Assisted dying: in praise of being a burden

It's not a reason to end a life, it's the very possibility of our being human.

Jonathan Rowlands

Jonathan is a theology lecturer and Liverpool FC fan.

A younger hand holds a wrinkled older hand of someone in a bed.

A lot has been said already about assisted dying. In the raging bonfire of public discourse, there has been a lot of heat, but not a lot of light. But amid all the noise surrounding Parliament’s upcoming discussion around assisted dying, a recent conversation hosted by Prospect between Brenda Hale (former President of the Supreme Court) and Rowan Williams (former Archbishop of Canterbury) served as a reminder that we are, despite everything, still capable of having meaningful and fruitful discussion about even the most divisive of issues.

The conversation is earnest and hard-won throughout; both Hale and Williams each push and probe the other for more detail, more nuance, more outworking of implications. And yet their tenor remains respectful. There is no cheap point scoring, no trite comments or easy aphorisms. These are two people working to understand the other, in full recognition of the gravity of the topic.

One particular moment, however, was frankly spine-chilling. As the conversation progresses, Hale is asked the following: “How do you deal with the pressure questions – pressure from family or financial pressures? What safeguards can you build in?” Her response – in full, for context – is as follows:

“Well, you can build in the safeguards that the decision must be made without undue influence, coercion, duress or fraud. But in the end, it’s a matter of evidence, isn’t it? One of the things I find most difficult is that I don’t think it’s necessarily irrational for somebody to take into account the suffering their suffering is causing to the people dear to them, or the burden that looking after them is placing upon the whole community.

I wouldn’t call that “undue influence”, but it’s one of the questions I find most difficult about all of this. You know, obviously there’s duress, there’s financial abuse, there are all of those sorts of things that have got to be checked against, and there ought to be objective evidence of absence of that. But when it comes down to somebody thinking, “I don’t want to be a cause of others suffering,” that seems to me to be a reasonable thing for somebody to take into account.”

The idea that my dependency or burdensomeness might factor into decisions about whether I continue to live, seems to me to be contrary to the very notion of the Christian message. Let me explain why.

We are made to be a burden, then. To depend on others, to be burdensome to them, is to be human.

We are, whether we like it or not, now rapidly approaching Christmas. At this time of year, Christians celebrate the birth of Jesus; the divine Son of God made flesh and born of a virgin. As the divine Son of God, Jesus lived the perfect human life of joy, grace, and faithfulness; the kind of life I can only aspire to.

Because of this, as a Christian, I look to Jesus’ perfect life of faithfulness as a model for what a truly healthy human life looks like. And I am often surprised by what I find there. For example, it turns out true human flourishing does not involve getting married, having sex, or having children; Jesus’ perfect life of flourishing featured none of these things.

But crucially, Jesus’ perfect life often involved depending upon others; upon being a burden to those around him. As an itinerant travelling teacher, Jesus relied on the financial support of his followers to make his ministry possible. He relied on being made and given food to eat, and a roof to sleep under. He was far from self-sufficient. Rather, he gladly made himself a burden to others in service of his ministry.

But more than this, we often overlook the radical significance of the Christian claim that, at Christmas, we celebrate God’s becoming a baby. For the first years of his perfect life, Jesus was entirely – entirely – dependent upon his parents for all his needs. Here we see God, in the person of Jesus, depending upon Mary and Joseph to feed him, to clothe him, to cuddle him, to clean up his sick and his excrement. This is what human flourishing looks like.

This is mirrored at his glorious death, too. Prior to his arrest, Jesus asked his friends for support; to stay awake while he prays for comfort. The Gospels go on to tell us that, having been mercilessly tortured, beaten, stripped, and interrogated, Jesus had his cross carried by a man named Simon of Cyrene. After his death, having no tomb of his own, Jesus was buried in the family tomb of his follower Joseph of Arimathea. And this, too, is what human flourishing looks like.

Throughout his entire life Jesus lived the perfect life of human joy and faithfulness. And this often involved depending upon others and being a burden to them in every way conceivable. We are made to be a burden, then. To depend on others, to be burdensome to them, is to be human.

To think, then, with Baroness Hale, that my dependency and burdensomeness upon others might somehow serve to underwrite a decision to end my life, is fraught with difficulty for me as a Christian. I simply cannot reconcile her words with the life I see Jesus living in the Bible: a life of joyful, difficult burdensomeness.

There may be many other reasons why people decide they want their lives to end. But a sense of burdening others ought not to be one of them. Being a burden is not a reason to bring one’s life to an end, because it is the very possibility of our being human in the first place. To need others, to place ourselves into their care, does not make us less human, it makes us more human. And therein lies its glory.

Review

Culture

Film & TV

Suffering

17 July 2024

5 min read

Eternal Sunshine of the Spotless Mind: 20 years on

Memory and the meaning of suffering.

Beatrice Scudeler

Beatrice writes on literature, religion, the arts, and the family. Her published work can be found here.

A coupe sit on outdoor steps against a blue sky. One holds a plate and the other looks towards them.

Carrey and Winslet as Joel and Clementine.

Michel Gondry’s Eternal Sunshine of the Spotless Mind came out in 2004. Twenty years on, its stubborn insistence that the memory of pain gives meaning to our lives is as relevant as ever.

I first watched Gondry’s cult classic earlier this year, in the midst of recovering from postnatal PTSD. When we are faced with heartbreak, it can be easy to wish that we could retreat from painful memories, hiding them away until the initial pang has seemingly died down. That was my experience, at least. But I quickly learnt that the traumatic memory of my daughter’s birth would continue to resurface until I processed it and accepted it as part of my life. Just so, Eternal Sunshine of the Spotless Mind teaches us that being vulnerable to suffering is a gift, that suffering itself is necessary to our moral growth, and that our ability to remember the past is an invaluable faculty of the human mind.

The film begins simply, with a meeting between its protagonists, Joel Barish and Clementine Kruczynski. As Joel and Clementine start making small talk, they seem immediately comfortable, almost familiar with each other, and yet the atmosphere is eerie. Soon enough, we discover that Clementine was a patient at Lacuna, a clinic which erased every memory of Joel from her mind after their two-year relationship ended in a painful breakup. When Joel finds out, he asks Dr. Howard Mierzwiak, the director of Lacuna, to do the same for him. As viewers, we now start to wonder: was that meeting we witnessed their very first, or have they met again after their memories were erased, unaware that they loved each other in a ‘past’ life?

This tone of disorientation continues throughout the film, and that’s what makes it so special. As Joel’s memories of Clementine are erased one by one, he realises that the removal of one’s painful experiences is in itself a kind of trauma; what promises to be a relief, turns out to be nothing more than loss.

We experience this sense of disorientation and loss alongside Joel as we jump through snippets of his and Clementine’s happiest and saddest moments together, trying to piece together in our minds a linear narrative of their relationship. While this is happening, the film’s subplot focuses on Stan, Patrick, and Mary, three young people working for Lacuna. As Stan and Patrick, the ‘technicians’, work on Joel’s memory removal, Mary, Lacuna’s naive receptionist, muses on the beauty of their mission. She begins quoting aloud the passage of poetry which inspires the film’s very title, taken from Alexander Pope’s verse epistle Eloisa to Abelard (1717):

How happy is the blameless vestal’s lot!

The world forgetting, by the world forgot.

Eternal sunshine of the spotless mind!

Each pray’r accepted, and each wish resign’d.

Mary has an idealistic vision of her work: she believes she is helping suffering people experience the kind of ‘eternal sunshine’ that only a ‘spotless mind’ can achieve. But the human mind is not so simple. Joel’s desire for forgetfulness quickly turns nightmarish. As he realises he has made a mistake, he starts fighting to retain the memory of his love for Clementine, but his is a hopeless quest. Dr. Mierzwiak’s intervention ensures that the procedure is completed.

Left alone without Stan and Patrick, Mary confesses to the married Dr. Mierzwiak that she is in love with him. It is at this point that her idealism crumbles down. He reveals that they’ve already had an affair in the past and that she agreed to let him erase its memory from her mind. Mary is devastated. She decides that what Lacuna is doing is unethical - even if Mierzwiak technically has the patients’ consent to the procedure - and releases the clinic’s files back to the patients. It is this decision which leads Clementine and Joel, just a few days after they ‘meet’ again, to discover that they’ve already loved each other in the past.

Accepting suffering and holding it in our hearts, not with bitterness, but rather with courage, requires endless patience and infinite hope.

Although the script of the film doesn’t spell it out, Mary’s story emphasises that the absence of painful memories is in itself experienced as a painful loss. What’s more, it shows that, without the memory of the suffering which we have inflicted on others, and which others have inflicted on us, we are incapable of moral growth. Thanks to the knowledge of the past, Mary is able, this time around, to resist having an affair with a married man. Just so, the final scene of the film, which sees Joel and Clementine vow to renew their relationship, is hopeful not in spite of the fact that they have regained the memory of the ways in which they hurt each other in the past, but precisely because of it.

Accepting suffering and holding it in our hearts, not with bitterness, but rather with courage, requires endless patience and infinite hope. But that is what we were made for. Each one of us is called to endure pain in imitation of Christ, and, out of that pain, to discover a greater capacity for sacrificial love. We make meaning out of pain: that’s what human beings do.

The very last lines of Eternal Sunshine of the Spotless Mind perfectly express the fruits of this Christ-like acceptance. As Joel reassures Clementine that he can’t see anything he doesn’t like about her, she expresses her doubts and anxieties: ‘But you will! But you will.’, she repeats, ‘You know, you will think of things. And I’ll get bored with you and feel trapped because that’s what happens with me.’ Joel and Clementine look at each other, and, after a pause, they simply say to each other: ‘Okay’. Their ‘okay’ is not an indication that they are doomed to repeat old mistakes. Rather, it signals a new choice: this time, when their relationship becomes difficult, they won’t just run away; this time, they will face discomfort, heartbreak, and disappointment, armed with the knowledge that seeking a sense of permanence by loving another person completely is an inherently valuable pursuit. In accepting the most traumatic parts of our past we grow closer to God; and in bravely deciding to look ahead to the future with hope, we catch a glimpse of the unadulterated joy which we will finally experience in God’s eternity.