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7 min read

The art of being inconvenienced

In our fast-paced attention-deficient society, Elizabeth Wainwright reflects on the value of inconvenience as a safeguard against the commodification of life.

Elizabeth Wainwright is a writer, coach and walking guide. She's a former district councillor and has a background in international development.

a newly laid hedge merges into an older one, next to a road
Photo by Annie Spratt on Unsplash.

It’s May as I write this, and I’m noticing Iris flowers everywhere. They don’t flower for long, but they are glorious when they do. There is another kind of Iris too - our newborn daughter Iris, born in May under a full moon; appropriately named the ‘flower moon’ in some cultures. And it really was a time of flowers - in her name, and in the Devon hedgerows outside which were bursting into life and nurturing a rainbow of wildflowers - pink campion, creamy hawthorn, yellow celandine, bluebell, violet, endless green. These hedgerows are ancient. ‘Hooper’s formula’ can give an estimate of just how ancient - counting the number of woody shrubs and trees in a 30m section and multiplying by 100 gives a rough estimate (one species for every 100 years). This makes the hedges and sunken earth-banked lanes around us well over 1000 years old, thousands of years in places. They feel essential to the structure of this place.  

The layers of land in this part of Devon are overlain and interwoven, sometimes reinforcing what was there before, sometimes obliterating it. Today the threat of obliteration looms larger than ever - development, forestry and rapidly changing agricultural practices all squeeze rural communities and landscapes to the edge. But these old hedgerows and earth banks seem to resist the march of development and ‘progress’ – continuing a line of resistance that stretches back to the local Celtic people resisting Anglo-Saxons, who in turn resisted the Normans. The hedges represent old ways, they hold their ground and ask us to slow down and prioritise other things than convenience and blind progress.  

Because for local farmers, it is not convenient to farm these small wonky fields with their thick-hedged edges. In other parts of the country, fields got bigger and bigger as hedges were ripped out, especially during the Second World War when food production was a priority. And the size of fields kept pace with the growing machinery used to farm them. Farmed fields in some parts of the country are now vast. But not here. Outside the window huge tractors thunder past, but they look out of place in these narrow lanes and small fields - old spaces that are less and less able to resist the damage of modern machines.   

I think inconvenience is good for love and for neighbourliness. Loving and knowing our neighbours are beautiful intentions, but they can quickly become easy words and abstract concepts.

But whilst these ancient hedgerows are inconvenient for modern farming, they are convenient for life, because things can exist here that wouldn’t if the hedges were removed - biodiversity, soil structure, shelter and food for countless species through the year; species that are under threat from intensive agriculture elsewhere. It is the inconvenience of the hedges and fields here that leaves room for life. 

I think about how this is true of other things; how inconvenience might bring life, how it might even be essential for our relationship with things that matter. Two specific things come to mind.    

First, I think inconvenience is good for love and for neighbourliness. Loving and knowing our neighbours are beautiful intentions, but they can quickly become easy words and abstract concepts. Putting the idea of neighbourliness into practice will be inconvenient - it will have an impact on me and my life, it will take time and might be awkward at first - but it is where the love and I think the hope is. The future has lately been sounding bleak - heatwaves and wildfires and temperatures higher than climate modelling has predicted; economies in turmoil; never ending conflicts. Loving our neighbour isn’t about niceness, or just for when it’s convenient – it’s for right now as the world burns, it’s for helping us know the world through the lives of others, it’s for rebuilding affection and life on earth.   

Second, I have found that inconvenience is good for knowing the Bible. When I first began reading it — curiously but non-committaly as a young adult — the thing that kept me coming back was its beauty. Much of its meaning was lost to me, but its sound and rhythm wasn’t. The Bible is inefficient, inconvenient. It is often impenetrable, mysterious, poetic. And poetry is often inconvenient - it asks us to slow down, to pay attention, to engage imagination and heart and feeling, to re-read something that might not at first be clear. And when its meaning or imagery sticks then it remains, I do not forget it. If the Bible’s authors wanted readers to understand something, to believe something, there are shorter and clearer ways to do so which might even guarantee particular outcomes like belief. But the Bible turns towards poetry and beauty and depth - not transfer of information, not efficiency, not convenience. It asks the reader to slow down and listen, to reach beyond the immediacy of information to another way of being and knowing. 

Another Iris speaks - not flower, not daughter, but a singer through our kitchen speakers - Iris Dement is singing a song called Working on a World I May Never See. It makes me think about the importance of investing in hedgerows and neighbours, a declaration of belief that their possibility offers more than the efficiency and productivity they sacrifice. Because we are not made for efficiency, or blind progress, or productivity. I think we are made to love, and to work on a world we may never see; an ask that I increasingly see requires not just ‘development’ and technology and financial investment, but investment in love and neighbours and place. But as the world hurtles on, love seems diminished, its power underestimated or increasingly it seems, unknown. I notice talk of love sometimes met with cynicism, as if it’s a warm fuzzy idea but not something to take seriously, as if it might be world-shaking. But I think it is — or it could be if we let it.   

And so I welcome inconvenience, I welcome the courage and patience it teaches me.

The hedgerows and my neighbours and parts of the Bible remind me to take love seriously. They slow me down with their long-way-roundedness, their use of 100 words or species where one would be more efficient, their conjuring of feeling and images where information might be quicker. They ask me to pay attention, they offer beauty, they bring my gaze to things they matter.   

In Eric Fromm’s 1956 book The Art of Loving he examines various kinds of love, and then explores the disintegration of love in the modern western world, which is in part he says because:   

“Modern man has transformed himself into a commodity; he experiences his life energy as an investment with which he should make the highest profit, considering his position and the situation on the personality market. He is alienated from himself, from his fellow men and from nature. His main aim is profitable exchange of his skills, knowledge, and of himself, his "personality package" with others who are equally intent on a fair and profitable exchange. Life has no goal except the one to move, no principle except the one of fair exchange, no satisfaction except the one to consume.”

(All this written before the arrival of the ‘personality market’ of social media, and before Amazon’s all-consuming invitation to consume).  

In examining this commodification of life, and in a line that touches on our fondness for convenience, Fromm says:

“Modern man thinks he loses something—time—when he does not do things quickly. Yet he does not know what to do with the time he gains—except kill it.” 

He goes on to argue that love is not a sentiment but a practice; one that involves discipline, concentration, and patience. These aren’t things that a fast-paced attention-deficient society leaves much room for. He says too that

“Love is not primarily a relationship to a specific person; it is an attitude, an orientation of character which determines the relatedness of a person to the world as a whole…” 

The hedgerows outside and the poetry of Bible teach me patience and concentration, and they shift my centre of relatedness outwards, from my own need for convenience, from focus on my life and just the people in it, to the wider world - worlds seen and unseen.    

Fromm says

“To be loved, and to love, need courage, the courage to judge certain values as of ultimate concern—and to take the jump and to stake everything on these values.”

And so I welcome inconvenience, I welcome the courage and patience it teaches me. The life-giving ‘inconvenience’ of the ever-changing hedgerows, and neighbourliness, and the Bible, and many other things help me to slow down and pay attention, they help me to know and to love, they help me to work on a world I may never see.  

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Assisted dying
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9 min read

Assisted dying's language points to all our futures

Translating ‘lethal injection’ from Dutch releases the strange power of words.
A vial and syringe lie on a blue backdrop.
Markus Spiske on Unsplash.

In the coming weeks and months, MPs at Westminster will debate a draft bill which proposes a change in the law with regards to assisted dying in the UK. They will scrutinise every word of that bill. Language matters. 

Reading the coverage, with a particular interest in how such changes to the law have been operationalised in other countries, I was struck to discover that the term in Dutch for dying by means of a fatal injection of drugs is “de verlossende injectie.” This, when put through the rather clunky hands of Google translate, comes out literally as either “the redeeming injection” or “the releasing injection.” Of course, in English the term in more common parlance is “lethal injection”, which at first glance seems to carry neither of the possible Dutch meanings. But read on, and you will find out (as I did) that sometimes our words mean much more than we realise.   

Writing for Seen & Unseen readers, I explained a quirk of the brain that tricked them into thinking that the word car meant bicycle. Such is the mysterious world of neuroplasticity, but such also is the mysterious world of spoken language, where certain combinations of orally produced ‘sounds’ are designated to be ‘words’ which are assumed to be indicators of ‘meaning’. Such meanings are slippery things.  

This slipperiness has long been a preoccupation for philosophers of language. How do words come to indicate or delineate particular things? How come words can change their meanings? How is it that, if a friend tells you that they got hammered on Friday night, you instinctively know it had nothing to do with street violence or DIY? Why is it that in the eighteenth century it was a compliment to be called ‘silly’, but now it is an insult?  

Some words are so pregnant with possible meaning, they almost cease to have a meaning. What does “God” mean when you hear someone shout “Oh my God!”? Probably nothing at all, or very little. It is just a sound, surely? And yet no other sound has ever succeeded in fully replacing it. We are using the term “God”, as theologian Rowan Williams points out in his book The Edge of Words, as a “one-word folk poem” to refer to whatever we feel is out of our control.     

Both of these first two interpretations look at death, in some sense, ‘from the other side’ – evaluating the end of someone’s life in terms of speculation over what will happen next. 

This idea of an injection being verlossende seems to me to be the opposite. I find myself hearing it in four different (and not mutually exclusive) ways, each to do with taking control of this very uncertain question of dying. The first, releasing, sounds to me like an echo of the neo-platonic ideas that still infuse public consciousness about what it means to be dead. As we slimily carve our pumpkins for Halloween and the children clamour to cut eyeholes into perfectly good bedsheets, we see a demonstration of society’s latent belief that humans are made up of body and soul, and that at death the soul somehow leaves the body and floats into some unknown realm (or else remains, disembodied yet haunting). If we translate verlossende as releasing then we capture that idea – that of the soul, which longs to be at peace, trapped inside suffering, mortal flesh. 

Google’s second suggestion for verlossende was redeeming. This could be heard theologically. Christians believe in eternal life, that the death of this earthly body is only the start of something new – a life where there will be no crying or pain, and people will live forever in the glorious presence of God. In the bible, the apostle Paul encourages those who follow Christ to trust that they have been marked with a ‘seal’, meaning that they are like goods which have been purchased for a price, and that God will ‘redeem’ this purchase at the appointed time. Death, therefore, is not a fearful entering into the unknown, but a faithful entering into God’s promises.  

Both of these first two interpretations look at death, in some sense, ‘from the other side’ – evaluating the end of someone’s life in terms of speculation over what will happen next. But there is the view from this ‘side’ also. We do not need to speculate about what death means for some of those who experience acute suffering due to terminal illness, and who wish to hasten the end of their lives because of it. They too might want to speak of a releasing injection or a redeeming injection – given that both terms hint at the metaphor of life as a prison sentence. To be in prison is to have one’s rights and freedoms severely limited or entirely taken away. It is not uncommon to hear a sufferer refer to incapacitating illness as being ‘like a prison sentence’, and one can empathise with the desire to have the release date set, back within the sufferer’s control.  

This is the strange power and pregnancy of words – verlossende is able to carry all these meanings or none of them. Until I began researching this article, I had always assumed that the English term, lethal injection, simply meant an injection of some substance that is deadly. This is how the term is commonly understood, therefore, in a sense, this is its meaning. Yet, when I came to consider the possible origins of the word, I realised its likely etymology is from the Greek word lēthē, meaning ‘to forget’. In the Middle Ages, if something was lethal it caused not just death, but spiritual death, placing one beyond the prospect of everlasting life. By contrast, something could be fatal, meaning only that it brought one to one’s destiny or fate.  

With this in mind, as we try to speak clearly in the assisted dying debate, the term fatal injection might be a more precise way to describe this pathway to death that is in want of a name. After all, whether you believe in an afterlife or not, dying is everybody’s fate, and I can see that choosing to take control of one’s fate is, for anyone, an act of faith with regards to what comes next.  

  

This article was part-inspired by Theo Boer’s original article Euthanasia of young psychiatric patients cannot be carried out carefully enough, in Dutch newspaper Nederlands Dagblad.  Theo is a professor of health ethics at the Protestant Theology University, Utrecht. 

Read the original article in Dutch or an English translation below. Reproduced by permission.

 

 

Euthanasia of young psychiatric patients cannot be carried out carefully enough 

Theo Boer 

How is it possible to determine that patients who have suffered from psychiatric disorders for five or ten years and who are between the ages of 17 and 30 have ‘completed their treatment options’, wonders Theo Boer. It also conflicts with perhaps the most important task of psychiatrists: ‘offering hope.’  

The patients we are talking about now are not physically ill and therefore do not have the ‘comfort’ of an impending natural death. 

A letter was recently leaked in which leading psychiatrists ask the Public Prosecution Service to investigate the course of events surrounding euthanasia of young psychiatric patients.  

One death mentioned by name concerns seventeen-year-old Milou Verhoof, who received the redeeming injection from psychiatrist Menno Oosterhoff at the end of 2023. It will not have escaped many people's attention how much publicity the topic has received in the past year or so. Together with a colleague and a patient (who later also received euthanasia), Oosterhoff wrote the book Let me go.  

The tenor was: it is good that euthanasia is possible for this group of patients, the taboo must be removed, their suffering is often terrible, they have already had to undergo countless 'therapies' without effect - can one time be enough?  

Or would we rather have these patients end their lives in a gruesome way? And who really thinks that psychiatrists make hasty decisions when they decide to comply with a euthanasia request?  

To be clear: we are talking about something completely different than what has been called 'traditional euthanasia' for years: euthanasia for physically ill patients with a life expectancy of weeks or months. Given the excellent palliative care that has become available, such euthanasia will actually be less and less necessary in 2024.  

Panic  

No, the patients we are talking about now are panicky, anxious, confused, depressed, lonely, often unemployed, poorly housed, without prospects. But they are not physically ill and therefore do not have the 'comfort' of an impending natural death.  

I have heard several of them say: if only I were terminal, then euthanasia would not be necessary. The fact that there is now attention for this group of patients, with whom we in our hurried and solution-oriented society know so little how to deal, is a gain. At the same time, I am happy with the leaked letter. You can criticize Oosterhoff's procedural approach ('why not an ethical discussion instead of a legal one?'), the lack of collegiality, this perhaps underhanded action ('why did you go straight to the Public Prosecution Service?'). But in my opinion, the letter writers are definitely hitting the mark with this crooked stick. Firstly: how is it possible to determine that patients who have suffered from psychiatric disorders for five or ten years and who are between the ages of 17 and 30 have ‘completed their treatment options’ (a criterion from the Euthanasia Act)?  

Review Committee  

Nobody disputes that their suffering is unbearable. At the same time, I know from my time on a Regional Euthanasia Review Committee that an illness becomes unbearable when all hope is gone.  

A psychiatrist who gives euthanasia to a young adult is also undeniably sending the signal that, like his patient, he has given up all hope of improvement. That is actually risky, because even patients who have suffered for years sometimes recover and, moreover, our brains are not fully developed until we are 25. But it also conflicts with perhaps the most important task of psychiatrists: offering hope. In their training, the risk of transference-counter-transference is consistently pointed out: a patient takes his therapist with him into despair, the psychiatrist transfers those feelings to this and other patients: ‘this kind of suffering is untreatable and cannot be lived with’.  

In the recent NPO television documentary A Good Death we see an embrace between a psychiatrist and her emotional patient. In doing so, this psychiatrist offers a unique form of involvement. But does she provide sufficient resistance to the cynicism, despair and negative vision of the future that is also widespread outside psychiatry?  

Sensible decisions?  

That brings me to a second objection: is it sufficiently recognised how much a psychiatric illness can affect someone’s ability to make sensible decisions? The hallmark of many psychiatric illnesses is a deep desire to die and an inability to think about it in a relative way. As a result, many are unable to think in terms of a ‘possibly successful therapy’.  

Boudewijn Chabot 

The main character in the book Zelf heeft by Boudewijn Chabot, Netty Boomsma, responds to Chabot's suggestion that there might be a life after depression: 'Yes, but then I won't be it anymore.' She wants to go down with her depression. I know differences. The people with a death wish who remark about a possible therapy: ‘I hope it is not effective, because then I will have to go through it again.’ 

 Another hurdle 

If a second psychiatrist is consulted and, for example, suggests trying one or two more therapies, many patients see this as yet another hurdle on the road to euthanasia. They do not see it as a serious opportunity to be able to cope with life again. There are no easy answers here. Nor are pillories appropriate. But let euthanasia remain complicated here, and let us continue to look for hope. 

 

Reproduced by kind permission