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Assisted dying's language points to all our futures

Translating ‘lethal injection’ from Dutch releases the strange power of words.
A vial and syringe lie on a blue backdrop.
Markus Spiske on Unsplash.

In the coming weeks and months, MPs at Westminster will debate a draft bill which proposes a change in the law with regards to assisted dying in the UK. They will scrutinise every word of that bill. Language matters. 

Reading the coverage, with a particular interest in how such changes to the law have been operationalised in other countries, I was struck to discover that the term in Dutch for dying by means of a fatal injection of drugs is “de verlossende injectie.” This, when put through the rather clunky hands of Google translate, comes out literally as either “the redeeming injection” or “the releasing injection.” Of course, in English the term in more common parlance is “lethal injection”, which at first glance seems to carry neither of the possible Dutch meanings. But read on, and you will find out (as I did) that sometimes our words mean much more than we realise.   

Writing for Seen & Unseen readers, I explained a quirk of the brain that tricked them into thinking that the word car meant bicycle. Such is the mysterious world of neuroplasticity, but such also is the mysterious world of spoken language, where certain combinations of orally produced ‘sounds’ are designated to be ‘words’ which are assumed to be indicators of ‘meaning’. Such meanings are slippery things.  

This slipperiness has long been a preoccupation for philosophers of language. How do words come to indicate or delineate particular things? How come words can change their meanings? How is it that, if a friend tells you that they got hammered on Friday night, you instinctively know it had nothing to do with street violence or DIY? Why is it that in the eighteenth century it was a compliment to be called ‘silly’, but now it is an insult?  

Some words are so pregnant with possible meaning, they almost cease to have a meaning. What does “God” mean when you hear someone shout “Oh my God!”? Probably nothing at all, or very little. It is just a sound, surely? And yet no other sound has ever succeeded in fully replacing it. We are using the term “God”, as theologian Rowan Williams points out in his book The Edge of Words, as a “one-word folk poem” to refer to whatever we feel is out of our control.     

Both of these first two interpretations look at death, in some sense, ‘from the other side’ – evaluating the end of someone’s life in terms of speculation over what will happen next. 

This idea of an injection being verlossende seems to me to be the opposite. I find myself hearing it in four different (and not mutually exclusive) ways, each to do with taking control of this very uncertain question of dying. The first, releasing, sounds to me like an echo of the neo-platonic ideas that still infuse public consciousness about what it means to be dead. As we slimily carve our pumpkins for Halloween and the children clamour to cut eyeholes into perfectly good bedsheets, we see a demonstration of society’s latent belief that humans are made up of body and soul, and that at death the soul somehow leaves the body and floats into some unknown realm (or else remains, disembodied yet haunting). If we translate verlossende as releasing then we capture that idea – that of the soul, which longs to be at peace, trapped inside suffering, mortal flesh. 

Google’s second suggestion for verlossende was redeeming. This could be heard theologically. Christians believe in eternal life, that the death of this earthly body is only the start of something new – a life where there will be no crying or pain, and people will live forever in the glorious presence of God. In the bible, the apostle Paul encourages those who follow Christ to trust that they have been marked with a ‘seal’, meaning that they are like goods which have been purchased for a price, and that God will ‘redeem’ this purchase at the appointed time. Death, therefore, is not a fearful entering into the unknown, but a faithful entering into God’s promises.  

Both of these first two interpretations look at death, in some sense, ‘from the other side’ – evaluating the end of someone’s life in terms of speculation over what will happen next. But there is the view from this ‘side’ also. We do not need to speculate about what death means for some of those who experience acute suffering due to terminal illness, and who wish to hasten the end of their lives because of it. They too might want to speak of a releasing injection or a redeeming injection – given that both terms hint at the metaphor of life as a prison sentence. To be in prison is to have one’s rights and freedoms severely limited or entirely taken away. It is not uncommon to hear a sufferer refer to incapacitating illness as being ‘like a prison sentence’, and one can empathise with the desire to have the release date set, back within the sufferer’s control.  

This is the strange power and pregnancy of words – verlossende is able to carry all these meanings or none of them. Until I began researching this article, I had always assumed that the English term, lethal injection, simply meant an injection of some substance that is deadly. This is how the term is commonly understood, therefore, in a sense, this is its meaning. Yet, when I came to consider the possible origins of the word, I realised its likely etymology is from the Greek word lēthē, meaning ‘to forget’. In the Middle Ages, if something was lethal it caused not just death, but spiritual death, placing one beyond the prospect of everlasting life. By contrast, something could be fatal, meaning only that it brought one to one’s destiny or fate.  

With this in mind, as we try to speak clearly in the assisted dying debate, the term fatal injection might be a more precise way to describe this pathway to death that is in want of a name. After all, whether you believe in an afterlife or not, dying is everybody’s fate, and I can see that choosing to take control of one’s fate is, for anyone, an act of faith with regards to what comes next.  

  

This article was part-inspired by Theo Boer’s original article Euthanasia of young psychiatric patients cannot be carried out carefully enough, in Dutch newspaper Nederlands Dagblad.  Theo is a professor of health ethics at the Protestant Theology University, Utrecht. 

Read the original article in Dutch or an English translation below. Reproduced by permission.

 

 

Euthanasia of young psychiatric patients cannot be carried out carefully enough 

Theo Boer 

How is it possible to determine that patients who have suffered from psychiatric disorders for five or ten years and who are between the ages of 17 and 30 have ‘completed their treatment options’, wonders Theo Boer. It also conflicts with perhaps the most important task of psychiatrists: ‘offering hope.’  

The patients we are talking about now are not physically ill and therefore do not have the ‘comfort’ of an impending natural death. 

A letter was recently leaked in which leading psychiatrists ask the Public Prosecution Service to investigate the course of events surrounding euthanasia of young psychiatric patients.  

One death mentioned by name concerns seventeen-year-old Milou Verhoof, who received the redeeming injection from psychiatrist Menno Oosterhoff at the end of 2023. It will not have escaped many people's attention how much publicity the topic has received in the past year or so. Together with a colleague and a patient (who later also received euthanasia), Oosterhoff wrote the book Let me go.  

The tenor was: it is good that euthanasia is possible for this group of patients, the taboo must be removed, their suffering is often terrible, they have already had to undergo countless 'therapies' without effect - can one time be enough?  

Or would we rather have these patients end their lives in a gruesome way? And who really thinks that psychiatrists make hasty decisions when they decide to comply with a euthanasia request?  

To be clear: we are talking about something completely different than what has been called 'traditional euthanasia' for years: euthanasia for physically ill patients with a life expectancy of weeks or months. Given the excellent palliative care that has become available, such euthanasia will actually be less and less necessary in 2024.  

Panic  

No, the patients we are talking about now are panicky, anxious, confused, depressed, lonely, often unemployed, poorly housed, without prospects. But they are not physically ill and therefore do not have the 'comfort' of an impending natural death.  

I have heard several of them say: if only I were terminal, then euthanasia would not be necessary. The fact that there is now attention for this group of patients, with whom we in our hurried and solution-oriented society know so little how to deal, is a gain. At the same time, I am happy with the leaked letter. You can criticize Oosterhoff's procedural approach ('why not an ethical discussion instead of a legal one?'), the lack of collegiality, this perhaps underhanded action ('why did you go straight to the Public Prosecution Service?'). But in my opinion, the letter writers are definitely hitting the mark with this crooked stick. Firstly: how is it possible to determine that patients who have suffered from psychiatric disorders for five or ten years and who are between the ages of 17 and 30 have ‘completed their treatment options’ (a criterion from the Euthanasia Act)?  

Review Committee  

Nobody disputes that their suffering is unbearable. At the same time, I know from my time on a Regional Euthanasia Review Committee that an illness becomes unbearable when all hope is gone.  

A psychiatrist who gives euthanasia to a young adult is also undeniably sending the signal that, like his patient, he has given up all hope of improvement. That is actually risky, because even patients who have suffered for years sometimes recover and, moreover, our brains are not fully developed until we are 25. But it also conflicts with perhaps the most important task of psychiatrists: offering hope. In their training, the risk of transference-counter-transference is consistently pointed out: a patient takes his therapist with him into despair, the psychiatrist transfers those feelings to this and other patients: ‘this kind of suffering is untreatable and cannot be lived with’.  

In the recent NPO television documentary A Good Death we see an embrace between a psychiatrist and her emotional patient. In doing so, this psychiatrist offers a unique form of involvement. But does she provide sufficient resistance to the cynicism, despair and negative vision of the future that is also widespread outside psychiatry?  

Sensible decisions?  

That brings me to a second objection: is it sufficiently recognised how much a psychiatric illness can affect someone’s ability to make sensible decisions? The hallmark of many psychiatric illnesses is a deep desire to die and an inability to think about it in a relative way. As a result, many are unable to think in terms of a ‘possibly successful therapy’.  

Boudewijn Chabot 

The main character in the book Zelf heeft by Boudewijn Chabot, Netty Boomsma, responds to Chabot's suggestion that there might be a life after depression: 'Yes, but then I won't be it anymore.' She wants to go down with her depression. I know differences. The people with a death wish who remark about a possible therapy: ‘I hope it is not effective, because then I will have to go through it again.’ 

 Another hurdle 

If a second psychiatrist is consulted and, for example, suggests trying one or two more therapies, many patients see this as yet another hurdle on the road to euthanasia. They do not see it as a serious opportunity to be able to cope with life again. There are no easy answers here. Nor are pillories appropriate. But let euthanasia remain complicated here, and let us continue to look for hope. 

 

Reproduced by kind permission

Article
Belief
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Music
7 min read

10 things I learned from Reading Festival's teenagers

Some uplifting down time.

Krish is a social entrepreneur partnering across civil society, faith communities, government and philanthropy. He founded The Sanctuary Foundation.

Festival goers, in a cafe tent, make drinks or sit around talking
Time out in the Street Pastors cafe.
Reading Street Pastors.

Last weekend I was at Reading Festival which has become a rite of passage for teenagers from across the UK. Over 105,000 young people turn up to the festival for a weekend of music and mayhem. The typical guest has just received their GCSE results, and heads for Reading, or its twin festival in Leeds, to reflect on what they are going to do next. Headliners this year included artists such as Lana Del Rey, Raye, Prodigy, Beadobee and Liam Gallagher.  

My role at the Festival was as a volunteer with Reading Street Pastors who offer a 24-hour safe, warm and dry space. They provide a vital service for these young people, many of whom find their first festival experience very overwhelming. Volunteers serve a ‘Mountain’ of hot chocolate, loaded with cream and marshmallows, or ‘Liquid Death’ – a rebranded aluminium recyclable can of water - along with a friendly face or a listening ear.  

I got to spend time over the weekend with hundreds of teenagers who were prepared to spend hours in the safe space because their tents had collapsed, or they had forgotten to bring anything warm to wear, or their phone batteries were dead or because their friends had ditched them. I found our open-ended conversations insightful, and offered me the opportunity to learn a lot about the upcoming generation. Here are some of my observations:   

1. They're brilliant  

Too often, young people are written off as being uncommunicative, narcissistic, or addicted to social media, but given the chance, they are excellent conversationalists. I thoroughly enjoyed their company; they asked great questions, shared big ideas and offered honest, if surprising, opinions. It was actually a pleasure to spend time with them and I totally recommend it – even, or especially, at 6am in the morning.  

2. They appreciate their parents  

Of course, most of them wouldn’t tell their parents this, but to me, a total stranger, it appeared that they recognized and appreciated the influence of their parents. This was evident not only in those young people who were missing home and home comforts, but even in their music tastes. The band The Prodigy, who performed on the first night, stem from my era of music, and encompass dance, house, and rave culture. I heard many young people claim they were listening to them, or Liam Gallagher from Oasis, because “my mum/dad love them”.  Music is quite a connecting point between generations, it turns out.  

3. There’s a diverse range of political engagement

There was a wide range of understanding and interest in politics among these young people. I spoke to many who didn't seem to care about politics, feeling that politicians don't care about them and questioning why they should bother if they can't make a difference. However, I also met many politically connected and aware individuals, some of whom were aspiring to study at universities like Durham, Oxford, or Cambridge. These engaged youths expressed frustration, feeling let down by the political system and believing that politicians don't have their best interests at heart. They were aware of issues like tax increases and broken promises by political parties and expressed a sense of distrust and disillusionment. This disengagement is a significant problem, as it leaves young people vulnerable to populism. Some mentioned that in school elections, more right-wing parties were gaining attention because they seemed to take young people seriously, which I found fascinating and concerning. 

4. There’s a lack of hope

I noticed many of the young people I spoke to didn't have a lot of hope for the future. Their huge outlay of £350+ on the weekend appeared to be evidence: many of them expressed resignation that they would never be able to own a house, or were worried about the escalation of global events such as the conflict in the Middle East and Ukraine. While social media is often blamed for creating anxiety in this generation, it seems that global events and mainstream media also play significant roles in shaping their perceptions and values.  

Mental health and especially male mental health seem to have turned a corner. 

5. There are conflicting views on the environment 

Despite numerous advertisements and incentives for people to clean up after themselves at the festival, it was clear that there were two sorts of campers. While some picked up their own litter – and that of those around them, others had no intention of even taking their tent home at the end. Every year after the Reading festival, the site looks like a disaster zone, as if a hurricane has blown through, the aerial shots released of the aftermath remind me of the movie Twisters. Another wave of volunteers comes in to help clear away the debris. However, I heard one young person say: "My mum and dad didn't raise me to live this way."  Young people are not a monolithic group, and we shouldn't expect them to be. We can’t tar them all with the same brush. Some may not care about the mess they leave behind them, but others really do.   

6. Queueing is dying 

Maybe it has always been this way, and I am just getting too old for it but it seems nobody respects my tactic of getting to the front to see the big-name band by arriving at the venue early, waiting for the barrier gates to open and then picking your spot and waiting. At Reading Festival, I’ve learned that about 5 minutes before the band comes on, there’s a sudden surge of people who snake their way through the crowd claiming to be ‘just finding their friends’. I didn’t see any great reunifications. What I saw was disrespect of the good old British value of queuing. The problem is I’m too old to remember whether I did that as a teenager too.  

7. Faith is not embarrassing 

The safe space run by the Reading Street Pastors was busy. Maybe it was due to the torrential downpour that left many tents uninhabitable, but I remember it being the same last year. The young people seemed to appreciate not only the company, hot chocolate and warm blanket, but also the opportunity to chat. Volunteers offer their help to all without distinction, whatever faith background they are from. But faith often came up in conversation. I heard: “Why do you run this tent?” “Why are you volunteering here?” “Are you guys religious?” “What does it mean to be a Christian?” “What are the best bits of the Bible to read when you are feeling lonely?” “What does the Bible say about drugs?” “Can you help me with the religion and ethics questions for my A-level Philosophy coursework?” Overall, faith was discussed openly, as something interesting and positive.  

8. Mental health issues are losing their stigma 

At 6.30am a huge security guard walked into our safe space and during the long conversation that ensued, what struck me was his openness about his mental health and anxiety. There was no stigma, no shame, in talking to me, a stranger, about his struggles. He was not the only one to be open about his mental health issues and it felt like a very healthy development in our society. Mental health and especially male mental health seem to have turned a corner.  

9. Teenagers need to learn survival skills  

Shivering in our safe space at 6.05 in the morning was a lad who had come to the Reading Festival with only his t-shirt and jeans. He didn’t even think he might need a coat, let alone a waterproof tent. At the other end of the space was a lad with a full-on Calor-gas stove, whipping up some nourishing pasta-based meals for his friends. It was clear to see which of the two 16-year-olds had done the Duke of Edinburgh scheme. The expedition training and experience has given him survival skills for life.  

10. Music is a grand uniter

In my day, music fans would be glued to their television screens on a Thursday night as we waited to hear who had the number one single of the week. That hour of the week was part of our shared cultural identity and everyone was talking about it at school the next day. Nowadays, Youtube, Spotify and the other infinite ways to access music has taken away the grand unifying cultural portal that was Top Of The Pops. Yet, somehow, they provide young people with diploma-level knowledge in popular music through the decades. They all know not only the breakthrough artists and latest hits, but lyrics to everything from Sabrina Carpenter and Lana Del Ray to Oasis. On a warm summer’s evening, with the sun setting there’s something very beautiful about a crowd of 70,000 people singing songs together.