you have to bear in mind unintended consequences. A law may benefit one particular group, but have knock-on effects for another group, or wider social implications that are profoundly harmful. Few laws benefit everyone, so lawmakers have to make difficult decisions balancing the rights and benefits of different groups of people. 

It feels odd to be citing percentages and numbers faced with something so elemental and personal and death and suffering, but it is estimated that around two per cent of us will die in extreme pain and discomfort. Add in the 'safeguards' this bill proposes (a person must be suffering from a terminal disease with fewer than six months to live, capable of making such a decision, with two doctors and a judge to approve it) and the number of people this directly affects becomes really quite small. Much as we all sympathise and feel the force of stories of agonising suffering - and of course, every individual matters - to put it bluntly, is it right to entertain the knock-on effects on other groups in society and to make such a fundamental shift in our moral landscape, for the sake of the small number of us who will face this dreadful prospect? Reading the personal stories of those who have endured extreme pain as they approached death, or those who have to watch over ones do so is heart-rending - yet are they enough on their own to sanction a change to the law? 

Much has been made of the subtle pressure put upon elderly or disabled people to end it all, to stop being a burden on others. I have argued elsewhere on Seen and Unseen that that numerous elderly people will feel a moral obligation to safeguard the family inheritance by choosing an early death rather than spend the family fortune on end of life care, or turning their kids into carers for their elderly parents. Individual choice for those who face end of life pain unintentionally  lands an unenviable and unfair choice on many more vulnerable people in our society. Giles Fraser describes the indirect pressure well: 

“You can say “think of the children” with the tiniest inflection of the voice, make the subtlest of reference to money worries. We communicate with each other, often most powerfully, through almost imperceptible gestures of body language and facial expression. No legal safeguard on earth can detect such subliminal messaging.” 

There is also plenty of testimony that suggests that even with constant pain, life is still worth living. Michelle Anna-Moffatt writes movingly  of her brush with assisted suicide and why she pulled back from it, despite living life in constant pain.  

Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder. 

Despite the safeguards mentioned above, the move towards death on the NHS is bound to lead to a slippery slope – extending the right to die to wider groups with lesser obvious needs. As I wrote in The Times recently, given the grounds on which the case for change is being made – the priority of individual choice – there are no logical grounds for denying the right to die of anyone who chooses that option, regardless of their reasons. If a teenager going through a bout of depression, or a homeless person who cannot see a way out of their situation chooses to end it all, and their choice is absolute, on what grounds could we stop them? Once we have based our ethics on this territory, the slippery slope is not just likely, it is inevitable.  

Then there is the radical shift to our moral landscape. A disabled campaigner argues that asking for someone to help her to die “is no different for me than asking my caregiver to help me on the toilet, or to give me a shower, or a drink, or to help me to eat.” Sorry - but it is different, and we know it. Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder.  

In Canada, many doctors refuse, or don’t have time to administer the fatal dose so companies have sprung up, offering ‘medical professionals’ to come round with the syringe to finish you off. In other words, companies make money out of killing people. It is the commodification of death. When we have got to that point, you know we have wandered from the path somewhere.  

You would have to be stony-hearted indeed not to feel the force of the argument to avoid pain-filled deaths. Yet is a change to benefit such people worth the radical shift of moral value, the knock-on effects on vulnerable people who will come under pressure to die before their time, the move towards death on demand?  

Surely there are better ways to approach this? Doctors can decide to cease treatment to enable a natural death to take its course, or increase painkillers that will may hasten death - that is humane and falls on the right side of the line of treatment as it is done primarily to relieve pain, not to kill. Christian faith does not argue that life is to be preserved at any cost – our belief in martyrdom gives the lie to that. More importantly, a renewed effort to invest in palliative care and improved anaesthetics will surely reduce such deaths in the longer term. These approaches are surely much wiser and less impactful on the large numbers of vulnerable people in our society than the drastic step of legalising killing on the NHS. 

Article
Comment
Leading
Politics
War & peace
3 min read

This security lapse signals much more about character

Sharing inflammatory emojis with the bros doesn’t inspire trust.

Krish is a social entrepreneur partnering across civil society, faith communities, government and philanthropy. He founded The Sanctuary Foundation.

Screen grab of messages with text and emojis.
The Atlantic

I have - on more than one occasion - sent a sensitive message to the wrong person. It makes me cringe even to recall those mistakes, and so I have a certain amount of sympathy with senior US government leaders who, this week, have been caught out by private messages that got into the wrong hands.  

The messages at the heart of this scandal were sent on a Signal chat between National Security Adviser Michael Waltz, Secretary of Defence Pete Hegseth, Marco Rubio, Secretary of State, J.D. Vance the Vice President, and Tulsi Gabbard, Director of National Intelligence. What none of them had realised was that inadvertently included in the group was Jeffrey Goldberg, editor of The Atlantic.  

Needless to say, screenshots of the chat went viral. The problem, however, wasn’t just what was overheard, - which by itself amounts to a major security breach, - but about what that revealed about the participants – which, I believe, signals a much deeper problem: a breach of character. And there, my sympathy ends.  

The White House team was discussing the recent bombing campaign targeting Iran-backed Houthi rebels who have been disrupting navigation in the Red Sea and the Bab-al-Mandab strait. According to reports, the strikes left at least 53 people dead and injured almost 100 more. Some reports say that civilians and children were among the dead. But in the confines of the walls of power of Washington, these lives were written off in a crude series of emojis: a raised fist, the US flag and fire.  

Dehumanisation is a dangerous path. Once we stop seeing one another human beings with intrinsic value, dignity and worth our world becomes a far less safe place. It seems a dark day where people on one side of the planet can launch a drone attack on people on the other side and then brag about it on a messaging platform in emojis, like a bunch of mates celebrating a board game win.  

The messages on Signal were not just dismissive of those deemed to be enemies – but also of those they call friends. The comments highlight the disparaging way that members of the highest-ranking leaders in the US government view Europe, their faithful and long-term ally. “I fully share your loathing of European freeloading. It’s PATHETIC” writes Pete Hesgeth, US secretary of defence.   

As a European and British person, these are difficult words to read.  It seems our transatlantic relationship has descended into a transactional relationship. Viewing our historical partnership as some kind of profit / loss accountancy does not bode well for world peace. Anyone whose commitment to you is based solely on financial return is an unreliable ally, and that is why Hesgeth’s words are toxic for global security. 

Having recently divorced ourselves from Europe with Brexit, now it feels as though we are on the other end of annulment proceedings. The longstanding bonds between Europe and the US that once seemed unbreakable are now fragile, and the global landscape is shifting in ways that may leave us isolated at a time when cooperation and solidarity are more crucial than ever.  

It is difficult to hold those in power to account, as Jeffrey Goldberg of The Atlantic, knows only too well. It would perhaps have been easier for him to refrain from going public with the compromising information he found in his possession. However, when public servants are not who they seem, it is time for private individuals to speak up and demand better.    

We need to speak up in outrage not only about the security lapse, but about the character failings, not just about the breakdown in international relations, but in the breakdown in the ethical fabric of leadership. We must expose those who view human life as disposable, those who view friends as pawns in a financial game. We must hold those in power accountable for the values they uphold, or risk further erosion of the principles that underpin peace. Only by demanding higher standards from our leaders can we hope to restore the trust and integrity necessary for a more secure global community.  

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