Assisted dying: in praise of being a burden

It's not a reason to end a life, it's the very possibility of our being human.

Jonathan Rowlands

Jonathan is a theology lecturer and Liverpool FC fan.

A younger hand holds a wrinkled older hand of someone in a bed.

A lot has been said already about assisted dying. In the raging bonfire of public discourse, there has been a lot of heat, but not a lot of light. But amid all the noise surrounding Parliament’s upcoming discussion around assisted dying, a recent conversation hosted by Prospect between Brenda Hale (former President of the Supreme Court) and Rowan Williams (former Archbishop of Canterbury) served as a reminder that we are, despite everything, still capable of having meaningful and fruitful discussion about even the most divisive of issues.

The conversation is earnest and hard-won throughout; both Hale and Williams each push and probe the other for more detail, more nuance, more outworking of implications. And yet their tenor remains respectful. There is no cheap point scoring, no trite comments or easy aphorisms. These are two people working to understand the other, in full recognition of the gravity of the topic.

One particular moment, however, was frankly spine-chilling. As the conversation progresses, Hale is asked the following: “How do you deal with the pressure questions – pressure from family or financial pressures? What safeguards can you build in?” Her response – in full, for context – is as follows:

“Well, you can build in the safeguards that the decision must be made without undue influence, coercion, duress or fraud. But in the end, it’s a matter of evidence, isn’t it? One of the things I find most difficult is that I don’t think it’s necessarily irrational for somebody to take into account the suffering their suffering is causing to the people dear to them, or the burden that looking after them is placing upon the whole community.

I wouldn’t call that “undue influence”, but it’s one of the questions I find most difficult about all of this. You know, obviously there’s duress, there’s financial abuse, there are all of those sorts of things that have got to be checked against, and there ought to be objective evidence of absence of that. But when it comes down to somebody thinking, “I don’t want to be a cause of others suffering,” that seems to me to be a reasonable thing for somebody to take into account.”

The idea that my dependency or burdensomeness might factor into decisions about whether I continue to live, seems to me to be contrary to the very notion of the Christian message. Let me explain why.

We are made to be a burden, then. To depend on others, to be burdensome to them, is to be human.

We are, whether we like it or not, now rapidly approaching Christmas. At this time of year, Christians celebrate the birth of Jesus; the divine Son of God made flesh and born of a virgin. As the divine Son of God, Jesus lived the perfect human life of joy, grace, and faithfulness; the kind of life I can only aspire to.

Because of this, as a Christian, I look to Jesus’ perfect life of faithfulness as a model for what a truly healthy human life looks like. And I am often surprised by what I find there. For example, it turns out true human flourishing does not involve getting married, having sex, or having children; Jesus’ perfect life of flourishing featured none of these things.

But crucially, Jesus’ perfect life often involved depending upon others; upon being a burden to those around him. As an itinerant travelling teacher, Jesus relied on the financial support of his followers to make his ministry possible. He relied on being made and given food to eat, and a roof to sleep under. He was far from self-sufficient. Rather, he gladly made himself a burden to others in service of his ministry.

But more than this, we often overlook the radical significance of the Christian claim that, at Christmas, we celebrate God’s becoming a baby. For the first years of his perfect life, Jesus was entirely – entirely – dependent upon his parents for all his needs. Here we see God, in the person of Jesus, depending upon Mary and Joseph to feed him, to clothe him, to cuddle him, to clean up his sick and his excrement. This is what human flourishing looks like.

This is mirrored at his glorious death, too. Prior to his arrest, Jesus asked his friends for support; to stay awake while he prays for comfort. The Gospels go on to tell us that, having been mercilessly tortured, beaten, stripped, and interrogated, Jesus had his cross carried by a man named Simon of Cyrene. After his death, having no tomb of his own, Jesus was buried in the family tomb of his follower Joseph of Arimathea. And this, too, is what human flourishing looks like.

Throughout his entire life Jesus lived the perfect life of human joy and faithfulness. And this often involved depending upon others and being a burden to them in every way conceivable. We are made to be a burden, then. To depend on others, to be burdensome to them, is to be human.

To think, then, with Baroness Hale, that my dependency and burdensomeness upon others might somehow serve to underwrite a decision to end my life, is fraught with difficulty for me as a Christian. I simply cannot reconcile her words with the life I see Jesus living in the Bible: a life of joyful, difficult burdensomeness.

There may be many other reasons why people decide they want their lives to end. But a sense of burdening others ought not to be one of them. Being a burden is not a reason to bring one’s life to an end, because it is the very possibility of our being human in the first place. To need others, to place ourselves into their care, does not make us less human, it makes us more human. And therein lies its glory.

Explainer

Belief

Culture

22 August 2024

7 min read

The questions that nobody can escape

Seeking answers about beginning, meaning, and of the end, explain why religion refuses to disappear.

Silvianne and Barnabas Aspray

Silvianne and Barnabas are theologians.

An arm and hand stretch out in front of some, a narrow street is the background.

Andrik Langfield on Unsplash.

In the twentieth century many people thought that religion was on the way out. As the political scientist Francis Fukuyama put it, it was broadly assumed that “religion would disappear and be replaced solely by secular, scientiﬁc rationalism.” But few people now believe this anymore. Fukuyama himself has changed his mind and says that the disappearance of religion “is not going to happen.” But why is religion refusing to disappear?

A core reason for the persistence of faith is that there are questions that everyone asks at one point or another that lead in the direction of religion. Religion, or faith, addresses questions that nobody can escape: Why is there something rather than nothing? Where does it all come from? Is there meaning to this life? And what happens after death? Faith traditions are experts in such ultimate questions. Consider the following examples.

These questions of beginning, of meaning, and of the end, are the questions that religion deals with.

When people experience the beginning of life, they are often caught up in wonder. How can it be that a whole new person is growing inside a woman? Even Friedrich Nietzsche, the great critic of Christianity, who famously declared that “God was dead”, also wrote, “Is there a more sacred state than pregnancy?” There is something deeply moving around the beginning of life. Many who become parents, or in some way experience the beginning of life, are led to wonder: isn’t something more than just biology happening here, something deeper? A new life, a whole new person – and our love for that new person – where does all of that come from?

Another group of questions that most people will face at some point in their lives revolves around meaning. What’s the point of growing up, a teenager might ask? What’s the point of my work, we may ask later on. Especially when we face frustrations, failures, challenges we might wonder what difference we are making to the world. Would anyone miss me if I was not here? Will anyone remember me if I die?

Finally, we all at some point come in contact with death. Even if we are spared the pain of friends dying young, it is the natural course of the world that our grandparents and our parents will one day die. What do we do in the face of such loss? It is hard not to ask: Where is my loved one now? And is there hope of seeing them again one day?

These are the kinds of questions that nobody can entirely avoid in their lives: they never fail to arise and press themselves upon our consciousness. Yet these questions of beginning, of meaning, and of the end, are precisely the questions that religion deals with. And here lies one important answer to why faith won’t just go away: Because scientific rationalism cannot really address them.

Faith offers a space in which people can ponder the ultimate questions and find other people who want to do it with them.

To be sure, secular scientific rationalism does offer some answers as to how life begins – we know the biology of it all astonishingly well. And yet, biology is not everything, and in fact, it is not the biological aspects of it all that touch us. The wonder, the hope, the love that we experience when we are faced with the beginning of life is more than what can be rationally or scientifically accounted for.

Similarly, scientific rationalism is not well equipped to answer questions of meaning. Science is great at answering how something works or how it should be done, but why-questions fall into a different category. Many chatbots, when asked about the meaning of life, will answer “42” - which is a reference to the comic sci-fi series “the Hitchhiker’s Guide to the Galaxy” and we intuitively understand that this answer is nonsensical. It is funny precisely because it is nonsensical.

And again, around the end of life: Scientific rationalism cannot and will not, based on its methods and approaches, say anything about the afterlife.

So, the questions of beginning, meaning and end cannot be answered solely by scientific rationalism. And yet they come up in all of our lives. Right here lies an important reason why faith has not gone away. Faith deals with just these questions. It is good at dealing with them – they are the core domain of faith.

Faith offers answers to questions of beginning, meaning and end, but just as importantly, it offers a community in which such questions can be addressed and discussed. It offers a space in which people can ponder the ultimate questions and find other people who want to do it with them, perhaps showing them ways in which they can find answers. Different faiths and different expressions of faiths do this very differently: organised religions do it differently to loose association of the “spiritual but not religious”, but in all cases, it is faith – broadly understood – that addresses and deals with the questions that niggle away and are not otherwise addressed. Faith won’t disappear, because faith’s questions won’t disappear.

But why does this need saying? Is it not obvious that religion is about ultimate questions that concern everyone?

The problem is that modern Western life is full of opportunities to distract us from these questions. We are wealthy, comfortable, bombarded with entertainment, and often very busy with careers and children as well. All these things help us to repress the deeper questions about the origin and purpose of our existence.

Many people treat the question of life’s meaning like a school or University essay that they can procrastinate from indefinitely: “One day I’d like to figure it out: what it’s all for and where it’s all going: but today there’s another episode on Netflix, Instagram to browse, or tennis on the TV.” The entertainment industry offers alluring enticements to money, sex, fame or success. Wealth is particularly useful because it helps us get what we want, when we want it, and prevents us from facing the harsher realities of life. Making ourselves busy is easy, and we can leave ourselves no time for deep reflection on the bigger questions. All of this adds up to what we might call the “narcotic of everyday life” – the ways in which daily life and society act as a drug to cloud our vision, confuse our thinking, and prevent us from clearly facing up to the things in life that matter most.

The “narcotic of everyday life” – the ways in which daily life and society act as a drug to cloud our vision, confuse our thinking, and prevent us from clearly facing up to the things in life that matter most.

But the problem is that even ordinary everyday life is lived according to (at least provisional) answers to those big questions. Every daily decision we make displays our values, what we think matters. If we work late instead of coming home to play with the children – if we fly to New Zealand for a vacation, or buy beef, massively increasing our carbon footprint and contributing to climate change – we are making choices that have an impact on the planet. All our choices are based on values which reveal our beliefs about what makes life worth living and what we want out of life. You cannot be an agnostic. Your life displays belief in one thing or another. Consider one stark example. A pregnant teenage girl simply cannot be agnostic about abortion for very long. She has only two options: abort, or give birth. The choice she makes will be a practical consequence of her beliefs and value judgments. There is no agnosticism, no “not answering” the question.

Like every religious tradition, Christianity calls us to live lives that are rooted in things of ultimate and lasting value, rather than superficial or self-centred concerns. It challenges us to fight against the narcotic of everyday life by constantly drawing our attention back to the things that most matter. Through worship, Bible reading, and prayer, it incessantly asks us those vital questions: Is it really about making money? Is it about getting promoted? What are our ultimate values and how do we show them in our lives? The real power of secularism is not that it offers alternative answers to these questions but that it distracts from the question. All we need to do is un-distract.

Christianity is not just a set of easy answers to these questions. It is a way, a journey towards the truth. To be a Christian means to belong to a community that trusts what Jesus has revealed about our life’s origin, meaning and end. In that community there are some implicit answers to get us started. We live in the belief that life is meaningful, that selfishness and personal pleasure are not the most important thing. There’s plenty of room for debate and discussion, but let’s at least start talking about the things that matter.