Review
Comment
4 min read

Listen to their stories: five good reads by refugee writers

The very least we owe refugees is the courtesy of listening to their stories. As World Refugee Day approaches, Krish Kandiah calls us to go beyond the headlines and recommends five good reads.

Krish is a social entrepreneur partnering across civil society, faith communities, government and philanthropy. He founded The Sanctuary Foundation.

Two young brothers sit next to other, the younger looks to the elder.
Hamed Amiri, author of The Boy with Two Hearts, with his brother.

I heard them calling out to me as I walked down the street.  

“Hey Paki, why don’t you go black to your own country?!”  

I carried on walking. I was 14 years old, and I had heard it all before. In fact, I couldn’t remember a day when I didn’t face a similar verbal barrage at some point. It didn’t get any easier. It always hurt.  

When you are told something over and over again, you can start to believe it is true. But I wasn’t from Pakistan. None of my family members were from Pakistan. I had been born in the Sussex County Hospital in Brighton. I had a British passport – as did my parents.  

That group of people on the other side of the road were making judgments about me that were entirely wrong. I had to remind myself – like I did every day: they were the ones who were out of place, not me. They were the ridiculous ones, not me.  

I flashback to that moment sometimes as immigration persists as a top news story. Most days in the media I hear someone say today’s equivalent of “Hey Paki, why don’t you go back to your own country?!  The derision is there, the bigotry, the racism, the aim to exclude and to humiliate, the false assumptions and preconceptions.   

It’s time to hear the other side of the story. Who are the refugees that are coming here? Why are they coming? What has happened to them to make them stay in a country that is not always as welcoming as it should be? How does it feel to be an asylum-seeker or refugee in the UK right now? For refugees who have faced not just verbal abuse but physical assault, threats of torture and death the very least we owe them is the courtesy of listening to their stories. 

As we approach World Refugee Day on 20th June I would like to recommend you to spend some time listening not just to the polarising rhetoric but those about whom they are talking. The best way is to spend time in person with those who have been forced to flee their homes. The second-best way is to read books written by or about refugees. The following are some of the most powerful I have read recently:   

The Lightless Sky by Gulwali Passarly 

A book cover shows a the head and body of a person silhouetted against a dusty sky.

This beautifully written book will not only give you fresh insight into life in Afghanistan but will help you understand why there are unaccompanied asylum-seeking young Afghan boys in the UK. Gulwali explains his dangerous childhood in Afghanistan and why his family paid to have him taken out of the country. This book draws you into the world of a young boy proud of his heritage but fleeing a war zone that ripped his family apart. Gulwali’s journey takes him from the mountains of Afghanistan with his grandfather to a rollercoaster of a life in the UK and how he became a carrier of the Olympic torch and an outspoken advocate for refugee rights. 

The Boy with Two Hearts by Hamed Amiri 

A book cover collage shows two brothers above an outline of one of their heads against a desert background

I saw this gripping tale of Hamed and his family performed at the National Theatre in London. It begins with Hamed’s mother Fariba taking the brave decision to give a public speech against the injustices of the Taliban in Afghanistan. The Taliban issued an execution order against her which would likely have led to her death. The family sell their possessions and head out of Afghanistan to get anywhere they can to safety. There are added complications to their already challenging circumstances as Hussein, Hamed’s older brother needs urgent life-saving heart surgery. It’s a nail-biting story of love and loss told with grace as the family travel across seven countries to find sanctuary finally in Wales.

My Fourth Time, We Drowned by Sally Hayden 

A boat used for smuggling migrants is paraded in a protest. Death notices of dead migrants are attached to the side
A boat used for smuggling migrants is paraded in a Berlin protest. Dead migrants are commemorated by death notices attached to its side.

Sally Hayden did not plan to write a book about the world’s most dangerous migration route but when she received direct social media messages from refugees imprisoned in a Libyan detention centre her life was turned upside down. This gritty story has won numerous awards for outstanding journalism and opens up readers eyes to the desperate situation faced by asylum seekers in the Middle East and Europe. Sally writes with great precision and detail and offers a candid and challenging picture of life for those forced to flee from countries such as Sudan, Eritrea, Syria and Afghanistan.  

You Don’t Know What War Is by Yeva Skalietska   

A book cover shows an illustration of a sunflower against a blue background.

Yeva Skalietska, aged 12, was sleeping soundly in her bed at her grandmother’s house when suddenly she was jolted awake by a noise that sounded like a car being crushed into scrap metal. She soon came to realise that a rocket attack was taking place in her home city of Kharkiv, Ukraine. Her gripping tale of those first few weeks of the Russian invasion told from a child’s perspective somehow brings home the reality of war in a most chilling and urgent way. It made me consider how my children would have dealt with all she had to go through. 

No Place Like Home refugee book festival

If you would like to hear refugee authors such as the ones above telling their stories in person, the ‘No Place Like Home’ Literary Festival is taking place on World Refugee Day, 20th June, St Martin-in-the-Fields Church, Trafalgar Square. A full list of speakers, and tickets,  subject to availability, can be found in this link.

Article
Assisted dying
Comment
Life & Death
5 min read

The careless conflation of independence, autonomy and dignity

As Jersey begins to legalise assisted dying, there’s keyword confusion.
A elderly women in a care home stands and places her hands on the shoulders of a seated woman.
Eberhard Grossgasteiger on Unsplash.

Reviewing Canada’s legislation on assisted dying, one anonymously authored article raises the concern: “Does it make dying with dignity easier than living with dignity?” This insightful question cuts to the centre of the debate: dignity. Or more particularly, the unwitting conflation of dignity with independence, and of independence with autonomy.  

As Jersey becomes the first place in the British Isles to begin the process of legalising assisted dying, I feel that we should listen carefully as to how and where these terms are being used, both in the formal debate, and in the commentary that surrounds it. The States Assembly in Jersey voted to allow the development of assisted dying legislation for those with six months to live (or twelve months if their condition is neurodegenerative). A second vote to make assisted dying available more broadly to those who experience conditions that entail “unbearable suffering” was defeated by a narrower margin. Reading the flurry of press releases that followed the vote, these keywords, autonomy, independence, and dignity, are everywhere. But are we really thinking about what these words communicate?  

People in positions of wealth and power have more independence and autonomy, more choices and freedoms, but it is we who ascribe dignity to those in that position.

The word dignity comes from the Latin word dignus, meaning ‘worthy’, and this is still the primary definition given to the English word dignity today. The OED has it as “the quality of being worthy or honourable”, immediately followed by reference to “honourable or high estate”. If this is so, then dignity is not something that can be bought, nor assumed – it is a status conferred upon someone by the esteem in which other people hold them. The haughtiest person in the world can still be esteemed undignified, as can the richest. Moreover, the opposite is also true: we are never prevented from conferring dignity upon, and esteeming the worthiness of, those who live the humblest of lives.   

And yet, if we are honest with ourselves – do many of us not quietly associate the idea of becoming rich and powerful with becoming dignified? Do we not tend to assume the worthiness of those in high office – at least until we meet them and realise pretty quickly that they all put their trousers on one leg at a time, the same as the rest of us. This association happens because we have such a tendency to conflate dignity with independence (the ability to live without assistance from others) and autonomy (the ability to make one’s own decisions, and not have those decisions limited or interfered with). People in positions of wealth and power have more independence and autonomy, more choices and freedoms, but it is we who ascribe dignity to those in that position. It is society who sees the autonomy of those in high status, and esteems it as dignified.    

Does this not unwittingly suggest that choosing to live in a state of extreme dependence on palliative care is, by implication, undignified? 

Repeatedly ancient wisdom, in the bible, warns us not to assume that dignity comes with the freedom of wealth or power. All the great ‘heroes’ of that book suffer their indignities. Fresh from the success of his Ark project, Noah gets drunk and exposes himself. Elated from a victory against an enemy, King David dances half-naked through the streets. These are just two examples of the catalogue of embarrassments and mishaps that beset nearly all the kings and leaders whose stories are told as part of the Christian story. One after another, they stumble and struggle with life and leadership. The apostle Paul explains that this is because God uses the foolish things of this world to shame human pride, “for even the foolishness of God is still wiser than human wisdom.” Therefore, Paul argues, God chooses to speak to us through the weak and the lowly things and people of this world. Never was this demonstrated so clearly as when Jesus was born in a draughty stable, lived a life of poverty, and died a criminal’s death on a cross.  

But what has all this to do with the debate over assisted dying? Well, I am struck by how often the idea of losing one’s independence (through disabling or terminal illness) is conflated with losing one’s dignity, and so dying through personal choice (autonomy) is presented as regaining it. One campaign group that speaks to this debate even calls itself ‘Dignity in Dying’ – but does this not unwittingly suggest that choosing to live in a state of extreme dependence on palliative care is, by implication, undignified?  

Independence is not possible for everybody, or not possible to the same degree. And dignity? Well, dignity is possible for anyone. 

The Dean of Jersey, the Very Reverend Mike Keirle, has spoken of his concern that the change in legislation will make vulnerable people feel pressured to end their lives. Examples from Canada, where physician assisted dying is already available, show that his concern is not unfounded. In 2022, Canadian veteran and Paralympian Christine Gauthier phoned her caseworker to chase up the over-due installation of her new wheelchair ramp. She then describes how she was horrified to find herself being advised to consider assisted dying instead.  

"It is remotely just what they're doing,” says Gauthier, “exhausting us to the point of no return. […] I was like, 'Are you serious?' Like that easy, you're going to be helping me to die but you won't help me to live?"

Gauthier is not alone – she spoke out when she learned that four other Canadian veterans had reported similar experiences. In these unhappy moments, one can see how dangerous the assumption can be – the assumption that no one would want to live a life of needing help. Here are disabled people who do want to live, and this assumption, this careless conflation of independence, autonomy, and dignity, leaves them fighting for their right to do so. Why should anyone have to fight or even speak for their right not to commit suicide? It is little wonder that disabled actress, Liz Carr, describes assisted dying legislation as “terrifying” for disabled people. 

I respect that there are terminally ill people, and those who love them, who speak from a desire to end their suffering; it is clear that people on all sides of the debate need to have this difficult and emotionally charged conversation. But whatever the eventual outcome in terms of legislation, we must be careful that it is not based on careless assumptions, or on the conflation of one thing with an entirely different other. Independence is not possible for everybody, or not possible to the same degree. And dignity? Well, dignity is possible for anyone – it is a state that can be conferred whenever, and upon whomever society chooses to confer it. Autonomy is the matter in question – we are talking about autonomy in dying. And whatever happens, we should by no means legislate in a way that leaves disabled people esteemed unworthy, left open to the indignity of fighting for their right to live.