Love is easy to say but hard to live

Love is not a one-time event. It is a practice.

Elizabeth Wainwright

Elizabeth Wainwright is a writer, coach and walking guide. She's a former district councillor and has a background in international development.

A man stands and looks at a neon sign reading 'need love and... '

Chester Wade on Unsplash.

Over Easter, Christians contemplate the love that the cross represents. But what does love mean now, in the world as it is – and how do we live it?

Love is one of those words that feels easy to say but hard to live. Like interdependence, like justice, like forgiveness. It is a word that can quickly get bent out of shape – mistaken for romance, twisted into desire, flattened into niceness, reduced to an emotion or a feeling. Still, we reach for it, or an approximation of it. We know we need it; we know it is a good and important thing. And yet for something so important we are never taught how to do it. Author and critic bell hooks (sic) said, “schools for love do not exist. Everyone assumes that we will know how to love instinctively.”

The times we live in, though, are calling out for people who know how to love – for people who love well and who love much and who love like it has the power to heal and guide us – because the times we live in ask a lot. The forces and systems and ways of being that we’re so entangled with now are, I think, strengthened by lovelessness. Never-enough consumption, divisive politics, ruthless economics are all bolstered by lovelessness — by loneliness and othering and fear and greed. Still, like hooks, I think we “yearn to end the lovelessness that is so pervasive in our society.” She goes on: “To open our hearts more fully to love’s power and grace we must dare to acknowledge how little we know of love in both theory and practice…”

Sometimes though, it seems Christians are as clueless about how to love as anyone.

Christians should know something of love in theory and in practice. In the Bible, love is a command, love overcomes death, love serves, love lays down its life, love is God. Love is the cornerstone of all of it. Jesus calls another world into being when he tells his followers to not only love their neighbours, but to love their enemies too. He was consistently community-oriented in his teaching and living and loving, demonstrating love for his closest companions as well as for strangers and social outcasts. Love in the gospel is practical, unromantic, beautiful.

Sometimes though, it seems Christians are as clueless about how to love as anyone. If non-believers see judgement, infighting, division, or other signs of lovelessness when they look at the church and its members — when we Christians feel these things ourselves — then we know there is work to do. There is of course always work to do, even when we love well, because love is not a one-time event; it must keep flowing, it is a way of being, it is a practice.

A couple of the churches I went to early on in my Christian journey made me feel unwelcome. They were glossy, wealthy – not necessarily bad things in themselves, but here they felt like a silent sifter of belonging. Once, someone only half-jokingly corrected me for cutting the ‘nose’ off a wedge of cheese at a church event. I never felt relaxed, never myself. This was partly me, too – I realise lately that I have declined many invitations to belong. But the church we go to now is what I think perhaps an ideal church looks like. It’s an eclectic, scrappy group of people who tolerate some big differences in opinion and belief because they believe that love is bigger than those differences. There is no cancel culture, no shutting people out, though often it would be easier to do that than to stay, to keep coming back. A few weeks ago, I gave a sermon and in it, referenced the fact that over 30,000 people had been killed in Gaza, 70 per cent of whom were women and children. I said that if we were led by love – which is not selective, which is not reserved only for people we like the look of, which is never on the side of war and oppression – perhaps we might be doing what we could to make this dying stop: rage, protest, petition, pray. As I expected, the Minister had a complaint – that church shouldn’t be political, that I had been one sided, and so on. This is not an essay about that topic, but the reason I share this is because I knew some people would disagree with me, and I knew that would make me furious, and yet I also knew that our church holds the space for all this. I knew we would still all keep showing up, keep living alongside each other, keep encountering each other and being together in our unity, even when we infuriate each other.

In the age of the individual, healing and development has become a personal mission, peddled as products by distant companies that do not really care about our hearts and souls and lives.

There are other fault lines in our church – political, theological, economic, creative. But, just as fault lines on the Earth cause violent earthquakes yet still enable the plates to move and exist alongside each other, shaping and reshaping and evolving this one shared planet, so I think do the fault lines in church, in community, in the world. Perhaps they provide edges along which we can encounter each other, along which we can shape and reshape humanity. Fault lines can bring quakes and tremors, but they can also bring new shapes, new realities, if we’re willing to do the work. Rather than turn away, perhaps these fault lines offer the chance to choose to stay, to be curious, to encounter, to listen — to practice love.

bell hooks again – she speaks so thoughtfully on the topic of love – said: “I am often struck by the dangerous narcissism fostered by spiritual rhetoric that pays so much attention to self-improvement and so little to the practice of love within the context of community.” I am struck by this too — in the age of the individual, healing and development has become a personal mission, peddled as products by distant companies that do not really care about our hearts and souls and lives. In our church though, and in the similarly infuriating and beautiful town it is in, I see – not always but often – how love blazes brightest in the context of relationships and community. It is a commitment, a deeply practical virtue that fosters togetherness, even along fault lines if we believe it can. Love lives in relationships that nurture us and challenge us, that shape us. And I think that is how the kingdom comes — not through grand gestures and money and tech, but person-by-person, through the everyday and lifetime work of love.

Love asks – no, demands – that we root it in practice. It demands that we really see each other, that we encounter each other even along our messy and many fault lines. It demands that we listen, make space for dialogue and difference, seek to understand and be compassionate. This feels countercultural in a time when it can be easier to turn away than to stay. Love demands that we coexist together in our differences so that we are better able to see and unite against our real adversary — lovelessness, and all of its friends. This is holy work, I think, in the sense that it is about wholeness and that it really is work.

At Easter, the cross we reflect on is a symbol of love, and it is also a critique of lovelessness, of empire, of religion that pretends to be about God and love. It is a looking glass, showing us who we are, and who we could yet be if we sought to embody the radical love that Jesus demonstrated even in his final moments, praying for his crucifiers “father, forgive them, for they know not what they do.” Love, I think, wants us to let it take more weight than we do – to trust it, to use it, to wield it like others wield weapons and hatred and judgement. This Easter and beyond, I am reflecting on what love really means in the world right now, and I am praying that we open ourselves more fully to its reality, its concreteness, its demands, its power, its practice. Finally, I am reading again the familiar but ever-challenging verses in St Paul's letter to a church in Corinth:

Love is patient, love is kind. It does not envy, it does not boast, it is not proud. It does not dishonour others, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. Love does not delight in evil but rejoices with the truth. It always protects, always trusts, always hopes, always perseveres. Love never fails.

Article

Ageing

Care

Change

Death & life

20 September 2024

6 min read

A Tolkien poem helps a nurse understand the ravages of dementia

'Not all who wander are lost.'

Helen Cowan

Helen is a registered nurse and freelance writer, writing for audiences ranging from the general public to practitioners and scientists.

An elderly woman wearing headphone looks up and to the side with a big smile.

Playlist for Life

Not all who wander are lost.

Often written on a care home wall, on an inspirational poster, these words are usually set against a forest background, or compass, for added effect. They have also been used as the title of a conference paper discussing so-called smart trackers for people with dementia, whilst, Not all who wander need be lost is the title of a concise guide to navigating the heartbreaking challenges when a loved one is diagnosed with Alzheimer’s disease or other dementia.

As a care home nurse for more than ten years, I have seen residents wander - not lost but “walking with purpose”, as it is sometimes known in the caring community. “Nobody gets up and walks without a reason,” says Suzanne Mumford, Care UK's Head of Nursing, Care and Dementia; perhaps they are easing pain, or boredom, or looking for something that they can’t describe. I remember residents exploring, enquiring into self-made mysteries solvable only by themselves, examining everything from door handles to another resident’s buttons, even escaping with surprising speed. Walking with them, often in silence, can bring a sense of relief, comfort and companionship.

What I didn’t know was that this is a quotation from a poem by JRR Tolkien, published in The Fellowship of the Ring seventy years ago. The actual line is - “Not all those who wander are lost”.

All that is gold does not glitter,
Not all those who wander are lost;
The old that is strong does not wither,
Deep roots are not reached by the frost.

From the ashes a fire shall be woken,
A light from the shadows shall spring;
Renewed shall be blade that was broken,
The crownless again shall be king.”

We first hear this poem in Chapter Ten of Book One, as Frodo reads it in the postscript of a letter from Gandalf. As I read it, the imagery of being lost, withered, frost-bitten, in darkness, burned and broken, speaks something, in poetic picture language, of the ravages of dementia, the harrowing losses, the valley of tears. It brings to mind residents unaware of familiar objects or surroundings, looking straight through loved ones without a flicker of recognition, losing also language, continence, mobility and the ability to swallow.

The TV presenter Fiona Philips recalled an agonising decline in her mother as she succumbed to Alzheimer’s, describing how, in the final stages, her mother “spent whole chunks of time just sitting and staring ahead, only able to give out a series of sounds”. Fiona herself now lives with dementia. “'It’s devastated my family and it’s the biggest health and social care challenge we face as a country,” she says.

I once interviewed retired doctor Jennifer Bute, who lives with dementia. She talked of time travel (perceiving herself as living in a time from her past); disorientation to place and person; frightening hallucinations when old memories are seemingly ‘unlocked’; and ‘emotional unzipping’ when agitation and anxiety increase, often in the late afternoon or evening in something poorly understood as a symptom, known as ‘sundowning’.

Yet there is something more to this poem – each of the pains has a promise – not all who wander are lost; the old that is strong does not wither; and, most poignantly, deep roots are not touched by the frost. In dementia, it is true that deep roots are untouched, that an enduring aspect of a person’s identity never truly withers, though it may be mostly unseen. Something remains. Oliver Sacks the famous neurologist emphasised that, even in the late stages of Alzheimer’s, the person is still ‘alive inside’ (the inspiring documentary with this title is recommended). In stunning real-life stories, he has shown how music appears to ‘call back the self’, awakening moods, memories and thoughts that had seemingly been lost. He refers to music’s extraordinary ‘neural robustness’ and describes one man, unable to tie his tie or find his way to the stage, yet able to perform a perfect piano solo. In one life-affirming, must-watch, tear-jerking video, gospel music was shown to enliven, calm, focus and engage a man simply known as Henry.

Watch Henry

Singing can “provide islands of arousal and awareness like nothing else can”, according to Alicia Clair, Professor of Music Therapy. I’ve seen singing bring the person into the present for a passing moment, illuminating a face that seemed far away. One otherwise-silent lady completed the chorus of ‘Daisy, Daisy’ before descending into dementia again. Others have laughed, clapped, danced, embraced and even shed a silent tear during music therapy sessions, when music elicits memory. Doll therapy meanwhile has sometimes restored and revealed a sense of nurture, purpose, care and pride, with residents feeding their new friend before accepting their own food, folding its clothes and taking care of it cradled in their arms. Though it divides opinion, a doll can preserve dignity if it de-escalates agitation or engagement in physical or verbal abuse; a sense of dignity also comes from the person being able momentarily to give care rather than receive it.

“From the ashes a fire shall be woken, A light from the shadows shall spring; Renewed shall be blade that was broken,” continues Tolkien's poem, and, though not the original intention, these powerful images of renewal and restoration paint a picture of something known as “paradoxical lucidity”, or unexpected cognitive lucidity and communication in some patients with severe dementia, especially around the time of death (though sometimes long before).

Anecdotes are recorded of “unexpected, spontaneous, meaningful, and relevant communication or connectedness in a patient who is assumed to have permanently lost the capacity for coherent verbal or behavioral interaction due to a progressive and pathophysiologic dementing process”. Some scientists are seeing them as a paradigm shift in the understanding and perhaps even treatment of dementia. I will never forget when a woman in the late stages of dementia, with little spoken language, was brought back to the nursing home weeks after hospital admission; she had been perilously ill. With bright eyes, she took my arm and, as if the mist had cleared for a moment, spoke warmest words of thanks to me for helping her on the day she collapsed. In another fleeting and irreproducible moment, a lady wished me happy birthday, before continuing her silent walk around the home. Witnessing such an event is ethically and emotionally transformative.

The concept of remaining ‘alive inside’ even when abilities, language and memory are eroded by dementia is taken to the next level in Christianity, which teaches that life continues even after death itself. The Bible speaks of new life beyond the grave; the fire shall be woken, a light shall spring. And there will be a crown (and the gold will glitter). The Crown of Life is referred to, being bestowed upon "those who persevere under trials." Dementia is one of life’s severest trials; a cross to bear. In the 1912 hymn “The Old Rugged Cross”, another cross is spoken of, being the cross of Christ at his crucifixion. Clinging to that cross, living out a Christian life, the hymnwriter wrote of “exchanging the cross for a crown” at life’s end. After ashes, hope awaits the Christian.

Playlist for Life is a charity encouraging people to create playlists for people living with dementia.

Playlist for Life