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Assisted dying's language points to all our futures

Translating ‘lethal injection’ from Dutch releases the strange power of words.
A vial and syringe lie on a blue backdrop.
Markus Spiske on Unsplash.

In the coming weeks and months, MPs at Westminster will debate a draft bill which proposes a change in the law with regards to assisted dying in the UK. They will scrutinise every word of that bill. Language matters. 

Reading the coverage, with a particular interest in how such changes to the law have been operationalised in other countries, I was struck to discover that the term in Dutch for dying by means of a fatal injection of drugs is “de verlossende injectie.” This, when put through the rather clunky hands of Google translate, comes out literally as either “the redeeming injection” or “the releasing injection.” Of course, in English the term in more common parlance is “lethal injection”, which at first glance seems to carry neither of the possible Dutch meanings. But read on, and you will find out (as I did) that sometimes our words mean much more than we realise.   

Writing for Seen & Unseen readers, I explained a quirk of the brain that tricked them into thinking that the word car meant bicycle. Such is the mysterious world of neuroplasticity, but such also is the mysterious world of spoken language, where certain combinations of orally produced ‘sounds’ are designated to be ‘words’ which are assumed to be indicators of ‘meaning’. Such meanings are slippery things.  

This slipperiness has long been a preoccupation for philosophers of language. How do words come to indicate or delineate particular things? How come words can change their meanings? How is it that, if a friend tells you that they got hammered on Friday night, you instinctively know it had nothing to do with street violence or DIY? Why is it that in the eighteenth century it was a compliment to be called ‘silly’, but now it is an insult?  

Some words are so pregnant with possible meaning, they almost cease to have a meaning. What does “God” mean when you hear someone shout “Oh my God!”? Probably nothing at all, or very little. It is just a sound, surely? And yet no other sound has ever succeeded in fully replacing it. We are using the term “God”, as theologian Rowan Williams points out in his book The Edge of Words, as a “one-word folk poem” to refer to whatever we feel is out of our control.     

Both of these first two interpretations look at death, in some sense, ‘from the other side’ – evaluating the end of someone’s life in terms of speculation over what will happen next. 

This idea of an injection being verlossende seems to me to be the opposite. I find myself hearing it in four different (and not mutually exclusive) ways, each to do with taking control of this very uncertain question of dying. The first, releasing, sounds to me like an echo of the neo-platonic ideas that still infuse public consciousness about what it means to be dead. As we slimily carve our pumpkins for Halloween and the children clamour to cut eyeholes into perfectly good bedsheets, we see a demonstration of society’s latent belief that humans are made up of body and soul, and that at death the soul somehow leaves the body and floats into some unknown realm (or else remains, disembodied yet haunting). If we translate verlossende as releasing then we capture that idea – that of the soul, which longs to be at peace, trapped inside suffering, mortal flesh. 

Google’s second suggestion for verlossende was redeeming. This could be heard theologically. Christians believe in eternal life, that the death of this earthly body is only the start of something new – a life where there will be no crying or pain, and people will live forever in the glorious presence of God. In the bible, the apostle Paul encourages those who follow Christ to trust that they have been marked with a ‘seal’, meaning that they are like goods which have been purchased for a price, and that God will ‘redeem’ this purchase at the appointed time. Death, therefore, is not a fearful entering into the unknown, but a faithful entering into God’s promises.  

Both of these first two interpretations look at death, in some sense, ‘from the other side’ – evaluating the end of someone’s life in terms of speculation over what will happen next. But there is the view from this ‘side’ also. We do not need to speculate about what death means for some of those who experience acute suffering due to terminal illness, and who wish to hasten the end of their lives because of it. They too might want to speak of a releasing injection or a redeeming injection – given that both terms hint at the metaphor of life as a prison sentence. To be in prison is to have one’s rights and freedoms severely limited or entirely taken away. It is not uncommon to hear a sufferer refer to incapacitating illness as being ‘like a prison sentence’, and one can empathise with the desire to have the release date set, back within the sufferer’s control.  

This is the strange power and pregnancy of words – verlossende is able to carry all these meanings or none of them. Until I began researching this article, I had always assumed that the English term, lethal injection, simply meant an injection of some substance that is deadly. This is how the term is commonly understood, therefore, in a sense, this is its meaning. Yet, when I came to consider the possible origins of the word, I realised its likely etymology is from the Greek word lēthē, meaning ‘to forget’. In the Middle Ages, if something was lethal it caused not just death, but spiritual death, placing one beyond the prospect of everlasting life. By contrast, something could be fatal, meaning only that it brought one to one’s destiny or fate.  

With this in mind, as we try to speak clearly in the assisted dying debate, the term fatal injection might be a more precise way to describe this pathway to death that is in want of a name. After all, whether you believe in an afterlife or not, dying is everybody’s fate, and I can see that choosing to take control of one’s fate is, for anyone, an act of faith with regards to what comes next.  

  

This article was part-inspired by Theo Boer’s original article Euthanasia of young psychiatric patients cannot be carried out carefully enough, in Dutch newspaper Nederlands Dagblad.  Theo is a professor of health ethics at the Protestant Theology University, Utrecht. 

Read the original article in Dutch or an English translation below. Reproduced by permission.

 

 

Euthanasia of young psychiatric patients cannot be carried out carefully enough 

Theo Boer 

How is it possible to determine that patients who have suffered from psychiatric disorders for five or ten years and who are between the ages of 17 and 30 have ‘completed their treatment options’, wonders Theo Boer. It also conflicts with perhaps the most important task of psychiatrists: ‘offering hope.’  

The patients we are talking about now are not physically ill and therefore do not have the ‘comfort’ of an impending natural death. 

A letter was recently leaked in which leading psychiatrists ask the Public Prosecution Service to investigate the course of events surrounding euthanasia of young psychiatric patients.  

One death mentioned by name concerns seventeen-year-old Milou Verhoof, who received the redeeming injection from psychiatrist Menno Oosterhoff at the end of 2023. It will not have escaped many people's attention how much publicity the topic has received in the past year or so. Together with a colleague and a patient (who later also received euthanasia), Oosterhoff wrote the book Let me go.  

The tenor was: it is good that euthanasia is possible for this group of patients, the taboo must be removed, their suffering is often terrible, they have already had to undergo countless 'therapies' without effect - can one time be enough?  

Or would we rather have these patients end their lives in a gruesome way? And who really thinks that psychiatrists make hasty decisions when they decide to comply with a euthanasia request?  

To be clear: we are talking about something completely different than what has been called 'traditional euthanasia' for years: euthanasia for physically ill patients with a life expectancy of weeks or months. Given the excellent palliative care that has become available, such euthanasia will actually be less and less necessary in 2024.  

Panic  

No, the patients we are talking about now are panicky, anxious, confused, depressed, lonely, often unemployed, poorly housed, without prospects. But they are not physically ill and therefore do not have the 'comfort' of an impending natural death.  

I have heard several of them say: if only I were terminal, then euthanasia would not be necessary. The fact that there is now attention for this group of patients, with whom we in our hurried and solution-oriented society know so little how to deal, is a gain. At the same time, I am happy with the leaked letter. You can criticize Oosterhoff's procedural approach ('why not an ethical discussion instead of a legal one?'), the lack of collegiality, this perhaps underhanded action ('why did you go straight to the Public Prosecution Service?'). But in my opinion, the letter writers are definitely hitting the mark with this crooked stick. Firstly: how is it possible to determine that patients who have suffered from psychiatric disorders for five or ten years and who are between the ages of 17 and 30 have ‘completed their treatment options’ (a criterion from the Euthanasia Act)?  

Review Committee  

Nobody disputes that their suffering is unbearable. At the same time, I know from my time on a Regional Euthanasia Review Committee that an illness becomes unbearable when all hope is gone.  

A psychiatrist who gives euthanasia to a young adult is also undeniably sending the signal that, like his patient, he has given up all hope of improvement. That is actually risky, because even patients who have suffered for years sometimes recover and, moreover, our brains are not fully developed until we are 25. But it also conflicts with perhaps the most important task of psychiatrists: offering hope. In their training, the risk of transference-counter-transference is consistently pointed out: a patient takes his therapist with him into despair, the psychiatrist transfers those feelings to this and other patients: ‘this kind of suffering is untreatable and cannot be lived with’.  

In the recent NPO television documentary A Good Death we see an embrace between a psychiatrist and her emotional patient. In doing so, this psychiatrist offers a unique form of involvement. But does she provide sufficient resistance to the cynicism, despair and negative vision of the future that is also widespread outside psychiatry?  

Sensible decisions?  

That brings me to a second objection: is it sufficiently recognised how much a psychiatric illness can affect someone’s ability to make sensible decisions? The hallmark of many psychiatric illnesses is a deep desire to die and an inability to think about it in a relative way. As a result, many are unable to think in terms of a ‘possibly successful therapy’.  

Boudewijn Chabot 

The main character in the book Zelf heeft by Boudewijn Chabot, Netty Boomsma, responds to Chabot's suggestion that there might be a life after depression: 'Yes, but then I won't be it anymore.' She wants to go down with her depression. I know differences. The people with a death wish who remark about a possible therapy: ‘I hope it is not effective, because then I will have to go through it again.’ 

 Another hurdle 

If a second psychiatrist is consulted and, for example, suggests trying one or two more therapies, many patients see this as yet another hurdle on the road to euthanasia. They do not see it as a serious opportunity to be able to cope with life again. There are no easy answers here. Nor are pillories appropriate. But let euthanasia remain complicated here, and let us continue to look for hope. 

 

Reproduced by kind permission

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Sport
5 min read

What’s Simone Biles doing today?

How to live with winning and losing.

Juila is a writer and social justice advocate. 

A gold medallist bites her medal.
Simone's gold medal moment.
@simonebiles

I wonder about what Simone Biles is doing today. She is one of the many athletes whose Paris 2024 was about more than gold; it was about redemption. Now the Games are over, what happens to their restoration story?  

The narrative about redemption seemed to dominate the headlines and linger in post-event interviews. Some Olympians came to the Games seeking it. Gymnast Rhys McClenaghan was tipped for gold in Tokyo 2020 but stumbled on the pommel horse, finishing in seventh place. In France, he climbed to the top of the podium.  

Others completed a fall and rise within the two weeks themselves. Sprinter Jeremiah Azu had a faltering beginning to the Games, disqualified for a false start in the individual 100m heat. Just six days later he was clutching a bronze medal for the relay.  

Then there are those like taekwondo athlete, Jade Jones, who also laboured for years and gave their all – but didn’t get the payoff that they sought. What does the story mean when it is unfulfilled? And when the Games are over, how do people live with winning and losing?  

Into our messy, maybe frightening, sometimes ordinary, lives, we love a redemption story to brighten and neaten things up. 

After years of professional procrastination, a few months ago I finally took the plunge and joined LinkedIn. An impressive feat, I know. It was driven by practicality; I was finishing a job as a climate policy advocate and making the leap into consultancy. But I’ve been fascinated to discover how people in my community, and millions of others, are sharing tender and vulnerable ideas and thoughts in this social workspace. They are coming with questions – what does success look like? How are you navigating your purpose in the day to day? What world do you want your children to inherit? – and gentle ideas about their answers.  

People are asking about and reflecting on how to navigate winning, and losing, and living in the murky space in between.  

This feels striking because one of the other prevalent stories many of us believe, maybe unconsciously, is that life will generally be good and any setbacks are the exception. Growing up in the Nineties the message seemed to be: the world is your oyster if you work for it. Put in the effort, and the losses will be few and the trajectory will be up.  

But the last few years in particular – economic volatility, growing exposure of deep inequalities, the worsening climate crisis – hammer home that this is not reliably the case. No matter how much effort you put in, we rarely live through one type of season at a time. Joy and suffering co-exist. And amongst the highs and the lows, there is a whole lot of everyday living. Show up at the desk, the school gate, the supermarket.   

Into our messy, maybe frightening, sometimes ordinary, lives, we love a redemption story to brighten and neaten things up.  

The sting of winning or losing is softened when we stop ascribing all meaning to them, and instead cast them in the context of a wider story. 

But part of the problem with many of the redemption tales we share is that they rely on the person themselves to deliver their own restoration. They’ve had (and are perhaps blamed for) a fall from grace, and now it’s up to them to find it within themselves – their physical, mental and emotional capacity – to achieve restoration. That’s a heavy weight to put on anyone’s shoulders (however broad they may be).  

And any redemption gained is fleeting. Medal winners talk about ‘gold medal syndrome’: the post-competition feeling of depression, loneliness and emptiness. For those athletes who’ve now headed home after fulfilling a salvation arc, is the emotional dip going to be even steeper, harder?  

Most of us won’t be Olympians, despite how expertly we discuss the diving scores every four years, but that sense of deflation after achieving a long-sought goal can be resonant. We’ve strived and risked ourselves for something, only to find the aftertaste is a bit flat. That new job is good but flawed. Winning that award doesn’t stop a rejection landing in the inbox the next day. The house renovations are already showing cracks. Winning and losing are both transient. A redemption made ourselves rarely satisfies or lasts. 

The sting of winning or losing is softened when we stop ascribing all meaning to them, and instead cast them in the context of a wider story. One that goes further than a single person or moment – a birth, a podium, a bonus. Such a story can speak beyond our own lives to the core challenges we face in the world: fairness into a broken economic system; peace instead of violence in our communities; flourishing, not escalating environmental crises.   

During my years of climate advocacy, I have sometimes envied colleagues working on more tightly defined topics with the possibility (only fulfilled through huge amounts of wisdom and graft, of course) of winning. Change a law, solve a problem. As the climate gets warmer and more unpredictable, it’s easy to have a sense that, at best, you are just making things a little less bad. The wins are in the context of a lot of disappointments, and a whole lot more grey space in between. 

But by being able to root my day to day in a bigger story, I can move forward with hope. Understanding our lives as part of an even greater narrative – the story of this world that God loves and sustains and restores – saves us from the pressure and heartache of trying to redeem our own lives. Instead, we can live them – the wins, the losses, and all the mundane moments in between – in light of that bigger story.  

Looking at the world through the lens of God’s redemption story helps us to stay clear-sighted: celebrating the successes and not make them our whole world; naming the problems and still acting with hope and grit. 

A redemption arc is a beautiful one. I want to hold onto that longing, but find it in a story that’s deeper, longer and richer than I can see. A story that lasts.